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  1. Book ; Online ; E-Book: Textbook of palliative medicine and supportive care

    Bruera, Eduardo / Higginson, Irene J. / von Gunten, Charles F. / Morita, Tatsuya

    2021  

    Author's details edited by Eduardo Bruera, Irene J. Higginson, Charles F. von Gunten, Tatsuya Morita
    Keywords Electronic books
    Language English
    Size 1 Online-Ressource (xi, 962 Seiten), Illustrationen
    Edition Third edition
    Publisher CRC Press
    Publishing place Boca Raton
    Publishing country United States
    Document type Book ; Online ; E-Book
    Note Description based on publisher supplied metadata and other sources
    Remark Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    HBZ-ID HT020988523
    ISBN 978-1-00-028089-0 ; 9780367642037 ; 1-00-028089-6 ; 0367642034
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  2. Article: Illness perceptions, cognitive and behavioural responses to chronic breathlessness in individuals living with advanced respiratory disease: an observational study.

    Reilly, Charles C / Higginson, Irene J / Chalder, Trudie

    ERJ open research

    2024  Volume 10, Issue 2

    Abstract: Background: Understanding the complexity and multidimensional nature of chronic breathlessness is key to its successful management. The aim of this study was to explore illness perceptions, cognitive and behavioural responses to chronic breathlessness ... ...

    Abstract Background: Understanding the complexity and multidimensional nature of chronic breathlessness is key to its successful management. The aim of this study was to explore illness perceptions, cognitive and behavioural responses to chronic breathlessness in individuals living with advanced respiratory disease.
    Methods: This was a cross-sectional secondary analysis of data from a feasibility randomised control trial (SELF-BREATHE) for individuals living with chronic breathlessness due to advanced disease. All participants completed the following questionnaires: numerical rating scale (NRS) breathlessness severity, NRS distress due to breathlessness, NRS self-efficacy for managing breathlessness, Dyspnea-12 (D-12), Chronic Respiratory Disease Questionnaire (CRQ), Brief Illness Perception Questionnaire (Brief IPQ) and the Cognitive and Behavioural Responses Questionnaire, short version (CBRQ-S). The associations between the Brief IPQ and CBRQ-S with NRS breathlessness severity, distress and self-efficacy, D-12 and CRQ were examined using Spearman's rho correlation coefficient r
    Results: The illness perception items consequences, identity, concern and emotional response were associated with increased breathlessness severity, increased distress, reduced breathlessness self-management ability and lower health-related quality of life. Symptom focusing and embarrassment avoidance were identified as important cognitive responses to chronic breathlessness.
    Conclusion: Interventions that directly target illness perceptions, cognitive and behavioural responses to chronic breathlessness may improve symptom burden, self-efficacy and health-related quality of life.
    Language English
    Publishing date 2024-04-29
    Publishing country England
    Document type Journal Article
    ZDB-ID 2827830-6
    ISSN 2312-0541
    ISSN 2312-0541
    DOI 10.1183/23120541.00874-2023
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Book: Clinical audit in palliative care

    Higginson, Irene

    1995  

    Author's details ed. by Irene Higginson
    Keywords Hospice Care / organization & administration ; Medical Audit / methods ; Palliative Care
    Language English
    Size VIII, 224 S. : Ill., graph. Darst.
    Edition reprint. 1995
    Publisher Radcliffe Med. Press
    Publishing place Oxford u.a.
    Publishing country Great Britain
    Document type Book
    HBZ-ID HT007825365
    ISBN 1-870905-64-4 ; 978-1-870905-64-0
    Database Catalogue ZB MED Medicine, Health

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  4. Book: Quality, standards, organisational and clinical audit for hospice and palliative care services

    Higginson, Irene

    (Occasional paper / National Council for Hospice and Specialist Palliative Care Services ; 2)

    1992  

    Author's details [Irene Higginson]
    Series title Occasional paper / National Council for Hospice and Specialist Palliative Care Services ; 2
    Collection
    Keywords Hospices / standards ; Hospice Care / standards ; Quality of Health Care ; Palliative Care / standards
    Language English
    Size 20 S.
    Publisher National Council for Hospice and Specialist Palliative Care Services
    Publishing place London
    Publishing country Great Britain
    Document type Book
    HBZ-ID HT007422284
    Database Catalogue ZB MED Medicine, Health

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  5. Article ; Online: General practice service use at the end-of-life before and during the COVID-19 pandemic: a population-based cohort study using primary care electronic health records.

