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  1. Article: CLD4SDGs: Integrated assessment of progress and impacts on Sustainable Development Goals using Causal Loop Diagrams.

    Downing, Andrea S

    MethodsX

    2022  Volume 9, Page(s) 101851

    Abstract: The United Nations' 2030 Agenda for sustainable development calls for meeting the global Sustainable Development Goals (SDGs) through local action and integrated approaches. We here describe a method developed to understand how local (un-)sustainable ... ...

    Abstract The United Nations' 2030 Agenda for sustainable development calls for meeting the global Sustainable Development Goals (SDGs) through local action and integrated approaches. We here describe a method developed to understand how local (un-)sustainable processes in coupled social-ecological systems contribute to or hinder meeting SDGs at the target-level in coupled social-ecological systems (SES). The steps include:•The construction of a causal-loop diagram (CLD) of the social-ecological processes that shape system dynamics•CLD simplification for the purpose of the SDG analysis,•Steps of the SDG analysis. The methods combine and build on published examples of CLD and SDG analyses and includes instructions for the transparent documentation of the analyses to support review and further development of SDG-target analyses in complex social-ecological systems. A template for the documentation and analysis is provided in the supplementary materials.
    Language English
    Publishing date 2022-09-08
    Publishing country Netherlands
    Document type Journal Article
    ZDB-ID 2830212-6
    ISSN 2215-0161
    ISSN 2215-0161
    DOI 10.1016/j.mex.2022.101851
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Health advertising on Facebook: Privacy and policy considerations.

    Downing, Andrea / Perakslis, Eric

    Patterns (New York, N.Y.)

    2022  Volume 3, Issue 9, Page(s) 100561

    Abstract: In this study, we analyzed health-advertising tactics of digital medicine companies (n = 5) to evaluate varying types of cross-site-tracking middleware (n = 32) used to extract health information from users. More specifically, we examine how browsing ... ...

    Abstract In this study, we analyzed health-advertising tactics of digital medicine companies (n = 5) to evaluate varying types of cross-site-tracking middleware (n = 32) used to extract health information from users. More specifically, we examine how browsing data can be exchanged between digital medicine companies and Facebook for advertising and lead generation and advertising purposes. Our analysis focused on companies offering services to patient advocates in the cancer community who frequently engage on social media. We co-produced this study with public cancer advocates leading or participating in breast cancer groups on Facebook. Following our analysis, we raise policy questions about what constitutes a health privacy breach based on existing federal laws such as the Health Breach Notification Rule and The HIPAA Privacy Rule. We discuss how these common marketing practices enable surveillance and targeting of medical ads to vulnerable patient populations without consent.
    Language English
    Publishing date 2022-08-15
    Publishing country United States
    Document type Journal Article
    ISSN 2666-3899
    ISSN (online) 2666-3899
    DOI 10.1016/j.patter.2022.100561
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Promise and Perils of Large Language Models for Cancer Survivorship and Supportive Care.

    Bitterman, Danielle S / Downing, Andrea / Maués, Julia / Lustberg, Maryam

    Journal of clinical oncology : official journal of the American Society of Clinical Oncology

    2024  Volume 42, Issue 14, Page(s) 1607–1611

    Abstract: A call to action to bring stakeholders together to plan for the future of LLM-enhanced cancer survivorship. ...

    Abstract A call to action to bring stakeholders together to plan for the future of LLM-enhanced cancer survivorship.
    MeSH term(s) Humans ; Cancer Survivors ; Neoplasms/therapy ; Neoplasms/mortality ; Neoplasms/psychology ; Survivorship
    Language English
    Publishing date 2024-03-07
    Publishing country United States
    Document type Journal Article
    ZDB-ID 604914-x
    ISSN 1527-7755 ; 0732-183X
    ISSN (online) 1527-7755
    ISSN 0732-183X
    DOI 10.1200/JCO.23.02439
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 1847: Show issues Location:
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    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (1.OG)
    ab Jg. 2022: Lesesaal (EG)
    Zs.MO 650: Show issues

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  4. Article ; Online: Perspectives of People With Cancer or Hereditary Cancer Risk on the Use and Value of Online Peer Support.

    Holdren, Jill / Surkan, Karl / Downing, Andrea

    Journal of patient-centered research and reviews

    2023  Volume 10, Issue 2, Page(s) 58–67

    Abstract: Purpose: People with cancer routinely seek information and support in peer groups online. While peer communities constitute a major component of the health care landscape, they exist in isolation from clinical and research institutions. This study aimed ...

