Article ; Online: Explaining caregiver burden in a large sample of UK dementia caregivers: The role of contextual factors, behavioural problems, psychological resilience, and anticipatory grief.
2022 Volume 27, Issue 7, Page(s) 1274–1281
Abstract: Objectives: Dementia caregiver burden is a significant public health concern, affecting both the wellbeing of caregivers and their care-recipients. This study investigated a range of variables associated with caregiver burden in a large sample of UK ... ...
Abstract | Objectives: Dementia caregiver burden is a significant public health concern, affecting both the wellbeing of caregivers and their care-recipients. This study investigated a range of variables associated with caregiver burden in a large sample of UK dementia caregivers. Clinical characteristics and novel psychological constructs were used - including anticipatory grief and psychological resilience. Anticipatory grief refers to the process of experiencing loss prior to the death of a significant person. Method: Caregivers of persons with dementia ( Results: Findings illustrate that 71% of the sample experienced high levels of caregiver burden and around 95% met the criteria for clinically significant levels of burden. A regression model explained 49% of the variance in subjective caregiver burden; contextual factors (care-recipients living situation, frequency of caregiving), behavioural challenges in the care-recipient (memory-related problem behaviours), caregiver psychological resilience and caregiver anticipatory grief (heartfelt long & sadness, worry & felt isolation) were all significant variables. Caregiver anticipatory grief, followed by psychological resilience, had the strongest association with burden. Conclusion: Caregiver anticipatory grief and psychological resilience, have a significant interaction with the clinical presentation of the dementia sufferer in explaining subjective caregiver burden. More grief and resilience-focused interventions targeting both the practical and emotional challenges are imperative to reduce burden and thus to ensure caregiver wellbeing. |
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Language | English |
Publishing date | 2022-07-26 |
Publishing country | England |
Document type | Journal Article |
ZDB-ID | 1474804-6 |
ISSN | 1364-6915 ; 1360-7863 |
ISSN (online) | 1364-6915 |
ISSN | 1360-7863 |
DOI | 10.1080/13607863.2022.2102138 |
Database | MEDical Literature Analysis and Retrieval System OnLINE |
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