    Chukwusa, Emeka / Barclay, Stephen / Gulliford, Martin / Harding, Richard / Higginson, Irene / Verne, Julia

    BJGP open

    2024  Volume 8, Issue 1

    Abstract: Background: Globally, the COVID-19 pandemic has caused unprecedented strain in healthcare systems, but little is known about how it affected patients requiring palliative and end-of-life care from GPs.: Aim: To evaluate the impact of the pandemic on ... ...

    Abstract Background: Globally, the COVID-19 pandemic has caused unprecedented strain in healthcare systems, but little is known about how it affected patients requiring palliative and end-of-life care from GPs.
    Aim: To evaluate the impact of the pandemic on primary care service use in the last 3 months of life, including consultations and prescribing, and to identify associated factors.
    Design and setting: A retrospective cohort study in UK, using data from the Clinical Practice Research Datalink.
    Method: The study cohort included those who died between 2019 and 2020. Poisson regression models using generalised estimation equations were used to examine the association between primary care use and patient characteristics. Adjusted rate ratios (aRRs) and 95% confidence intervals (95% CIs) were estimated.
    Results: A total of 44 534 patients died during the study period. The pandemic period was associated with an 8.9% increase in the rate of consultations from 966.4 to 1052.9 per 1000 person-months, and 14.3% longer telephone consultation duration (from 10.1 to 11.5 minutes), with a switch from face-to-face to telephone or video consultations. The prescription of end-of-life care medications increased by 6.3%, from 1313.7 to 1396.3 per 1000 person-months. The adjusted rate ratios for consultations (aRR = 1.08, 95% CI = 1.06 to 1.10,
    Conclusion: The pandemic had a major impact on GP service use, leading to longer consultations, shifts from face-to-face to telephone or video consultations, and increased prescriptions. GP workload-related issues must be addressed urgently to ease the pressure on GPs.
    Language English
    Publishing date 2024-04-25
    Publishing country England
    Document type Journal Article
    ISSN 2398-3795
    ISSN (online) 2398-3795
    DOI 10.3399/BJGPO.2023.0108
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Editorial.

    Higginson, Irene J

    Palliative medicine

    2017  Volume 31, Issue 8, Page(s) 681–683

    MeSH term(s) Adult ; Aged ; Aged, 80 and over ; Biomedical Research/organization & administration ; Female ; Humans ; Male ; Middle Aged ; Palliative Care/organization & administration ; Research Design
    Language English
    Publishing date 2017-08-11
    Publishing country England
    Document type Editorial ; Introductory Journal Article
    ZDB-ID 639247-7
    ISSN 1477-030X ; 0269-2163
    ISSN (online) 1477-030X
    ISSN 0269-2163
    DOI 10.1177/0269216317726199
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Integrating palliative care into the ICU: a lasting and developing legacy.

    Curtis, J Randall / Higginson, Irene J / White, Douglas B

    Intensive care medicine

    2022  Volume 48, Issue 7, Page(s) 939–942

    MeSH term(s) Humans ; Intensive Care Units ; Palliative Care ; Terminal Care
    Language English
    Publishing date 2022-05-16
    Publishing country United States
    Document type Editorial ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 80387-x
    ISSN 1432-1238 ; 0340-0964 ; 0342-4642 ; 0935-1701
    ISSN (online) 1432-1238
    ISSN 0340-0964 ; 0342-4642 ; 0935-1701
    DOI 10.1007/s00134-022-06729-7
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article ; Online: Research challenges in palliative and end of life care.

    Higginson, Irene J

    BMJ supportive & palliative care

    2016  Volume 6, Issue 1, Page(s) 2–4

    MeSH term(s) Health Services Needs and Demand/economics ; Health Services Needs and Demand/standards ; Humans ; Palliative Care/economics ; Palliative Care/standards ; Terminal Care/economics ; Terminal Care/standards
    Language English
    Publishing date 2016-03
    Publishing country England
    Document type Editorial
    ISSN 2045-4368
    ISSN (online) 2045-4368
    DOI 10.1136/bmjspcare-2015-001091
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  9. Article ; Online: Optimising breathlessness triggered services for older people with advanced diseases: a multicentre economic study (OPTBreathe).

    Yi, Deokhee / Reilly, Charles C / Wei, Gao / Higginson, Irene J

    Thorax

    2022  Volume 78, Issue 5, Page(s) 489–495

    Abstract: Background: In advanced disease, breathlessness becomes severe, increasing health services use. Breathlessness triggered services demonstrate effectiveness in trials and meta-analyses but lack health economic assessment.: Methods: Our economic study ... ...