    Abstract Purpose: People with cancer routinely seek information and support in peer groups online. While peer communities constitute a major component of the health care landscape, they exist in isolation from clinical and research institutions. This study aimed to explore how and why cancer patients utilize online peer support groups and how they might be improved.
    Methods: A convenience sample of members of 6 closed Facebook cancer peer support groups (n=291) participated in an online needs assessment survey. We further conducted semi-structured interviews with 14 members and 6 moderator-patients, hand-coding the free-text responses and interview transcripts.
    Results: Group participation was largely motivated by the desire to exchange information (79%) and to connect with others sharing the same condition (76%). Among study participants, 40% indicated they did not get information or support from any other online or offline organizations, 60% indicated they had few concerns with Facebook peer support groups, 84% indicated it was at least somewhat important that their health information and posts remain private, and 75% desired more input from experts in order to access evidence-based information and curb misinformation. About half wanted more group moderation, and moderators themselves expressed an urgent need for training and support.
    Conclusions: While online peer groups are a commonly utilized care component for many people with cancer or hereditary cancer risk and serve as a primary source of condition information, many participants desired more expert involvement in and moderation of groups. Privacy and security of health information was another key need expressed.
    Language English
    Publishing date 2023-04-18
    Publishing country United States
    Document type Journal Article
    ZDB-ID 3022292-8
    ISSN 2330-0698 ; 2330-068X
    ISSN (online) 2330-0698
    ISSN 2330-068X
    DOI 10.17294/2330-0698.1968
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: What is the ‘problem’ of gender inequality represented to be in the Swedish forest sector?

    Ville, Alizée / Wong, Grace / Aceituno, Amanda Jiménez / Downing, Andrea / Karambiri, Mawa / Brockhaus, Maria

    Environmental Science and Policy. 2023 Feb., v. 140 p.46-55

    2023  

    Abstract: Gender equality in natural resource management is a matter of sustainability and democracy for Sweden’s government, however the country’s forest remains a highly gender-segregated sector. We examine how gender inequality is problematized within Swedish ... ...

    Abstract Gender equality in natural resource management is a matter of sustainability and democracy for Sweden’s government, however the country’s forest remains a highly gender-segregated sector. We examine how gender inequality is problematized within Swedish forest and rural policy documents using the What’s the problem represented to be? (WPR) approach. We build on previous efforts to investigate gender inequality in the forest sector by expanding the critical analysis to rural development policy. We conduct interviews with forest experts, owners, and practitioners to shed light on where there are gaps within the policy representations and uncover alternative policy options that are presented. Our findings corroborate that gender inequality is represented to be a technical problem, with policy measures aiming to increase the number of women within a forest sector that continues to maintain rigid conceptions about forestry production values. While there are claims of success in the increase of women within the sector in aggregate, there is little change in the numbers of women in decision-making positions. Forest policy relies upon women to bring growth and sustainability to the forest industry, while rural policy expects women to halt rural population decline. Our findings suggest that merely trying to fit more women into a mold that has been shaped for and by inflexible forestry and masculine values is an impediment not only to gender equality but also to the inclusion of other social groups and ideas in the changing rural landscapes of Sweden.
    Keywords decision making ; development policy ; environmental science ; forest industries ; forest policy ; forests ; gender ; population dynamics ; rural development ; rural policy ; rural population ; social inequality ; timber production ; Sweden ; Gender inequality ; Critical policy analysis
    Language English
    Dates of publication 2023-02
    Size p. 46-55.
    Publishing place Elsevier Ltd
    Document type Article ; Online
    Note Use and reproduction
    ZDB-ID 1454687-5
    ISSN 1462-9011
    ISSN 1462-9011
    DOI 10.1016/j.envsci.2022.11.013
    Database NAL-Catalogue (AGRICOLA)

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    In stock of ZB MED Bonn / Germany

    Z 7104: Show issues

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  6. Article ; Online: So You Want to Build Your Disease's First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience.

    Wicks, Paul / Wahlstrom-Edwards, Lindsey / Fillingham, Sam / Downing, Andrea / Davies, Elin Haf

    The patient

    2023  Volume 16, Issue 3, Page(s) 183–199

    Abstract: Patient registries fulfill a number of key roles for clinicians, researchers, non-profit organizations, payers, and policy makers. They can help the field understand the natural history of a condition, determine the effectiveness of interventions, ... ...

