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Article ; Online: A Concept Analysis of Dependence Using Rodgers' Evolutionary Method.

Lingerfelt, Carrie N / Hutson, Sadie P

2020 Volume 42, Issue 5, Page(s) 451–462

Abstract: The concept of dependence covers a broad range of experiences. Many health-related professions, including nursing, use the concept in the context of substance use and addiction; however, the use of the concept is often confusing and lacks distinct ... ...

Abstract	The concept of dependence covers a broad range of experiences. Many health-related professions, including nursing, use the concept in the context of substance use and addiction; however, the use of the concept is often confusing and lacks distinct boundaries. Researchers and theorists in nursing require conceptual clarification and definition because it helps ensure effective theory development and operationalization of the concept as a research variable. A concept analysis using Rodgers' Evolutionary Method is presented, resulting in a revised definition of dependence, as it relates to substance use disorders and addiction. This analysis and resultant definition are timely to the nation's opioid use disorder epidemic. Surrogate terms, related concepts, attributes, assumptions, consequences, and a model case of dependence support the assertion for a change in terminology and culminate with clarification of a new definition for use in nursing.
Language	English
Publishing date	2020-10-14
Publishing country	England
Document type	Journal Article
ZDB-ID	603180-8
ISSN	1096-4673 ; 0161-2840
ISSN (online)	1096-4673
ISSN	0161-2840
DOI	10.1080/01612840.2020.1820118
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Article ; Online: A Nursing Perspective on Infant Bed-Sharing Using Multidisciplinary Theory Integration.

Bunch, Marissa G / Hutson, Sadie P

ANS. Advances in nursing science

2020 Volume 43, Issue 4, Page(s) 338–348

Abstract: The American Academy of Pediatrics recommends against bed-sharing between infants and caregivers due to an association with suffocation. Caregivers continue to share a bed with their infant despite these recommendations for a multitude of reasons. A ... ...

Abstract	The American Academy of Pediatrics recommends against bed-sharing between infants and caregivers due to an association with suffocation. Caregivers continue to share a bed with their infant despite these recommendations for a multitude of reasons. A close examination of the bed-sharing literature reveals that the debate is fundamentally about theoretical differences. The major theories used to frame this problem include the triple risk model of bed-sharing and evolutionary theories. Nurses are masters of multidisciplinary collaboration and are well positioned to unify the triple risk and evolutionary views of infant bed-sharing to guide future innovations in health care practice and research.
MeSH term(s)	Adult ; Attitude of Health Personnel ; Beds ; Female ; Humans ; Infant ; Infant Care/psychology ; Infant Care/standards ; Infant, Newborn ; Male ; Mother-Child Relations/psychology ; Mothers/psychology ; Nursing Staff/psychology ; Practice Guidelines as Topic ; Risk-Taking ; Sleep ; Socioeconomic Factors ; Sudden Infant Death/prevention & control ; United States
Language	English
Publishing date	2020-09-19
Publishing country	United States
Document type	Journal Article
ZDB-ID	424430-8
ISSN	1550-5014 ; 0161-9268
ISSN (online)	1550-5014
ISSN	0161-9268
DOI	10.1097/ANS.0000000000000326
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Article ; Online: Climbing Back Up the Mountain: Reflections From an Exploration of End-of-Life Needs of Persons Living With HIV/AIDS in Appalachian Tennessee.

Hutson, Sadie P

The American journal of hospice & palliative care

2016 Volume 33, Issue 10, Page(s) 972–976

Abstract: Little is known about the health access and end-of-life (EOL) concerns of persons living with HIV/AIDS (PLWHA) in Appalachia, where religious and cultural values are largely traditional. A qualitative, descriptive study with 9 participants was undertaken ...

