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  1. Book ; Online ; E-Book: A critical history of dementia studies

    Fletcher, James Rupert / Capstick, Andrea

    (Dementia in Critical Dialogue Series)

    2024  

    Abstract: This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very ... ...

    Author's details edited by James Rupert Fletcher and Andrea Capstick
    Series title Dementia in Critical Dialogue Series
    Abstract "This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and contradictions that characterise the field. Drawing together a collection of internationally renowned experts in a variety of fields, including people with dementia, this volume includes perspectives from education, the arts, human rights and much more. This critical history sets out the shared intellectual space of 'dementia studies', from which non-medical dementia research can progress. The book is intended for researchers, academics, and students of dementia studies, social gerontology, disability, chronic illness, health and social care. It will also appeal to activists and practitioners engaged in social work and caregiving involved in dementia research"--
    Keywords Dementia/Research
    Subject code 616.8/310072
    Language English
    Size 1 online resource (214 pages)
    Publisher Routledge
    Publishing place Abingdon, England
    Document type Book ; Online ; E-Book
    Note Includes index.
    Remark Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    ISBN 1-00-329035-3 ; 1-000-93756-9 ; 1-003-29035-3 ; 1-000-93763-1 ; 9781032268774 ; 978-1-00-329035-3 ; 978-1-000-93756-5 ; 978-1-003-29035-3 ; 978-1-000-93763-3 ; 1032268778
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  2. Book ; Online: The Biopolitics of Dementia

    Fletcher, James Rupert

    A Neurocritical Perspective

    (Dementia in Critical Dialogue)

    2024  

    Series title Dementia in Critical Dialogue
    Keywords Sociology ; Alzheimer's;biopolitics;care;dementia;gerontology;stigma;technoscience
    Language English
    Size 1 electronic resource (269 pages)
    Publisher Taylor and Francis
    Document type Book ; Online
    Note English
    HBZ-ID HT030611028
    ISBN 9781003398523 ; 1003398529
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  3. Article ; Online: Transport digitalisation: Navigating futures of hypercognitive disablement.

    Fletcher, James Rupert

    The British journal of sociology

    2024  

    Abstract: People living with cognitive impairments face new forms of disablement in the context of transport digitalisation, an issue recently catalysed by controversies regarding rail ticket office closures. Transport can dramatically impact the lives of people ... ...

    Abstract People living with cognitive impairments face new forms of disablement in the context of transport digitalisation, an issue recently catalysed by controversies regarding rail ticket office closures. Transport can dramatically impact the lives of people diagnosed with dementia, who often find their mobility suddenly and dramatically impaired. Unfortunately, sociological analysis of cognitive disability has traditionally been undermined by under-theorisation. One solution can be found in classic bioethical work on hypercognitivism-the veneration of cognitive acuity-and its disabling consequences. A hypercognitive approach can nurture an attentiveness to the specificities of digital disablement. Here, disability does not emerge from digitalisation inherently, but is instead intensified by the implementation of digitalisation in line with value commitments. A more robust sociology of cognitive disability could better represent the interests of people with cognitive impairments and resist the new forms of disability that current digitalisation risks spreading.
    Language English
    Publishing date 2024-04-01
    Publishing country England
    Document type Journal Article
    ZDB-ID 1491378-1
    ISSN 1468-4446 ; 0007-1315
    ISSN (online) 1468-4446
    ISSN 0007-1315
    DOI 10.1111/1468-4446.13092
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  4. Article ; Online: Publishing the Biotechnical Futures of Alzheimer's Disease.

    Fletcher, James Rupert

    AJOB neuroscience

    2023  Volume 14, Issue 2, Page(s) 124–126

    MeSH term(s) Humans ; Alzheimer Disease/drug therapy ; Hallucinogens/therapeutic use ; Publishing ; Medicine ; Forecasting
    Chemical Substances Hallucinogens
    Language English
    Publishing date 2023-04-24
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't ; Comment
    ZDB-ID 2576262-X
    ISSN 2150-7759 ; 2150-7740
    ISSN (online) 2150-7759
    ISSN 2150-7740
    DOI 10.1080/21507740.2023.2188278
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Cognitivism ageing: The Alzheimer conundrum as switched ontology & the potential for a new materialist dementia.

    Fletcher, James Rupert

    Journal of aging studies

    2023  Volume 66, Page(s) 101155

    Abstract: Following recent regulatory approvals for anti-Alzheimer's monoclonal antibodies, this paper considers the contemporary role of cognitivism in defining the ontological commitments of dementia research, as well as movements away from cognitivism under the ...

