Article ; Online: A moment just for me - parents' experiences of an intervention for person-centred information in paediatric oncology.
European journal of oncology nursing : the official journal of European Oncology Nursing Society
2021 Volume 51, Page(s) 101923
Abstract: Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies ... ...
| Abstract | Purpose: Information can help parents of children with cancer by reducing uncertainty and giving them a sense of control in a chaotic situation. Although providing information to parents is a core activity of paediatric oncology nursing, few studies focus on interventions for informing parents. Thus, the aim of this study is to evaluate parents' experiences after participating in a person-centred information intervention for parents of children with cancer. Method: This study is part of a process evaluation of a person-centred informational intervention in paediatric oncology for patients' parents. Qualitative semi-structured interviews with 13 parents who had taken part in the intervention were analysed using qualitative content analysis. Results: An opening for healing emerged as the overarching theme, consisting of three categories. Gaining a deeper understanding of the entire situation describes how parents benefitted from processing current topics and moving forward by learning. Caring reflections in a safe space describes how parents appreciated having a moment just for themselves and feeling better by venting their feelings. Meeting a competent and compassionate nurse describes how parents experienced trust and being listened to. Conclusion: Having individual information meetings integrated as a primary nursing responsibility, mediated by competent and compassionate nurses also responsible for the care of the child, could enhance person-centred care and individualise parental education. |
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| MeSH term(s) | Adolescent ; Adult ; Aged ; Child ; Child, Preschool ; Communication ; Female ; Humans ; Male ; Middle Aged ; Neoplasms/nursing ; Nursing Evaluation Research ; Oncology Nursing/methods ; Parents/psychology ; Patient Satisfaction ; Pediatric Nursing/methods ; Professional-Family Relations ; Qualitative Research | |||||
| Language | English | |||||
| Publishing date | 2021-02-12 | |||||
| Publishing country | Scotland | |||||
| Document type | Journal Article ; Randomized Controlled Trial | |||||
| ZDB-ID | 2017117-1 | |||||
| ISSN | 1532-2122 ; 1462-3889 | |||||
| ISSN (online) | 1532-2122 | |||||
| ISSN | 1462-3889 | |||||
| DOI | 10.1016/j.ejon.2021.101923 | |||||
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| Database | MEDical Literature Analysis and Retrieval System OnLINE |
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