Abstract	Little is known about the health access and end-of-life (EOL) concerns of persons living with HIV/AIDS (PLWHA) in Appalachia, where religious and cultural values are largely traditional. A qualitative, descriptive study with 9 participants was undertaken to assess EOL care needs among those from South Central Appalachian PLWHA. The focus of the study was to examine subjective data regarding EOL needs assessment related to advanced care planning. Five men and 4 women self-acknowledged a diagnosis of HIV/AIDS and completed a 2-hour face-to-face interview with the nurse researcher. Data were analyzed using qualitative descriptive content analysis methods, including data coding for emergent themes and metaphors. A common metaphor tied content to both struggle and triumph as well as the beauty and ruggedness of the Appalachian region: "Climbing Back up the Mountain." Rich descriptions of the significance of the metaphor match with stigma as the greatest hurdle to overcome in planning and interacting with others, including health care providers and significant others, about EOL care needs and advanced planning preferences. Further, the metaphor was derived directly from quotes offered by participants. Sources of stigma were often intersecting: the disease itself, associations with "promiscuity," sexual minority status, illicit drug use, and so on. Strong spiritual images were contrasted with a common avoidance and disdain of organized religion. Findings were used in refining plans for a larger study of EOL care needs and concerns on the population of PLWHA in 2 Southern Appalachian states. Comparison with other research and insights for providers is included.
MeSH term(s)	Acquired Immunodeficiency Syndrome/psychology ; Adult ; Advance Care Planning ; Appalachian Region ; Cultural Competency ; Female ; HIV Infections/ethnology ; HIV Infections/psychology ; Humans ; Male ; Middle Aged ; Needs Assessment ; Pilot Projects ; Sexual and Gender Minorities/psychology ; Social Stigma ; Socioeconomic Factors ; Substance-Related Disorders/psychology ; Tennessee ; Terminal Care/psychology
Language	English
Publishing date	2016-12
Publishing country	United States
Document type	Journal Article
ZDB-ID	1074344-3
ISSN	1938-2715 ; 1049-9091
ISSN (online)	1938-2715
ISSN	1049-9091
DOI	10.1177/1049909115600857
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Article ; Online: A Focus Group Study of Provider and Patient Perceptions of Communicating Advanced Care Planning Wishes Using Digital Storytelling.

Hutson, Sadie P / Hankins, Lauren R

Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association

2019 Volume 21, Issue 2, Page(s) 131–138

Abstract: Advanced care planning (ACP) and end-of-life discussions are especially difficult among persons living with human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS) as a result of patients' lack of trust in family and providers, HIV- ... ...

Abstract	Advanced care planning (ACP) and end-of-life discussions are especially difficult among persons living with human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS) as a result of patients' lack of trust in family and providers, HIV-related stigma, misunderstood spirituality concerns, social isolation, and other factors. Previous research has demonstrated that relatively few persons living with HIV/AIDS engage in ACP, yet developing culturally sensitive methods of ACP is imperative. One such method is digital storytelling, a video narrative that can be used to share ideas or aspects of a life story.The aim of this study was to examine perspectives from providers and persons living with HIV/AIDS about the acceptability, benefits, and technological challenges of and barriers to using digital storytelling for ACP. A qualitative descriptive design was employed using focus groups of 21 participants in South Central Appalachia. Transcribed data were analyzed using qualitative content analysis. Findings revealed patient and provider ideas about ACP, factors related to digital story acceptability, stigma against persons living with HIV/AIDS, and concern for the legality of ACPs expressed in digital story format. Future research should focus on the process of creating digital stories as an intervention to improve ACP in this unique aggregate.
MeSH term(s)	Adult ; Advance Care Planning ; Aged ; Communication ; Female ; Focus Groups ; HIV Infections/psychology ; Hospice and Palliative Care Nursing ; Humans ; Internet ; Male ; Middle Aged ; Narration ; Patient Satisfaction ; Social Stigma ; Tennessee
Language	English
Publishing date	2019-02-13
Publishing country	United States
Document type	Journal Article
ZDB-ID	2070862-2
ISSN	1539-0705 ; 1522-2179
ISSN (online)	1539-0705
ISSN	1522-2179
DOI	10.1097/NJH.0000000000000503
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Article ; Online: Revisiting the Fetal Assault Law in Tennessee: Implications and the Way Forward.

Darlington, Caroline K / Compton, Peggy A / Hutson, Sadie P

Policy, politics & nursing practice

2021 Volume 22, Issue 2, Page(s) 93–104

Abstract: The rising prevalence of opioid use disorder (OUD) among those living in the United States has demanded a collaborative response from health care and policy spheres. Addressing OUD among pregnant women is especially difficult, given the controversies ... ...

