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Book ; Online: Power and Dysfunction : The New South Wales Board for the Protection of Aborigines 1883-1940

Egan, Richard

2021

Keywords	Australasian & Pacific history ; Indigenous peoples ; Aboriginal History ; NSW board for the Protection of Aborigines ; Australian history ; Indigenous studies ; policy
Size	1 electronic resource (390 pages)
Publisher	ANU Press
Publishing place	Canberra
Document type	Book ; Online
Note	English ; Open Access
HBZ-ID	HT021231612
ISBN	9781760464738 ; 1760464732
Database	ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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Article ; Online: Embodied decisions unfolding over time: a meta-ethnography systematic review of people with cancer's reasons for delaying or declining end-of-life care.

Young, Jessica / Lyons, Antonia / Egan, Richard / Dew, Kevin

BMC palliative care

2024 Volume 23, Issue 1, Page(s) 45

Abstract: Background: Barriers to accessing hospice and palliative care have been well studied. An important yet less researched area is why people approaching the end-of-life decline a referral when they are offered services. This review focused on synthesising ... ...

Abstract	Background: Barriers to accessing hospice and palliative care have been well studied. An important yet less researched area is why people approaching the end-of-life decline a referral when they are offered services. This review focused on synthesising literature on patients in the last months of life due to a cancer diagnosis who have declined a referral to end-of-life care. Methods: Six academic databases were systematically searched for qualitative literature published between 2007 and 2021. Two researchers independently reviewed and critically appraised the studies. Using meta-ethnographic methods of translation and synthesis, we set out to identify and develop a new overarching model of the reasons patients decline end-of-life care and the factors contributing to this decision. Results: The search yielded 2060 articles, and nine articles were identified that met the review inclusion criteria. The included studies can be reconceptualised with the key concept of 'embodied decisions unfolding over time'. It emphasises the iterative, dynamic, situational, contextual and relational nature of decisions about end-of-life care that are grounded in people's physical experiences. The primary influences on how that decision unfolded for patients were (1) the communication they received about end-of-life care; (2) uncertainty around their prognosis, and (3) the evolving situations in which the patient and family found themselves. Our review identified contextual, person and medical factors that helped to shape the decision-making process. Conclusions: Decisions about when (and for some, whether at all) to accept end-of-life care are made in a complex system with preferences shifting over time, in relation to the embodied experience of life-limiting cancer. Time is central to patients' end-of-life care decision-making, in particular estimating how much time one has left and patients' embodied knowing about when the right time for end-of-life care is. The multiple and intersecting domains of health that inform decision-making, namely physical, mental, social, and existential/spiritual as well as emotions/affect need further exploration. The integration of palliative care across the cancer care trajectory and earlier introduction of end-of-life care highlight the importance of these findings for improving access whilst recognising that accessing end-of-life care will not be desired by all patients.
MeSH term(s)	Humans ; Terminal Care ; Hospice Care ; Palliative Care ; Anthropology, Cultural ; Neoplasms/therapy ; Qualitative Research
Language	English
Publishing date	2024-02-19
Publishing country	England
Document type	Systematic Review ; Journal Article
ZDB-ID	2091556-1
ISSN	1472-684X ; 1472-684X
ISSN (online)	1472-684X
ISSN	1472-684X
DOI	10.1186/s12904-024-01342-5
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Spirituality in Aotearoa, New Zealand: Personal Reflections From a Spirituality in Health Care Researcher.

Egan, Richard

Journal of pain and symptom management

2018 Volume 57, Issue 5, Page(s) 1031–1034

Abstract: Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality ... ...

Abstract	Spirituality is about what is of utmost value; it is a values lens that asks "what really matters most to me, my family, our community, our country, and our world." This personal reflection comes from a New Zealand academic who works in the spirituality and health care research field. Although largely biographical, this reflection offers some insight into the New Zealand context and this emergent field.
MeSH term(s)	Culture ; Health Services Research ; Humans ; New Zealand ; Research Personnel/psychology ; Spirituality
Language	English
Publishing date	2018-12-27
Publishing country	United States
Document type	Journal Article ; Personal Narrative
ZDB-ID	639142-4
ISSN	1873-6513 ; 0885-3924
ISSN (online)	1873-6513
ISSN	0885-3924
DOI	10.1016/j.jpainsymman.2018.12.331
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Article ; Online: Adrenal incidentalomas.

