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  1. Article ; Online: Correction

    Alexandra Burton / Penny Rapaport / Marina Palomo / Kathryn Lord / Jessica Budgett / Julie Barber / Rachael Hunter / Laurie Butler / Victoria Vickerstaff / Kenneth Rockwood / Margaret Ogden / Debs Smith / Iain Lang / Gill Livingston / Briony Dow / Helen Kales / Jill Manthorpe / Kate Walters / Juanita Hoe /
    Vasiliki Orgeta / Quincy Samus / Claudia Cooper / the NIDUS study team

    Trials, Vol 25, Iss 1, Pp 1-

    Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial

    2024  Volume 1

    Keywords Medicine (General) ; R5-920
    Language English
    Publishing date 2024-01-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  2. Article ; Online: The University of Michigan Pocket Guide for Clinician-in-training Assessment of the Neuropsychiatric Symptoms of Dementia

    Katherin Rockefeller / Mary Blazek / Janet Kavanagh / Helen Kales

    MedEdPORTAL, Vol

    2013  Volume 9

    Abstract: Abstract Introduction In addition to cognitive deficits, patients with dementia often experience behavioral and psychological symptoms, also known as neuropsychiatric symptoms (NPS), which is a term that covers a heterogeneous group of symptoms (i.e., ... ...

    Abstract Abstract Introduction In addition to cognitive deficits, patients with dementia often experience behavioral and psychological symptoms, also known as neuropsychiatric symptoms (NPS), which is a term that covers a heterogeneous group of symptoms (i.e., mood disorders, apathy, anxiety, psychotic disorders, psychomotor agitation, aggression, sleep disturbances, eating problems, and inappropriate behavior). The management of NPS tends to be one of the most challenging aspects of dementia care, increasing both caregiver burden and the likelihood of institutionalization. A crucial step in the development of a targeted nonpharmacological intervention is conducting a comprehensive assessment of the patient's distressing NPS. The University of Michigan Pocket Guide for Assessment of the Neuropsychiatric Symptoms of Dementia aims to highlight the complex and often overlooked assessment of NPS and responds to the growing demand for clinicians educated in geriatric mental health treatment. Methods The pocket guide provides an easy-to-reference outline of NPS assessment. This assessment is divided into four parts: (1) screening for behavioral and psychological symptoms, (2) defining the character, context, and consequences of one distressing symptom — the target symptom, (3) investigating the possible causes of the target symptom, and (4) accurately documenting NPS to assist with longitudinal assessment. It can be integrated into curricula on dementia care, particularly through its application to case examples, then conveniently referenced before, during, and after patient encounters. The pocket guide is designed for clinicians-in-training, including medical and psychiatric residents, fellows, and nurses. Results The pocket guide was first introduced to a group of 22 resident, fellow, and nursing trainees as well as medical and nursing professionals as part of the University of Michigan Brainstorming Workshop for Non-pharmacological Interventions in Behavioral Disturbances in Dementia. Before receiving a copy of the pocket ...
    Keywords Dementia ; Educational Measurement ; Education ; Behavioral Disturbances ; Assessment Tools ; Geriatric Medicine ; Medicine (General) ; R5-920 ; L
    Subject code 150
    Language English
    Publishing date 2013-08-01T00:00:00Z
    Publisher Association of American Medical Colleges
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  3. Article ; Online: Feasibility and acceptability of NIDUS-Professional, a training and support intervention for homecare workers caring for clients living with dementia

    Iain Lang / Victoria Vickerstaff / Kenneth Rockwood / Jill Manthorpe / Daniel Kelleher / Kathryn Lord / Penny Rapaport / Claudia Cooper / Kate Walters / Julie A Barber / Sara Banks / Larisa Duffy / Sedigheh Zabihi / Ayesha Dar / Freya Koutsoubelis / Clare Mason / Sandra Duggan / Helen Kales

    BMJ Open, Vol 12, Iss

    a cluster-randomised feasibility trial protocol

    2022  Volume 12

    Abstract: Introduction Most people living with dementia want to remain living in their own homes, and are supported to do so by family carers and homecare workers. There are concerns that homecare is often unable to meet the needs of this client group, with ... ...