Abstract	The rising prevalence of opioid use disorder (OUD) among those living in the United States has demanded a collaborative response from health care and policy spheres. Addressing OUD among pregnant women is especially difficult, given the controversies surrounding the medical and ethical balance between meeting maternal versus fetal/newborn needs. Most medical organizations discourage the criminalization of drug use in pregnancy due to the adverse public health outcomes of such an approach. Despite this recommendation, many states continue to use punitive law to address drug use in pregnancy. In 2014, the Fetal Assault Law in Tennessee (TN) became the first law in the United States to directly allow women to be prosecuted for drug use in pregnancy. Since its expiration in 2016, this law has been re-introduced several times to the TN legislature in support of permanent implementation. This article outlines the impact of the initial Fetal Assault Law on maternal/newborn health in TN and provides alternative immediate, short-term, and long-term health policy strategies through which health care providers and legislators can better advocate for the well-being of both mothers with OUD and their infants.
MeSH term(s)	Female ; Health Policy ; Humans ; Infant, Newborn ; Neonatal Abstinence Syndrome ; Opioid-Related Disorders/epidemiology ; Pregnancy ; Pregnancy Complications ; Tennessee ; United States
Language	English
Publishing date	2021-02-10
Publishing country	United States
Document type	Journal Article
ZDB-ID	2070898-1
ISSN	1552-7468 ; 1527-1544
ISSN (online)	1552-7468
ISSN	1527-1544
DOI	10.1177/1527154421989994
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Article ; Online: Geographic distribution of hospice, homecare, and nursing home facilities and access to end-of-life care among persons living with HIV/AIDS in Appalachia.

Hutson, Sadie P / Golden, Ashley / Odoi, Agricola

PloS one

2020 Volume 15, Issue 12, Page(s) e0243814

Abstract: Background: Access to healthcare services, from diagnosis through end of life (EOL), is important among persons living with Human Immunodeficiency Syndrome (HIV) and Acquired Immunodeficiency Syndrome (AIDS) (PLWHA). However, little is known about the ... ...

Abstract	Background: Access to healthcare services, from diagnosis through end of life (EOL), is important among persons living with Human Immunodeficiency Syndrome (HIV) and Acquired Immunodeficiency Syndrome (AIDS) (PLWHA). However, little is known about the availability of hospice services in Appalachian areas. Therefore, the objective of this study is to describe the geographic distribution of hospice, homecare and nursing home facilities in order to demonstrate current existence of and access to resources for EOL care among PLWHA in the Appalachian regions of Tennessee and Alabama. Methods: This paper reports on the second aim of a larger sequential, mixed methods qualitative-quantitative (qual→quan) study. Data from advance care planning (ACP) surveys were collected by both electronic (n = 28) and paper copies (n = 201) and, among other things, obtained information on zip codes of residence of PLWHA. This enabled assessment of the geographic distribution of residences of PLWHA in relation to the distribution of healthcare services such as hospice and home healthcare services. Hospice and Home Healthcare data were obtained from the Tennessee and Alabama Departments of Health. The street addresses of these facilities were used to geocode and map the geographic distributions of the facilities using Street Map USA. Travel times to Hospice and Home Healthcare facilities were computed and mapped using ArcGIS 10.3. Results: We identified a total of 32 hospice and 69 home healthcare facilities in the Tennessee Appalachian region, while the Alabama Appalachian region had a total of 110 hospice and 86 home healthcare facilities. Most care facilities were located in urban centers. The distribution of care facilities was worse in Tennessee with many counties having no facilities, requiring up to an hour drive time to reach patients. A total of 86% of the PLWHA indicated preference to die at home. Conclusions: Persons living with HIV/AIDS in Appalachia face a number of challenges at the end of life that make access to EOL services difficult. Although respondents indicated a preference to die at home, the hospice/homecare infrastructure and resources are overwhelmingly inadequate to meet this need. There is need to improve access to EOL care in the Appalachian regions of both Tennessee and Alabama although the need is greater in Tennessee.
MeSH term(s)	Alabama ; Appalachian Region ; Female ; Geographic Information Systems ; HIV Infections/nursing ; HIV Infections/pathology ; Health Services Accessibility/statistics & numerical data ; Home Care Services/statistics & numerical data ; Hospices/statistics & numerical data ; Humans ; Male ; Middle Aged ; Nursing Homes/statistics & numerical data ; Tennessee ; Terminal Care
Language	English
Publishing date	2020-12-14
Publishing country	United States
Document type	Journal Article ; Research Support, N.I.H., Extramural
ZDB-ID	2267670-3
ISSN	1932-6203 ; 1932-6203
ISSN (online)	1932-6203
ISSN	1932-6203
DOI	10.1371/journal.pone.0243814
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Article ; Online: Understanding HIV-Related Stigma Among Women in the Southern United States: A Literature Review.