    Abstract Following recent regulatory approvals for anti-Alzheimer's monoclonal antibodies, this paper considers the contemporary role of cognitivism in defining the ontological commitments of dementia research, as well as movements away from cognitivism under the umbrella of 4E cognitive science. 4E cognitive theories, extending cognition into bodies, their environs, and active relations between the two, share potentially fruitful affinities with new materialisms which focus on the co-constitution of matter in intra-action. These semi-overlapping conceptual positions furnish some opportunity for an ontological alternative to longstanding cognitivist commitments, particularly to the isolated brain as a material catalyst for commercial interventions. After outlining mainstream cognitivism and its shortcomings, I explore 4E and new materialism as possibly transformative conceptual schemas for dementia research, a field for which cognitivist imaginings of cognitive decline in later life have profound and often regrettable ramifications. To realise this new materialist dementia, I sketch out a cognitive ontology based on Barad's agential realism. This facilitates a reassessment of the biggest conundrum in dementia research - the lack of neat correlation between (apparently material) neuropathology and (apparently immaterial) cognitive impairment - alongside the continued failure of efforts to develop effective interventions. It also gives social researchers working on cognitive decline in later life an opportunity to reappraise the nature of social science as a response to such phenomena. If cognition and cognitive ageing are reimagined as an emergent characteristic of intra-acting matter, then new materialist social science might be at least as conducive to salutogenic interventions as the neuropsychiatric technoscience that dominates the contemporary dementia research economy despite continual failures. I argue that a new materialist cognitive ontology could help us think beyond an ageing cognitivism and, by extension, beyond the Alzheimer conundrum.
    MeSH term(s) Humans ; Aging ; Cognition ; Brain ; Dementia
    Language English
    Publishing date 2023-06-27
    Publishing country England
    Document type Journal Article
    ZDB-ID 2006012-9
    ISSN 1879-193X ; 0890-4065
    ISSN (online) 1879-193X
    ISSN 0890-4065
    DOI 10.1016/j.jaging.2023.101155
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  6. Article ; Online: Regulating the disenfranchised: Reciprocity & resistance under the Mental Capacity Act.

    Fletcher, James Rupert

    Journal of aging studies

    2023  Volume 64, Page(s) 101099

    Abstract: This paper interrogates the legitimacy of formal ethical regulation regarding people with dementia under the Mental Capacity Act, 2005 in England and Wales. Under the Act, research among people diagnosed with dementia must be approved by Health Research ... ...

    Abstract This paper interrogates the legitimacy of formal ethical regulation regarding people with dementia under the Mental Capacity Act, 2005 in England and Wales. Under the Act, research among people diagnosed with dementia must be approved by Health Research Authority committees, irrespective of whether that research engages with health organisations or service users. As examples, I discuss two ethnographic dementia studies that do not engage with healthcare services, but which nonetheless require HRA approval. These instances raise questions regarding legitimacy and reciprocity in the governance of dementia. Through capacity legislation, the state exerts control over people with dementia, automatically delineating them as healthcare subjects because of their diagnoses. This diagnosis functions as a form of administrative medicalisation, rendering dementia a medical entity and those diagnosed with it the property of formal healthcare. However, many people with dementia in England and Wales do not receive related health or care services beyond diagnosis. This institutional imbalance of high governance and low support undermines the contractual citizenship of people with dementia, wherein state-citizen rights and responsibilities should be reciprocal. In response, I consider resistance to this system in ethnographic research. "Resistance" here is not necessarily deliberate, hostile, difficult or perceived, but rather encompasses micropolitical effects that are contrary to power or control, sometimes emerging from systems themselves rather than individual resistive actors. Resistance can be unintentional, through mundane failures to satisfy specific aspects of governance bureaucracies. It can also be deliberate, through refusals to comply with restrictions that seem cumbersome, inapplicable or unethical, potentially raising questions of malpractice and misconduct. I suggest that resistance is made more probable due to the expansion of governance bureaucracies. On the one hand, the potential for both unintentional and intentional transgression increases, while on the other hand, the capacity for those transgressions to be discovered and rectified decreases, because the maintenance of control over such a system requires vast resources. Behind this ethico-bureaucratic tumult, people with dementia themselves are largely invisible. People with dementia often have no interaction with committees that determine their research participation. This further renders ethical governance a particularly disenfranchising facet of the dementia research economy. The state stipulates that people with dementia must be treated differently because of their diagnoses, without consulting those people. In response, resistance to unethical governance could be intuitively deemed ethical per se, but I suggest that such a simplistic binary is somewhat misleading.
    MeSH term(s) Humans ; Anthropology, Cultural ; England ; Health Facilities ; Dementia
    Language English
    Publishing date 2023-01-02
    Publishing country England
    Document type Journal Article
    ZDB-ID 2006012-9
    ISSN 1879-193X ; 0890-4065
    ISSN (online) 1879-193X
    ISSN 0890-4065
    DOI 10.1016/j.jaging.2022.101099
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  7. Article ; Online: Black knowledges matter: How the suppression of non-white understandings of dementia harms us all and how we can combat it.

    Fletcher, James Rupert

    Sociology of health & illness

    2021  Volume 43, Issue 8, Page(s) 1818–1825

    MeSH term(s) Brain ; Dementia ; Humans ; Whites
    Language English
    Publishing date 2021-05-18
    Publishing country England
    Document type Journal Article
    ZDB-ID 795552-2
    ISSN 1467-9566 ; 0141-9889
    ISSN (online) 1467-9566
    ISSN 0141-9889
    DOI 10.1111/1467-9566.13280
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    In stock of ZB MED Cologne/Königswinter

    Zs.A 2727: Show issues Location:
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    Jg. 1995 - 2021: Lesesall (2.OG)
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  8. Article ; Online: Age-associations in British politics: Implications for the sociology of aging.

