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  1. Article ; Online: Editorial: The role of primary and community care in rehabilitation.

    Gemperli, Armin / Essig, Stefan

    Frontiers in rehabilitation sciences

    2023  Volume 4, Page(s) 1235049

    Language English
    Publishing date 2023-07-12
    Publishing country Switzerland
    Document type Editorial
    ISSN 2673-6861
    ISSN (online) 2673-6861
    DOI 10.3389/fresc.2023.1235049
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Effectiveness of hospital-to-home transitional care interventions and consultation for implementation in Sudan: a scoping review of systematic reviews.

    Mohamedsharif, Asma / Elfeaki, Mohammed / Bushra, Rayan / Gemperli, Armin

    Frontiers in health services

    2023  Volume 3, Page(s) 1288575

    Abstract: Background: Hospital discharge is often associated with a lack of continuity resulting in fragmented care, particularly in low-income countries. As there is limited information about interventions in these countries and no study evaluating the ... ...

    Abstract Background: Hospital discharge is often associated with a lack of continuity resulting in fragmented care, particularly in low-income countries. As there is limited information about interventions in these countries and no study evaluating the effectiveness of hospital discharge interventions, we conducted a scoping review to identify effective hospital-to-home transitional care interventions and explore their applicability in a low-income country (Sudan).
    Methods: Our scoping review of systematic reviews and meta-analyses classed interventions as effective, ineffective, undesirable, or uncertain, based on the quality of their evidence and their estimated effects on the following outcomes: readmission rates, mortality, costs, quality of life, and adverse outcomes) and certainty of evidence. Our authors from Sudan used the SUPPORT summary tool to determine if three effective interventions could be implemented in Sudan.
    Results: Out of 3,276 articles that were identified, and 72 articles were reviewed, 10 articles has been included in the review. Seven interventions were classified as effective, one as ineffective, and none with undesirable effects. Eight interventions were classified as having an uncertain effect. The effective interventions were composed of home visits, information and communication technology (ICT), case manager models, multidisciplinary teams, and self-management support.
    Conclusions: The finding of this study suggested that a combining two to four interventions can improve enhance hospital-to-home transitional care. Effective interventions are composed of home visits, ICT, case manager models, multidisciplinary teams, and self-management support. The implementation of these interventions in Sudan was found to be undermined by contextual factors such as inadequate human resources, telecommunication instability, and inequality in accessibility. These interventions could be tailored based on an in-depth understanding of the contextual factors in low-income countries that influence implementation.
    Systematic review registration: https://osf.io/9eqvr/, doi: 10.17605/OSF.IO/9EQVR.
    Language English
    Publishing date 2023-12-14
    Publishing country Switzerland
    Document type Journal Article ; Review
    ISSN 2813-0146
    ISSN (online) 2813-0146
    DOI 10.3389/frhs.2023.1288575
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Association Between the Availability of Mobility Assistive Products and Participation Outcomes in Individuals With Spinal Cord Injury in Switzerland.

    Fong, Angelene / Gemperli, Armin / de Vries, Wiebe

    Topics in spinal cord injury rehabilitation

    2023  Volume 29, Issue 4, Page(s) 96–107

    Abstract: Objectives: This study investigated the association between the reported availability of mobility assistive products and the perceived frequency, restriction, and satisfaction of participation in individuals with spinal cord injury in Switzerland.: ... ...

    Abstract Objectives: This study investigated the association between the reported availability of mobility assistive products and the perceived frequency, restriction, and satisfaction of participation in individuals with spinal cord injury in Switzerland.
    Methods: This study was based on a cross-sectional analysis based on questionnaire data collected from the Swiss SCI Cohort Study community survey in 2012 (
    Results: The availability of a sports wheelchair or a hand bike were both significant in reducing the restriction to participation. Having an adapted car increased the frequency of participation.
    Conclusion: The availability of a sports wheelchair or a hand bike was significantly associated with less restriction in participation. With an unmet need of up to 36%, the known health benefits of regular physical activity and thereby cost-saving potential for the health care system, external support in the acquiring or use of these sports-related mobility assistive products could be an easy target for intervention.
    MeSH term(s) Humans ; Spinal Cord Injuries ; Switzerland ; Cohort Studies ; Cross-Sectional Studies ; Upper Extremity ; Wheelchairs ; Surveys and Questionnaires
    Language English
    Publishing date 2023-12-01
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1319299-1
    ISSN 1945-5763 ; 1082-0744
    ISSN (online) 1945-5763
    ISSN 1082-0744
    DOI 10.46292/sci22-00030
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  4. Article ; Online: Do individuals from an SCI-specialized rehabilitation facility have fewer secondary health conditions than those from a non-SCI-specialized rehabilitation facility? Analysis of the InSCI database from a middle-income country.