Darlington, Caroline K / Hutson, Sadie P

AIDS and behavior

2017 Volume 21, Issue 1, Page(s) 12–26

Abstract: Societal stigmatization of HIV/AIDS due to assumptions about transmission and associated behaviors plays a substantial role in the psychosocial well-being of people living with this chronic illness, particularly for women in traditionally conservative ... ...

Abstract	Societal stigmatization of HIV/AIDS due to assumptions about transmission and associated behaviors plays a substantial role in the psychosocial well-being of people living with this chronic illness, particularly for women in traditionally conservative geographic regions. Known for social conservatism, the Southern United States (US) holds the highest incidence rate of HIV infection in the US. A systematic search of four databases was used to identify 27 relevant scientific articles pertaining to HIV-related stigma among women living with HIV/AIDS in the Southern US. These studies revealed a rudimentary understanding of stigma sources, effects, and stigma-reduction interventions in this population. Due to the cultural specificity of stigma, further differentiation of stigma in discrete sectors of the South as well as a dialogue about the moral implications of stigma is necessary to lay the groundwork for patient-centered interventions to mitigate the destructive effects of stigma experienced by women in this region.
Language	English
Publishing date	2017-01
Publishing country	United States
Document type	Review ; Journal Article
ZDB-ID	1339885-4
ISSN	1573-3254 ; 1090-7165
ISSN (online)	1573-3254
ISSN	1090-7165
DOI	10.1007/s10461-016-1504-9
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Article ; Online: A Nurse-Navigated, Postpartum Support Text Messaging Intervention: Satisfaction Among Primiparous Women.

Morris, Melanie Hall / Barton, Maureen / Zane, Marietta / Hutson, Sadie P / Raman, Rameela / Heidel, R Eric

The Journal of perinatal & neonatal nursing

2021 Volume 35, Issue 4, Page(s) 330–339

Abstract: More than 50% of maternal deaths in the United States occur during the first year following childbirth. Nearly 40% of these deaths occur between days 1 and 41 of the postpartum period. Historically, women receive less attention from healthcare providers ... ...

Abstract	More than 50% of maternal deaths in the United States occur during the first year following childbirth. Nearly 40% of these deaths occur between days 1 and 41 of the postpartum period. Historically, women receive less attention from healthcare providers during the postpartum period when compared with the care provided during pregnancy and childbirth. Women may not return for scheduled follow-up care until 4 to 6 weeks after birth, if they return at all. The role of postpartum nurse navigator (PPNN) was developed to deliver a novel, text messaging intervention as part of a randomized controlled trial to 43 primiparous women who experienced an unplanned cesarean birth. Through daily, interactive text messaging, the PPNN assessed study participants' general well-being, assisted with symptom navigation, offered anticipatory guidance, and provided informational support until 4 weeks postpartum. Satisfaction with the intervention was evaluated using a survey that incorporated quantitative and qualitative responses. Overwhelmingly, 93% of participants rated their overall experience with the text messaging intervention as outstanding or good. At least 95% of the participants indicated that they would likely choose to receive daily text messaging from a PPNN following a subsequent birth. Convenient access to professional nurse support for women postbirth warrants further evaluation.
MeSH term(s)	Cesarean Section ; Female ; Humans ; Personal Satisfaction ; Postpartum Period ; Pregnancy ; Text Messaging
Language	English
Publishing date	2021-10-22
Publishing country	United States
Document type	Journal Article ; Randomized Controlled Trial
ZDB-ID	1036365-8
ISSN	1550-5073 ; 0893-2190
ISSN (online)	1550-5073
ISSN	0893-2190
DOI	10.1097/JPN.0000000000000596
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Article ; Online: Anticipating Needs at End of Life in Narratives Related by People Living With HIV/AIDS in Appalachia.