    Abstract Introduction Most people living with dementia want to remain living in their own homes, and are supported to do so by family carers and homecare workers. There are concerns that homecare is often unable to meet the needs of this client group, with limited evidence regarding effective interventions to improve it for people living with dementia. We have developed a training and support programme for homecare workers (NIDUS-Professional) to be delivered alongside support sessions for people living with dementia and their family carers (NIDUS-Family). We aim to assess (1) its acceptability among homecare workers and employing agencies, and (2) the feasibility of homecare workers, people living with dementia and their family carers completing the outcomes of intervention in a future randomised controlled trial.Methods and analysis This is a cluster-randomised (2:1) single-blind, multisite feasibility trial. We aim to recruit 60–90 homecare workers, 30–60 clients living with dementia and their family carers through 6–9 English homecare agencies. In the intervention arm, homecare staff will be offered six group sessions on video call over three months, followed by monthly group sessions over the subsequent three-month period. Outcome measures will be collected at baseline and at six months.Ethics and dissemination The study received ethical approval on 7 January 2020 from the Camden & King’s Cross Research Ethics Committee. Study reference: 19/LO/1667. Findings will be disseminated through a peer-reviewed journal, conference presentation and blog to research and clinical audiences; we will attend forums to present findings to participating homecare agencies and their clients.Trial registration number ISRCTN15757555.
    Keywords Medicine ; R
    Subject code 360
    Language English
    Publishing date 2022-12-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  4. Article ; Online: Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes

    Alexandra Burton / Penny Rapaport / Marina Palomo / Kathryn Lord / Jessica Budgett / Julie Barber / Rachael Hunter / Laurie Butler / Victoria Vickerstaff / Kenneth Rockwood / Margaret Ogden / Debs Smith / Iain Lang / Gill Livingston / Briony Dow / Helen Kales / Jill Manthorpe / Kate Walters / Juanita Hoe /
    Vasiliki Orgeta / Quincy Samus / Claudia Cooper / on behalf of the NIDUS study team

    Trials, Vol 22, Iss 1, Pp 1-

    a randomised controlled trial

    2021  Volume 14

    Abstract: Abstract Background Most people living with dementia want to remain living in their own homes and are supported to do so by family carers. No interventions have consistently demonstrated improvements to people with dementia’s life quality, functioning, ... ...

    Abstract Abstract Background Most people living with dementia want to remain living in their own homes and are supported to do so by family carers. No interventions have consistently demonstrated improvements to people with dementia’s life quality, functioning, or other indices of living as well as possible with dementia. We have co-produced, with health and social care professionals and family carers of people with dementia, a new intervention (NIDUS-family). To our knowledge, NIDUS-family is the first manualised intervention that can be tailored to personal goals of people living with dementia and their families and is delivered by facilitators without clinical training. The intervention utilizes components of behavioural management, carer support, psychoeducation, communication and coping skills training, enablement, and environmental adaptations, with modules selected to address dyads’ selected goals. We will evaluate the effect of NIDUS-family and usual care on goal attainment, as measured by Goal Attainment Scaling (GAS) rated by family carers, compared to usual care alone at 12-month follow-up. We will also determine whether NIDUS-family and usual care is more cost-effective than usual care alone over 12 months. Methods A randomised, two-arm, single-masked, multi-site clinical trial involving 297 people living with dementia-family carer dyads. Dyads will be randomised 2:1 to receive the NIDUS-family intervention with usual care (n = 199) or usual care alone (n = 98). The intervention group will be offered, over 1 year, via 6–8 video call or telephone sessions (or face to face if COVID-19 restrictions allow in the recruitment period) in the initial 6 months, followed by telephone follow-ups every 1–2 months to support implementation, with a trained facilitator. Discussion Increasing the time lived at home by people living with dementia is likely to benefit lives now and in the future. Our intervention, which we adapted to include remote delivery prior to trial commencement due to the COVID-19 pandemic, aims to ...
    Keywords Dementia ; Family carer ; Psychosocial intervention ; Independence ; Medicine (General) ; R5-920
    Subject code 360
    Language English
    Publishing date 2021-12-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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