Hadjikyriacou, Eleni / Egan, Richard

The British journal of surgery

2022 Volume 109, Issue 8, Page(s) 647–649

MeSH term(s)	Adrenal Gland Neoplasms/diagnosis ; Adrenal Gland Neoplasms/surgery ; Dexamethasone ; Humans ; Incidental Findings
Chemical Substances	Dexamethasone (7S5I7G3JQL)
Language	English
Publishing date	2022-06-11
Publishing country	England
Document type	Journal Article
ZDB-ID	2985-3
ISSN	1365-2168 ; 0263-1202 ; 0007-1323 ; 1355-7688
ISSN (online)	1365-2168
ISSN	0263-1202 ; 0007-1323 ; 1355-7688
DOI	10.1093/bjs/znac138
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Article ; Online: 'Survivorship care is one big gap': a qualitative study of post-treatment supportive care in Aotearoa New Zealand.

Bateman, Jerram / Egan, Richard / Maclennan, Karyn

BMC health services research

2023 Volume 23, Issue 1, Page(s) 594

Abstract: Background: This study focuses on the provision of supportive care services and programmes for cancer survivors post-treatment in Aotearoa New Zealand (NZ). It aims to aid our understanding of an often challenging and fragmented phase of cancer ... ...

Abstract	Background: This study focuses on the provision of supportive care services and programmes for cancer survivors post-treatment in Aotearoa New Zealand (NZ). It aims to aid our understanding of an often challenging and fragmented phase of cancer survivorship, and lay the groundwork for future research into the development of survivorship care in NZ. Methods: This study employed a qualitative design using semi-structured interviews with a range of healthcare providers (n = 47) involved in service provision for cancer survivors post active treatment, including supportive care providers; clinical and allied health providers; primary health providers; and Māori health providers. Data were analysed using thematic analysis. Results: We found that cancer survivors in NZ face a range of psycho-social and physical issues post-treatment. The provision of supportive care to meet these needs is currently fragmented and inequitable. The key barriers to improved supportive care provision for cancer survivors post-treatment include a lack of capacity and resources within the existing cancer care framework; divergent attitudes to survivorship care within the cancer care workforce; and a lack of clarity around whose responsibility post-treatment survivorship care is. Conclusions: Post-treatment cancer survivorship should be established as a distinct phase of cancer care. Measures could include greater leadership in the survivorship space; the implementation of a survivorship model(s) of care; and the use of survivorship care plans; all of which could help improve referral pathways, and clarify clinical responsibility for post-treatment survivorship care.
MeSH term(s)	Humans ; Survivorship ; New Zealand ; Maori People ; Cancer Survivors ; Qualitative Research
Language	English
Publishing date	2023-06-08
Publishing country	England
Document type	Journal Article
ZDB-ID	2050434-2
ISSN	1472-6963 ; 1472-6963
ISSN (online)	1472-6963
ISSN	1472-6963
DOI	10.1186/s12913-023-09580-8
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Mental health promotion practice in Aotearoa New Zealand: findings from a qualitative study.

Craik, Brooke / Egan, Richard / Kewene, Francis / Morgaine, Kate C

Health promotion international

2023 Volume 38, Issue 5

Abstract: Mental health promotion (MHP) is integral to improving the overall health and well being of individuals, communities, and populations. However, knowledge and reporting about MHP which occurs throughout Aotearoa New Zealand (NZ) is limited. This article ... ...