    Fletcher, James Rupert

    The British journal of sociology

    2021  Volume 72, Issue 3, Page(s) 609–626

    Abstract: Debates regarding the status of age in social analysis are foundational to the sociology of aging, with scholars continually questioning the role of age as a social force. The contemporary politicization of age in British politics sheds useful light on ... ...

    Abstract Debates regarding the status of age in social analysis are foundational to the sociology of aging, with scholars continually questioning the role of age as a social force. The contemporary politicization of age in British politics sheds useful light on this debate. During the past decade, age has emerged as a potent predictor of political preference in the United Kingdom, encompassing numerous intertwined political economic developments. At face value, the emergence of age as a key political variable substantiates the status of age in social analysis. However, I argue that it is articulations of age-stratified politics, as much as the associations themselves, that should be of principle concern for the sociology of aging, because such articulations are reformulating age, aging and intergenerational relations. The sociology of aging should, therefore, engage with the contemporary politicization of age as a new answer to foundational debates.
    MeSH term(s) Aging ; Humans ; Intergenerational Relations ; Politics ; Sociology ; United Kingdom
    Language English
    Publishing date 2021-02-19
    Publishing country England
    Document type Journal Article
    ZDB-ID 1491378-1
    ISSN 1468-4446 ; 0007-1315
    ISSN (online) 1468-4446
    ISSN 0007-1315
    DOI 10.1111/1468-4446.12820
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  9. Article: Situational expectations and surveillance in families affected by dementia: organising uncertainties of ageing and cognition.

    Fletcher, James Rupert

    Health sociology review : the journal of the Health Section of the Australian Sociological Association

    2021  Volume 31, Issue 1, Page(s) 64–80

    Abstract: Recent political processes have rendered people with dementia an increasingly surveilled population. Surveillance is a contentious issue within dementia research, spanning technological monitoring, biomarker research and epidemiological data gathering. ... ...

    Abstract Recent political processes have rendered people with dementia an increasingly surveilled population. Surveillance is a contentious issue within dementia research, spanning technological monitoring, biomarker research and epidemiological data gathering. This paper explores surveillance in the relationships of people affected by dementia, how older relatives both with and without diagnoses are surveilled in everyday interactions, and the importance of expectations in guiding surveillance. This paper presents data from 41 in-depth interviews with people affected by dementia living in the community in the United Kingdom. Agedness was a key contributor to expectations that a person may have dementia, based on previous experiences, media accounts and wider awareness. Expectations provoked surveillance in interactions, with participants looking for signs of dementia when interacting with older relatives. Older people also enacted self-surveillance, monitoring their own behaviour. Various actions could be attributed to dementia because interpretation is malleable, partly vindicating expectations while leaving some uncertainties. Expectant surveillance transformed people's experiences because they organised their own actions, and interpreted those of others, in line with pre-existing meanings. The ability to interpret behaviours to fit expectations can bring coherence to uncertainties of ageing, cognition and dementia, but risks ascribing dementia to many older people who straddle those uncertainties.
    MeSH term(s) Aged ; Aging ; Cognition ; Dementia/epidemiology ; Humans ; Motivation ; Technology
    Language English
    Publishing date 2021-02-16
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2146435-2
    ISSN 1839-3551 ; 1446-1242
    ISSN (online) 1839-3551
    ISSN 1446-1242
    DOI 10.1080/14461242.2021.1888653
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  10. Article ; Online: Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

    Fletcher, James R

    Sociology of health & illness

    2020  Volume 42, Issue 4, Page(s) 705–723

    Abstract: Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population ...

    Abstract Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia and that interventions should be developed to better educate them. Operationalisations of awareness almost always reference senility - the traditional notion that dementia is a natural outcome of ageing - a widely held belief among many populations. Senility is considered incorrect knowledge in the research literature, and those participants who identify with it are deemed to have poor awareness. Despite the researchers' claims that senility is false, the scientific evidence is inconclusive, and the concept is contested. As such, a large body of research repeatedly positions minority ethnic communities as inferior and in need of re-education based on researchers' questionable assumptions. This issue is bound up with a racialised deficit-model of science communication and wider critiques of psychiatric colonialism. In response, researchers of dementia and ethnicity should reflect on their own awareness and the ways in which they position others in relation to it.
    MeSH term(s) Aging ; Dementia ; Ethnic Groups ; Humans ; Minority Groups ; Research Personnel
    Language English
    Publishing date 2020-01-21
    Publishing country England
    Document type Journal Article
    ZDB-ID 795552-2
    ISSN 1467-9566 ; 0141-9889
    ISSN (online) 1467-9566
    ISSN 0141-9889
    DOI 10.1111/1467-9566.13054
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