    Abstract Patient registries fulfill a number of key roles for clinicians, researchers, non-profit organizations, payers, and policy makers. They can help the field understand the natural history of a condition, determine the effectiveness of interventions, measure safety, and audit the quality of care provided. Successful registries in cystic fibrosis, Duchenne's muscular dystrophy, and other rare diseases have become a model for accelerating progress. However, the complex tasks required to develop a modern registry can seem overwhelming, particularly for those who are not from a technical background. In this Education article, a team of co-authors from across patient advocacy, technology, privacy, and commercial perspectives who have worked on a number of such projects offer a "Registry 101" primer to help get started. We will outline the promise and potential of patient registries with worked case examples, identify some of the key technical considerations you will need to consider, describe the type of data you might want to collect, consider privacy risks to protect your users, sketch out some of the paths towards long-term financial sustainability we have observed, and conclude with plans to mitigate some of the challenges that can occur and signpost interested readers to further resources. While rapid growth in the digital health market has presented numerous opportunities to those at the beginning of their journey, it is important to start with the long-term goals in mind and to benefit from the learnings of those who have walked this path before.
    MeSH term(s) Humans ; Educational Status ; Patients ; Cystic Fibrosis/therapy ; Registries ; Rare Diseases
    Language English
    Publishing date 2023-03-22
    Publishing country New Zealand
    Document type Journal Article
    ZDB-ID 2466680-4
    ISSN 1178-1661 ; 1178-1653
    ISSN (online) 1178-1661
    ISSN 1178-1653
    DOI 10.1007/s40271-023-00619-w
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  7. Article: When the whole is less than the sum of all parts – Tracking global-level impacts of national sustainability initiatives

    Downing, Andrea S. / Wong, Grace Y. / Dyer, Michelle / Aguiar, Ana Paula / Selomane, Odirilwe / Jiménez Aceituno, Amanda

    Global environmental change. 2021 July, v. 69

    2021  

    Abstract: The United Nations’ Sustainable Development Goals (SDGs) are described as integrated and indivisible, where sustainability challenges must be addressed across sectors and scales to achieve global-level sustainability. However, SDG monitoring mostly ... ...

    Abstract The United Nations’ Sustainable Development Goals (SDGs) are described as integrated and indivisible, where sustainability challenges must be addressed across sectors and scales to achieve global-level sustainability. However, SDG monitoring mostly focuses on tracking progress at national-levels, for each goal individually. This approach ignores local and cross-border impacts of national policies and assumes that global-level progress is the sum of national, sector-specific gains. In this study, we investigate effects of reforestation programs in China on countries supplying forest and agricultural commodities to China. Using case studies of rubber and palm oil production in Southeast Asian countries, soy production in Brazil and logging in South Pacific Island states, we investigate cross-sector effects of production for and trade to China in these exporting countries. We use a three-step multi-method approach. 1) We identify distal trade flows and the narratives used to justify them, using a telecoupling framework; 2) we design causal loop diagrams to analyse social-ecological processes of change in our case studies driven by trade to China and 3) we link these processes of change to the SDG framework. We find that sustainability progress in China from reforestation is cancelled out by the deforestation and cross-sectoral impacts supporting this reforestation abroad. Narratives of economic development support commodity production abroad through unrealised aims of benefit distribution and assumptions of substitutability of socio-ecological forest systems. Across cases, we find the analysed trade supports unambiguous progress on few SDGs only, and we find many mixed effects – where processes that support the achievement of SDGs exist, but are overshadowed by counterproductive processes. Our study represents a useful approach for tracking global-level impacts of national sustainability initiatives and provides cross-scale and cross-sectoral lenses through which to identify drivers of unsustainability that can be addressed in the design of effective sustainability policies.
    Keywords deforestation ; forests ; global change ; palm oils ; reforestation ; rubber ; sustainable development ; trade ; Brazil ; China ; Pacific Ocean Islands
    Language English
    Dates of publication 2021-07
    Publishing place Elsevier Ltd
    Document type Article
    ZDB-ID 30436-0
    ISSN 1056-9367 ; 0959-3780
    ISSN 1056-9367 ; 0959-3780
    DOI 10.1016/j.gloenvcha.2021.102306
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    In stock of ZB MED Bonn / Germany

    Z 5711: Show issues
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  8. Article: Unlocking the unsustainable rice-wheat system of Indian Punjab: Assessing alternatives to crop-residue burning from a systems perspective

    Downing, Andrea S. / Kumar, Manish / Andersson, August / Causevic, Amar / Gustafsson, Örjan / Joshi, Niraj U. / Krishnamurthy, Chandra Kiran B. / Scholtens, Bert / Crona, Beatrice

    Ecological economics. 2022 May, v. 195

    2022  

    Abstract: Crop residue burning in Indian Punjab emits particulate matter with detrimental impacts on health, climate and that threaten agricultural production. Though legal and technological barriers to residue burning exist – and alternatives considered more ... ...