Abstract	Mental health promotion (MHP) is integral to improving the overall health and well being of individuals, communities, and populations. However, knowledge and reporting about MHP which occurs throughout Aotearoa New Zealand (NZ) is limited. This article reports findings from a qualitative study that sought to understand NZ health promotion practitioners' (HPPs) MHP practice. Semi-structured interviews were undertaken with 15 HPPs employed at various health promotion organizations. Thematic analysis of interview transcripts identified three key themes. Two themes (planning and evaluation) related to practice directly and included various subthemes: needs assessment; principles/approaches/frameworks; operationalizing equity and te Tiriti o Waitangi; collaborative approaches; planning for evaluation; process evaluation domination; and evaluation challenges. The third theme related to the context of practice and encompassed various system influences restricting HPPs from practising as they wished. These were represented in four subthemes: contractual agreements; field fragmentation; in the shadows of mental ill-health and workforce capacity. Study findings highlight several opportunities to improve MHP practice in NZ. Most pertinently, the need for system-level action to address the factors restricting HPPs' practice.
MeSH term(s)	Humans ; New Zealand ; Health Promotion ; Mental Health ; Workforce
Chemical Substances	N-succinimidyl-3-(4-hydroxyphenyl)propionate (34071-95-9)
Language	English
Publishing date	2023-10-21
Publishing country	England
Document type	Journal Article
ZDB-ID	1027448-0
ISSN	1460-2245 ; 0957-4824
ISSN (online)	1460-2245
ISSN	0957-4824
DOI	10.1093/heapro/daad137
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Article ; Online: Love all, trust a few, do wrong to none.

Bowman, Christopher R / Kearns, Mollie / Egan, Richard J / Lewis, Wyn G

Postgraduate medical journal

2023 Volume 100, Issue 1182, Page(s) 207–208

MeSH term(s)	Humans ; Love ; Trust ; Leadership
Language	English
Publishing date	2023-12-23
Publishing country	England
Document type	Journal Article
ZDB-ID	80325-x
ISSN	1469-0756 ; 0032-5473
ISSN (online)	1469-0756
ISSN	0032-5473
DOI	10.1093/postmj/qgad122
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Article ; Online: Narratives of loss: the impact of Covid-19 lockdown on experiences of loss, grief, and bereavement.

Dew, Rhiannon / Heath, Lis / Egan, Richard

Journal of primary health care

2022 Volume 14, Issue 4, Page(s) 345–351

Abstract: Introduction Restrictions imposed to eliminate the spread of the coronavirus disease 2019 (COVID-19) virus had significant implications on peoples' experiences of caring for family/whānau at the end of life, and on their own bereavement process. Aim This ...

Abstract	Introduction Restrictions imposed to eliminate the spread of the coronavirus disease 2019 (COVID-19) virus had significant implications on peoples' experiences of caring for family/whānau at the end of life, and on their own bereavement process. Aim This qualitative research explored the impact of COVID-19 lockdown restrictions on experiences of loss, grief and bereavement in Aotearoa New Zealand. Methods This qualitative narrative research used semi-structured interviews with 10 participants who experienced the loss of a loved one during Levels 3 or 4 lockdown in Aotearoa New Zealand (23 March-13 May 2020). Interviews were coded using NVivo software and inductive thematic analysis was used to evaluate the data. Results Results were grouped into three themes: death experience; mourning in isolation; and availability of support. These themes provide insight into the challenges and difficulties participants faced when they experienced the death of a loved one during a COVID-19 lockdown, and the impact of these restrictions on their experiences of grief and bereavement. Discussion The findings from this research suggest there is an increased risk of prolonged grief among those bereaved during lockdown. Primary care professionals need to be aware of this increased risk in order to identify need and provide access to bereavement support.
MeSH term(s)	Humans ; COVID-19/epidemiology ; Communicable Disease Control ; Bereavement ; Grief ; SARS-CoV-2
Language	English
Publishing date	2022-12-31
Publishing country	Australia
Document type	Journal Article
ZDB-ID	2572943-3
ISSN	1172-6156 ; 1172-6156
ISSN (online)	1172-6156
ISSN	1172-6156
DOI	10.1071/HC22090
Database	MEDical Literature Analysis and Retrieval System OnLINE

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Article ; Online: Expert insights on digital contact tracing: interviews with contact tracing policy professionals in New Zealand.