    Pattanakuhar, Sintip / Kammuang-Lue, Pratchayapon / Komaratat, Napasakorn / Chotiyarnwong, Chayaporn / Kovindha, Apichana / Gemperli, Armin

    The journal of spinal cord medicine

    2024  , Page(s) 1–10

    Abstract: Objectives: To determine whether attending an SCI-specialized rehabilitation facility (SSRF) is independently associated with having fewer secondary health conditions (SHCs) in middle-income country contexts.: Study design: Cross-sectional ... ...

    Abstract Objectives: To determine whether attending an SCI-specialized rehabilitation facility (SSRF) is independently associated with having fewer secondary health conditions (SHCs) in middle-income country contexts.
    Study design: Cross-sectional observational study.
    Setting: Four rehabilitation facilities in Thailand (one SSRF and three non-SSRF).
    Methods: Data from a Thai arm of the International Spinal Cord Injury Community Survey (InSCI) were analyzed. SHCs occurring within the last three months were evaluated using the Spinal Cord Injury Secondary Condition Scale. A causal diagram was applied to create a multivariable regression model to determine the independent effect of attending in the SSRF on having SHC as a single condition and as a sum score.
    Results: Three hundred and thirteen individuals with chronic SCI were included in this study. Two hundred and nineteen participants (70%) were recruited from the SSRF. Being recruited from the SSRF was an independent negative correlating factor of the SHC sum score with an unstandardized coefficient of -1.12 (95% CI: -2.00-0.24). Being recruited from the SSRF was also an independent negative correlating factor of having bladder dysfunction, sexual dysfunction, and pressure ulcer SHC with an odds ratio of 0.32 (95% CI: 0.16-0.59), 0.43 (95% CI: 0.22-0.84), and 0.46 (95% CI: 0.24-0.89), respectively.
    Conclusion: Attending an SSRF was significantly associated with having fewer SHCs, specifically, bladder dysfunctions, sexual dysfunctions, and pressure ulcers. These results suggest the importance of having SSRF in middle-income countries for delivering effective care to people with SCI and standardized education to health care providers.
    Language English
    Publishing date 2024-01-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 1223949-5
    ISSN 2045-7723 ; 1079-0268
    ISSN (online) 2045-7723
    ISSN 1079-0268
    DOI 10.1080/10790268.2023.2289690
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Does stronger primary care improve access to health services for persons with spinal cord injury? Evidence from eleven European countries.

    Bychkovska, Olena / Tederko, Piotr / Strøm, Vegard / Juocevicius, Alvydas / Gemperli, Armin

    The journal of spinal cord medicine

    2023  , Page(s) 1–11

    Abstract: Objective: To determine the association between the strength of primary care and perceived access to follow-up care services among persons with chronic spinal cord injury (SCI).: Design: Data analysis of the International Spinal Cord Injury (InSCI) ... ...

    Abstract Objective: To determine the association between the strength of primary care and perceived access to follow-up care services among persons with chronic spinal cord injury (SCI).
    Design: Data analysis of the International Spinal Cord Injury (InSCI) cross-sectional, community-based questionnaire survey conducted in 2017-2019. The association between the strength of primary care (Kringos
    Setting: Community in eleven European countries: France, Germany, Greece, Italy, Lithuania, the Netherlands, Norway, Poland, Romania, Spain and Switzerland.
    Participants: 6658 adults with chronic SCI.
    Intervention: None.
    Outcome measures: Share of persons with SCI that reported unmet healthcare needs as a measure of access.
    Results: Twelve percent of the participants reported unmet healthcare needs: the highest in Poland (25%) and lowest in Switzerland and Spain (7%). The most prevalent access restriction was service unavailability (7%). Stronger primary care was associated with lower odds of reporting unmet healthcare needs, service unavailability, unaffordability and unacceptability. Females, persons of younger age and lower health status, had higher odds of reporting unmet needs.
    Conclusions: In all investigated countries, persons with chronic SCI face access barriers, especially with service availability. Stronger primary care for the general population was also associated with better health service access for persons with SCI, which argues for further primary care strengthening.
    Language English
    Publishing date 2023-03-27
    Publishing country England
    Document type Journal Article
    ZDB-ID 1223949-5
    ISSN 2045-7723 ; 1079-0268
    ISSN (online) 2045-7723
    ISSN 1079-0268
    DOI 10.1080/10790268.2023.2188390
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  6. Article ; Online: Improving collaboration between specialists and general practitioners in services for individuals with chronic spinal cord injury living in rural areas of Switzerland: Baseline results from the SCI-Co study.