    Abstract Background: In advanced disease, breathlessness becomes severe, increasing health services use. Breathlessness triggered services demonstrate effectiveness in trials and meta-analyses but lack health economic assessment.
    Methods: Our economic study included a discrete choice experiment (DCE), followed by a cost-effectiveness analysis modelling. The DCE comprised face-to-face interviews with older patients with chronic breathlessness and their carers across nine UK centres. Conditional logistic regression analysis of DCE data determined the preferences (or not, indicated by negative β coefficients) for service attributes. Economic modelling estimated the costs and quality-adjusted life years (QALYs) over 5 years.
    Findings: The DCE recruited 190 patients and 68 carers. Offering breathlessness services in person from general practitioner (GP) surgeries was not preferred (β=-0.30, 95% CI -0.40 to -0.21); hospital outpatient clinics (0.16, 0.06 to 0.25) or via home visits (0.15, 0.06 to 0.24) were preferred. Inperson services with comprehensive treatment review (0.15, 0.07 to 0.21) and holistic support (0.19, 0.07 to 0.31) were preferred to those without. Cost-effectiveness analysis found the most and the least preferred models of breathlessness services were cost-effective compared with usual care. The most preferred service had £5719 lower costs (95% CI -6043 to 5395), with 0.004 (95% CI -0.003 to 0.011) QALY benefits per patient. Uptake was higher when attributes were tailored to individual preferences (86% vs 40%).
    Conclusion: Breathlessness services are cost-effective compared with usual care for health and social care, giving cost savings and better quality of life. Uptake of breathlessness services is higher when service attributes are individually tailored.
    MeSH term(s) Humans ; Aged ; Quality of Life ; Dyspnea/therapy ; Cost-Benefit Analysis ; Quality-Adjusted Life Years
    Language English
    Publishing date 2022-08-15
    Publishing country England
    Document type Multicenter Study ; Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 204353-1
    ISSN 1468-3296 ; 0040-6376
    ISSN (online) 1468-3296
    ISSN 0040-6376
    DOI 10.1136/thoraxjnl-2021-218251
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article: A randomised, controlled, feasibility trial of an online, self-guided breathlessness supportive intervention (SELF-BREATHE) for individuals with chronic breathlessness due to advanced disease.

    Reilly, Charles C / Maddocks, Matthew / Chalder, Trudie / Bristowe, Katherine / Higginson, Irene J

    ERJ open research

    2023  Volume 9, Issue 2

    Abstract: Introduction: SELF-BREATHE is a complex, transdiagnostic, supportive, digital breathlessness intervention co-developed with patients. SELF-BREATHE seeks to build capacity and resilience within health services by improving the lives of people with ... ...

    Abstract Introduction: SELF-BREATHE is a complex, transdiagnostic, supportive, digital breathlessness intervention co-developed with patients. SELF-BREATHE seeks to build capacity and resilience within health services by improving the lives of people with chronic breathlessness using nonpharmacological, self-management approaches. This study aimed to determine whether SELF-BREATHE is feasible to deliver and acceptable to patients living with chronic breathlessness.
    Methods: A parallel, two-arm, single-blind, single-centre, randomised controlled, mixed-methods feasibility trial with participants allocated to 1) intervention group (SELF-BREATHE) or 2) control group (usual National Health Service (NHS) care). The setting was a large multisite NHS foundation trust in south-east London, UK. The participants were patients living with chronic breathlessness due to advanced malignant or nonmalignant disease(s). Participants were randomly allocated (1:1) to an online, self-guided, breathlessness supportive intervention (SELF-BREATHE) and usual care or usual care alone, over 6 weeks. The
    Results: Between January 2021 and January 2022, 52 (47%) out of 110 eligible patients consented and were randomised. Of those randomised to SELF-BREATHE, 19 (73%) out of 26 logged on and used SELF-BREATHE for a mean±sd (range) 9±8 (1-33) times over 6 weeks. 36 (70%) of the 52 randomised participants completed and returned the end-of-study postal questionnaires. SELF-BREATHE users reported it to be acceptable. Post-intervention qualitative interviews demonstrated that SELF-BREATHE was acceptable and valued by users, improving breathlessness during daily life and at points of breathlessness crisis.
    Conclusion: These data support the feasibility of moving to a fully powered, randomised controlled efficacy trial with minor modifications to minimise missing data (
    Language English
    Publishing date 2023-04-11
    Publishing country England
    Document type Journal Article
    ZDB-ID 2827830-6
    ISSN 2312-0541
    ISSN 2312-0541
    DOI 10.1183/23120541.00508-2022
    Database MEDical Literature Analysis and Retrieval System OnLINE

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