Hall, Joanne / Hutson, Sadie P / West, Frankie

The American journal of hospice & palliative care

2018 Volume 35, Issue 7, Page(s) 985–992

Abstract: As part of a mixed methods study determining end-of-life and advanced care planning needs in southern Appalachia, a narrative analysis was done of stories told in interviews of 8 selected participants using transcript data. Narratives were fraught with ... ...

Abstract	As part of a mixed methods study determining end-of-life and advanced care planning needs in southern Appalachia, a narrative analysis was done of stories told in interviews of 8 selected participants using transcript data. Narratives were fraught with contradiction and paradox. Tensions were evident about living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The primary finding was that stigma, from several sources, and shrinking circles of social support for people living with HIV/AIDS, all of whom were in treatment, combined to create a sense of solitariness. Narratives were fraught with tensions, contradictions, and paradoxes. Living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The rejection-based religiously based stigma was often predicated on stereotypes about sexual behavior and illicit drug use. Diagnosis was a key turning point after which many spiraled downward financially and socially. Implications for research and advanced care planning are included.
MeSH term(s)	Acquired Immunodeficiency Syndrome/psychology ; Acquired Immunodeficiency Syndrome/therapy ; Adult ; Appalachian Region ; Female ; Health Services Needs and Demand/organization & administration ; Humans ; Male ; Middle Aged ; Rural Population/statistics & numerical data ; Social Isolation/psychology ; Social Stigma ; Social Support ; Socioeconomic Factors ; Terminal Care/methods ; Terminal Care/psychology
Language	English
Publishing date	2018-01-29
Publishing country	United States
Document type	Journal Article
ZDB-ID	1074344-3
ISSN	1938-2715 ; 1049-9091
ISSN (online)	1938-2715
ISSN	1049-9091
DOI	10.1177/1049909118754879
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Article ; Online: Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care.

Rising, Camella J / Wilsnack, Catherine / Boyd, Patrick / Sleight, Alix G / Hutson, Sadie P / Khincha, Payal P / Werner-Lin, Allison

Patient education and counseling

2022 Volume 105, Issue 11, Page(s) 3259–3266

Abstract: Objectives: This qualitative-descriptive study explored adolescent and young adult (AYA) perspectives, experiences, and challenges with openness and closedness in family communication about Li-Fraumeni syndrome (LFS).: Methods: We conducted ... ...

Abstract	Objectives: This qualitative-descriptive study explored adolescent and young adult (AYA) perspectives, experiences, and challenges with openness and closedness in family communication about Li-Fraumeni syndrome (LFS). Methods: We conducted interviews with AYAs (aged 15-39 years) with LFS enrolled in the National Cancer Institute's LFS study (NCT01443468). An interprofessional clinician-researcher team analyzed transcribed data using the constant comparative method and interpretive description. Results: AYAs (N = 38; 26 females, 12 males, mean age=29 years) reported navigating openness and closedness about LFS in their families, which varied by LFS topic, relationship, disease trajectory, and developmental phase. AYAs described communication challenges, including broaching difficult topics (e.g., reproductive decision-making, end-of-life), balancing information-sharing with emotionally protecting family and self, and struggling with interactions that cause relational tensions. Conclusions: AYAs reported experiencing LFS family communication challenges that disrupted their psychosocial well-being. LFS-related stressors and life transitions complicated and were complicated by these challenging family interactions. Practice implications: Clinicians may support AYAs with LFS by inquiring about family communication, responding empathically to communication concerns, providing resources to support difficult conversations, and engaging mental health providers as needed. Researchers could partner with AYAs to develop tailored communication skills training and social support tools.
MeSH term(s)	Adolescent ; Adult ; Communication ; Female ; Humans ; Li-Fraumeni Syndrome/complications ; Li-Fraumeni Syndrome/genetics ; Li-Fraumeni Syndrome/psychology ; Male ; Neoplasms/psychology ; Psychiatric Rehabilitation ; Qualitative Research ; Social Support ; Young Adult
Language	English
Publishing date	2022-07-20
Publishing country	Ireland
Document type	Journal Article ; Research Support, N.I.H., Intramural
ZDB-ID	605590-4
ISSN	1873-5134 ; 0738-3991
ISSN (online)	1873-5134
ISSN	0738-3991
DOI	10.1016/j.pec.2022.07.012
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