    Tomaschek, Rebecca / Gemperli, Armin / Essig, Stefan

    The journal of spinal cord medicine

    2022  Volume 47, Issue 3, Page(s) 423–431

    Abstract: Context/objective: Strategies to combine primary and specialized care are crucial to meet the needs of individuals with spinal cord injury (SCI) located in rural areas. We explored the collaboration between general practitioners (GPs) and SCI ... ...

    Abstract Context/objective: Strategies to combine primary and specialized care are crucial to meet the needs of individuals with spinal cord injury (SCI) located in rural areas. We explored the collaboration between general practitioners (GPs) and SCI specialists who will participate in an intervention study to improve their collaboration.
    Design: A questionnaire survey from August to October 2020.
    Setting: Primary Care, Specialized SCI care.
    Participants: Eight GPs and 13 SCI specialists.
    Interventions: Baseline results from the SCI-Co study.
    Outcome measures: N/A.
    Results: Overall, satisfaction ratings for the collaboration between GPs and SCI specialists were high, and all physicians agreed that they work together well. Especially, SCI specialists were satisfied in collaborating with GPs. Despite Switzerland's fragmented primary and secondary care system, only a few physicians reported about issues with delays and waiting lists. While GPs wanted to improve the quality of their referral, most SCI specialists reported being content with it. GPs were also discontent about discharge organization by specialists.
    Conclusion: Satisfaction with collaboration was high, both in GPs and specialists. Areas for improvement include discharge and referral processes.
    MeSH term(s) Humans ; Spinal Cord Injuries/therapy ; Switzerland ; General Practitioners ; Male ; Surveys and Questionnaires ; Female ; Referral and Consultation/statistics & numerical data ; Specialization ; Rural Population ; Primary Health Care/statistics & numerical data ; Primary Health Care/organization & administration ; Cooperative Behavior ; Adult ; Middle Aged ; Attitude of Health Personnel
    Language English
    Publishing date 2022-11-28
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1223949-5
    ISSN 2045-7723 ; 1079-0268
    ISSN (online) 2045-7723
    ISSN 1079-0268
    DOI 10.1080/10790268.2022.2097996
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  7. Article: Why Do Community-Dwelling Persons with Spinal Cord Injury Visit General Practitioners: A Cross-Sectional Study of Reasons for Encounter in Swiss General Practice.

    Touhami, Dima / Essig, Stefan / Scheel-Sailer, Anke / Gemperli, Armin

    Journal of multidisciplinary healthcare

    2022  Volume 15, Page(s) 2041–2052

    Abstract: Purpose: In a country of free selection of providers, general practitioners (GPs) remain the most visited health-care professionals by the vast majority of persons with spinal cord injury (SCI) in Switzerland; yet, little is known about these contacts. ... ...

    Abstract Purpose: In a country of free selection of providers, general practitioners (GPs) remain the most visited health-care professionals by the vast majority of persons with spinal cord injury (SCI) in Switzerland; yet, little is known about these contacts. The study aims to explore reasons for encounters (RFEs) in general practice, and their relationships to first-contact of care (GP or specialist) and GP's competence in managing SCI-specific problems.
    Patients and methods: Cross-sectional study from baseline data of non-randomized controlled trial. Persons with SCI in the chronic phase and living in Swiss rural communities were invited. Participants were asked about RFEs (reasons and health problems) of their last visit to a GP. RFEs were coded according to the International Classification of Primary Care (ICPC-2), and analyzed according to first-contact and participants' ratings of GPs' competence in managing SCI-specific problems.
    Results: Out of 395, 226 (57%) persons participated, of which 89% have reported 2.1 (SD ±1.4) RFEs and 2.4 (±1.7) health problems per GP visit, on average. Participants visited GPs for medications (49%), urgent medical problems (33%) and follow-up (30%). Most RFEs were related to general/unspecified problems (65%). Persons whose first contact was a specialist were more likely to visit GPs for medications (Specialist = 60% vs GP = 42%). There were no associations between RFEs and the perceived GP's competence at P < 0.05.
    Conclusion: Irrespective of first contact of care, persons with SCI visit GPs for medication, urgent issues, and follow-up care, and more often for general problems than for secondary health conditions. Strengthening collaboration between GPs in rural communities and specialized centers is recommended; promoting such a connection potentially aids GPs in meeting their information needs for managing secondary health conditions and improving the quality of SCI care for this population.
    Language English
    Publishing date 2022-09-12
    Publishing country New Zealand
    Document type Journal Article
    ZDB-ID 2453343-9
    ISSN 1178-2390
    ISSN 1178-2390
    DOI 10.2147/JMDH.S382087
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  8. Article ; Online: Shared responsibility between general practitioners and highly specialized physicians in chronic spinal cord injury: Study protocol for a nationwide pragmatic nonrandomized interventional study.