    Abstract Crop residue burning in Indian Punjab emits particulate matter with detrimental impacts on health, climate and that threaten agricultural production. Though legal and technological barriers to residue burning exist – and alternatives considered more profitable to farmers – residue burning continues. We review black carbon (BC) emissions from residue burning in Punjab, analyse social-ecological processes driving residue burning, and rice and wheat value-chains. Our aims are to a) understand system feedbacks driving agricultural practices in Punjab; b) identify systemic effects of alternatives to residue burning and c) identify companies and financial actors investing in agricultural production in Punjab. We find feedbacks locking the system into crop residue burning. The Government of India has greatest financial leverage and risk in the current system. Corporate stakeholders have little financial incentive to enact change, but sufficient stakes in the value chains to influence change. Agricultural policy changes are necessary to reduce harmful impacts of current practices, but insufficient to bringing about sustainability. Transformative changes will require crop diversification, circular business models and green financing. Intermediating financial institutions setting sustainability conditions on loans could leverage these changes. Sustainability requires the systems perspective we provide, to reconnect production with demand and with supporting environmental conditions.
    Keywords agricultural policy ; carbon ; climate ; crop diversification ; crop residues ; ecological economics ; economic incentives ; particulates ; rice ; risk ; stakeholders ; wheat ; India
    Language English
    Dates of publication 2022-05
    Publishing place Elsevier B.V.
    Document type Article
    ISSN 0921-8009
    DOI 10.1016/j.ecolecon.2022.107364
    Database NAL-Catalogue (AGRICOLA)

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  9. Book ; Thesis: Seeing the water for the fish

    Downing, Andrea S

    building on perspectives of Lake Victoria

    2012  

    Author's details Andrea S. Downing
    Language English
    Size 187 p. :, ill., (chiefly col.). col. map
    Publisher s.n.
    Publishing place Wageningen
    Document type Book ; Thesis
    Thesis / German Habilitation thesis Thesis (doctoral)--Wageningen University, 2012
    Note Summary in Dutch. ; Vita. ; "Propositions" ([1] leaf) inserted.
    ISBN 9789461733139 ; 9461733135
    Database NAL-Catalogue (AGRICOLA)

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  10. Article: Local lens for SDG implementation: lessons from bottom-up approaches in Africa

    Jiménez-Aceituno, Amanda / Peterson, Garry D / Norström, Albert V / Wong, Grace Y / Downing, Andrea S

    Sustainability science. 2020 May, v. 15, no. 3

    2020  

    Abstract: The Anthropocene presents a set of interlinked sustainability challenges for humanity. The United Nations 2030 Agenda has identified 17 specific Sustainable Development Goals (SDGs) as a way to confront these challenges. However, local initiatives have ... ...

    Abstract The Anthropocene presents a set of interlinked sustainability challenges for humanity. The United Nations 2030 Agenda has identified 17 specific Sustainable Development Goals (SDGs) as a way to confront these challenges. However, local initiatives have long been addressing issues connected to these goals in a myriad of diverse and innovative ways. We present a new approach to assess how local initiatives contribute to achieving the SDGs. We analyse how many, and how frequently, different SDGs and targets are addressed in a set of African initiatives. We consider goals and targets addressed by the same initiative as interacting between them. Then, we cluster the SDGs based on the combinations of goals and targets addressed by the initiatives and explore how SDGs differ in how local initiatives engage with them. We identify 5 main groups: SDGs addressed by broad-scope projects, SDGs addressed by specific projects, SDGs as means of implementation, cross-cutting SDGs and underrepresented SDGs. Goal 11 (sustainable cities & communities) is not clustered with any other goal. Finally, we explore the nuances of these groups and discuss the implications and relevance for the SDG framework to consider bottom-up approaches. Efforts to monitor the success on implementing the SDGs in local contexts should be reinforced and consider the different patterns initiatives follow to address the goals. Additionally, achieving the goals of the 2030 Agenda will require diversity and alignment of bottom-up and top-down approaches.
    Keywords Anthropocene epoch ; sustainability science and engineering ; sustainable development ; Africa
    Language English
    Dates of publication 2020-05
    Size p. 729-743.
    Publishing place Springer Japan
    Document type Article
    Note NAL-AP-2-clean
    ZDB-ID 2260333-5
    ISSN 1862-4057 ; 1862-4065
    ISSN (online) 1862-4057
    ISSN 1862-4065
    DOI 10.1007/s11625-019-00746-0
    Database NAL-Catalogue (AGRICOLA)

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