Chambers, Tim / Egan, Richard / Maclennan, Karyn / Emery, Tepora / Derrett, Sarah

Health promotion international

2022 Volume 37, Issue 3

Abstract: Digital contact tracing (DCT) is the application of digital tools to assist with identifying and informing close contacts of a COVID-19 case. DCT is a potential solution to capacity constraints of current manual contact tracing processes. Expert opinion ... ...

Abstract	Digital contact tracing (DCT) is the application of digital tools to assist with identifying and informing close contacts of a COVID-19 case. DCT is a potential solution to capacity constraints of current manual contact tracing processes. Expert opinion from contact tracing professionals rarely informs public discourse on the benefits and limitations of DCT solutions. Three focus groups were undertaken in New Zealand to understand benefits and limitations of DCT solutions from contact tracing professionals. One was with the National Investigation and Tracing Centre (NITC) and two were with Public Health Units (PHUs). Participants highlighted four key themes including: (i) equity, (ii) privacy, (iii) communication and public perception and (iv) the operational model. Participants were concerned DCT solutions could exacerbate existing health inequities due to lack of access to, or familiarity with, technology. Poor communication and public understanding of DCT were seen as a major threat to both the efficacy of DCT solutions and the wider COVID-19 response. Most importantly, end-users were cautious of the operational model for DCT data that might: (i) attempt to replace manual processes that cannot or should not be automated by technology (case investigations, follow-ups); (ii) place undue burden on citizens and (iii) increase the workload for the current system beyond its capacity, for unproven or limited benefit. To be effective, contact tracing professionals believed DCT technologies must have strong privacy safeguards, a clear and simple communication strategy, interoperability with the existing contact tracing system and a foundation of health equity.
MeSH term(s)	COVID-19/prevention & control ; Contact Tracing ; Humans ; New Zealand ; Policy
Language	English
Publishing date	2022-04-13
Publishing country	England
Document type	Journal Article
ZDB-ID	1027448-0
ISSN	1460-2245 ; 0957-4824
ISSN (online)	1460-2245
ISSN	0957-4824
DOI	10.1093/heapro/daac059
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Article ; Online: Spirituality: A Key Component of the Salvation Army's Bridge Programme Model of Treatment in Aotearoa New Zealand.

Egan, Richard / Gross, Julien / Cameron, Claire / Hobbs, Linda / Patterson, Tess

Journal of religion and health

2022 Volume 62, Issue 4, Page(s) 2563–2584

Abstract: Spirituality is vital to The Salvation Army's Bridge model of treatment for alcohol and drug addiction. Spirituality is expressed through Recovery Church, prayer, spirituality lifters, the 12-step programme, and focuses on meaning and purpose. We ... ...

Abstract	Spirituality is vital to The Salvation Army's Bridge model of treatment for alcohol and drug addiction. Spirituality is expressed through Recovery Church, prayer, spirituality lifters, the 12-step programme, and focuses on meaning and purpose. We recruited participants from several regional centers throughout Aotearoa New Zealand and evaluated spirituality using the WHOQol-SRPB and open-ended questions. Most participants held broad understandings of spirituality, only a minority equating it with religion. Participants who completed the Programme had statistically significant increases in spiritual wellbeing at end-of-treatment. These increases were maintained at a 3-month follow-up. Increases in spiritual wellbeing were associated with decreases in severity of alcohol and drug use.
MeSH term(s)	Humans ; Spirituality ; New Zealand ; Spiritual Therapies ; Religion ; Substance-Related Disorders
Language	English
Publishing date	2022-09-29
Publishing country	United States
Document type	Journal Article
ZDB-ID	2017250-3
ISSN	1573-6571 ; 0022-4197
ISSN (online)	1573-6571
ISSN	0022-4197
DOI	10.1007/s10943-022-01674-7
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