    Tomaschek, Rebecca / Touhami, Dima / Essig, Stefan / Gemperli, Armin

    Contemporary clinical trials communications

    2021  Volume 24, Page(s) 100873

    Abstract: Introduction: To improve the continuity of care for persons with spinal cord injury (SCI) living in peripheral areas, collaboration between general practitioners (GPs) and specialists is needed. This pragmatic non-randomized interventional study ... ...

    Abstract Introduction: To improve the continuity of care for persons with spinal cord injury (SCI) living in peripheral areas, collaboration between general practitioners (GPs) and specialists is needed. This pragmatic non-randomized interventional study assesses feasibility and effectiveness of a new primary care model based on this collaboration.
    Methods: The intervention is medical education on SCI related topics offered by specialists to GPs practicing in rural areas. Outcomes are assessed and analyzed in physicians and patients. Group allocation of persons with SCI follows intention-to-treat principle with intervention group being those in close proximity to a participating GP.
    Results: It is expected that ten GPs and sixteen specialists will take part in the study's intervention. An average difference in "Doctor's opinion on collaboration questionnaire" score (mean 44; SD ± 12) from baseline after two years post-intervention in the group of participating GPs is hypothesized at P-value level <0.05; meanwhile, the control group remains at an average score of 56. Of persons with SCI (n = 395), 230 are expected to take part in the study at baseline. An average modified "Spinal Cord Injury-Secondary Conditions Scale" change in score from baseline to 24 months post intervention is expected to fall from 12.0 to 9.0 in the intervention group and to stay at 12.0 in the control group.
    Conclusion: The study aims to improve patients' outcomes and providers' experience with delivery of care for persons with SCI, as compared to current best practice.
    Trial registration: ClinicalTrials.gov, NCT04071938. Registered August 28, 2018, https://www.clinicaltrials.gov/ct2/show/NCT04071938.
    Language English
    Publishing date 2021-11-17
    Publishing country Netherlands
    Document type Journal Article
    ISSN 2451-8654
    ISSN (online) 2451-8654
    DOI 10.1016/j.conctc.2021.100873
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  9. Article ; Online: Does the socioeconomic status predict health service utilization in persons with enhanced health care needs? Results from a population-based survey in persons with spinal cord lesions from Switzerland.

    Fekete, Christine / Debnar, Caroline / Scheel-Sailer, Anke / Gemperli, Armin

    International journal for equity in health

    2022  Volume 21, Issue 1, Page(s) 94

    Abstract: Background: Evidence suggests that the socioeconomic status (SES) affects individuals' health service utilization. Spinal cord injury is a condition that often leads to physical impairments and enhanced health care needs. It therefore presents an ... ...

    Abstract Background: Evidence suggests that the socioeconomic status (SES) affects individuals' health service utilization. Spinal cord injury is a condition that often leads to physical impairments and enhanced health care needs. It therefore presents an informative and yet under-researched case in point to investigate social inequalities in health service utilization. This study aims to describe associations between SES and health service utilization in adults with spinal cord injury from Switzerland.
    Methods: We use cross-sectional data from 1,294 participants of the Swiss Spinal Cord Injury Cohort Study community survey 2017. SES was operationalized with education, household income, perceived financial hardship, subjective status, and granting of supplementary financial benefits. Health service utilization was assessed with information on visits to 13 different health care providers and four health care institutions (inpatient stays, outpatient clinics, emergency departments, specialized spinal cord centers) during the past 12 months. The dichotomized outcomes on service utilization (visited vs. not visited) were regressed on SES indicators, including adjustments for sociodemographics, lesion characteristics, and health status.
    Results: Persons with higher SES reported higher likelihood for specialist, dentist, and dental hygienist visits and reported utilizing a larger number of different care providers. Further, specific SES indicators were associated with certain care provider visits (i.e., higher education and subjective status: higher odds for pharmacist visits; higher income: higher odds for natural healer visits; higher subjective status: higher odds for chiropractor visits; supplementary benefit granting: higher odds for general practitioner and home care service visits). We found statistically non-significant trends towards lower likelihood for inpatient stays, outpatient clinic and emergency department visits and enhanced likelihood for specialized spinal cord-center visits in higher SES groups.
    Conclusions: This study generally supports the claim that basic health care provision is guaranteed for all patients with spinal cord injury in Switzerland, independently of their SES. However, social inequalities were still observed for the utilization of specific providers, such as oral health care providers. Given that oral health is key for health maintenance in persons with spinal cord injury, specific interventions to enhance regular dental check-ups in lower SES groups are highly recommended.
    MeSH term(s) Adult ; Cohort Studies ; Cross-Sectional Studies ; Delivery of Health Care ; Home Care Services ; Humans ; Social Class ; Spinal Cord Injuries ; Switzerland
    Language English
    Publishing date 2022-07-12
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2092056-8
    ISSN 1475-9276 ; 1475-9276
    ISSN (online) 1475-9276
    ISSN 1475-9276
    DOI 10.1186/s12939-022-01693-6
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  10. Article ; Online: Unmet health care needs and inequality: A cross-country comparison of the situation of people with spinal cord injury.

    Pacheco Barzallo, Diana / Oña, Ana / Gemperli, Armin

    Health services research

    2021  Volume 56 Suppl 3, Page(s) 1429–1440

    Abstract: Objective: To estimate and compare unmet health care needs of persons with spinal cord injury (SCI) across countries, the causes of these shortfalls, and the role of income.: Data sources: We analyzed cross-sectional data of 20 countries from the ... ...

    Abstract Objective: To estimate and compare unmet health care needs of persons with spinal cord injury (SCI) across countries, the causes of these shortfalls, and the role of income.
    Data sources: We analyzed cross-sectional data of 20 countries from the International Spinal Cord Injury (InSCI) survey, a compendium of comparable data on the living situation of persons with SCI. Data included information on high-, middle-, and low-income countries. The survey comprises information on 12,095 participants.
    Study design: We used logit regressions to estimate the probability of unmet health care needs of persons with SCI and its causes. We adjusted the results by the individuals' characteristics and countries' fixed effects. We disaggregated the results by income decile of individuals in each country.
    Data collection/extraction methods: The inclusion criteria for the InSCI survey were adults aged 18 years and older with SCI living in the community, who were able to respond to the survey and who provided informed consent.
    Principal findings: Unmet health care needs are significant for people with long-term conditions like SCI, where people in low-income groups tend to be more affected. Among the barriers to meeting health care needs, the foremost is health care cost (in 11 of the 20 countries), followed by transportation and service availability. Persons with SCI in Morocco reported the highest probability of unmet health care needs in the sample, 0.54 (CI: 047-0.59), followed well behind by South Africa, 0.27 (CI: 0.20-0.33), and Brazil, 0.26 (CI: 0.20-0.33). In contrast, persons with SCI in Spain, 0.06 (CI: 0.04-0.08), reported the lowest probability of unmet health care needs, closely followed by Norway, 0.07 (CI: 0.05-0.09), Thailand, 0.08 (CI: 0.05-0.11), France, 0.08 (CI: 0.06-0.11), and Switzerland, 0.09 (CI: 0.07-0.10).
    Conclusions: SCI is a long-term, irreversible health condition characterized by physical impairment and a series of chronic illness. This makes SCI a high-need, high-cost group that faces significant unmet health care needs, which are mainly explained by the costs of health services, transportation, and services availability. This situation is prevalent in low-, middle-, and high-income countries, where persons in lower income groups are disproportionately affected. To improve the situation, a combination of measures from the health and social systems are required.
    MeSH term(s) Adult ; Cross-Sectional Studies ; Europe ; Female ; Health Care Costs ; Health Facilities ; Health Services Accessibility/statistics & numerical data ; Healthcare Disparities ; Humans ; Male ; Middle Aged ; Poverty ; Spinal Cord Injuries/economics ; Surveys and Questionnaires ; Transportation
    Language English
    Publishing date 2021-08-12
    Publishing country United States
    Document type Comparative Study ; Journal Article
    ZDB-ID 410435-3
    ISSN 1475-6773 ; 0017-9124
    ISSN (online) 1475-6773
    ISSN 0017-9124
    DOI 10.1111/1475-6773.13738
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