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  1. Article ; Online: 1.2 Epidemiology of Disability

    Gerold Stucki / Jerome Bickenbach

    The Journal of the International Society of Physical and Rehabilitation Medicine, Vol 2, Iss 5, Pp 13-

    2019  Volume 14

    Keywords Orthopedic surgery ; RD701-811 ; Medicine ; R
    Language English
    Publishing date 2019-01-01T00:00:00Z
    Publisher Wolters Kluwer Medknow Publications
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  2. Article ; Online: How to capture the individual and societal impacts of syndemics

    Gerold Stucki / Carla Sabariego / Stefan Boes / Jerome Bickenbach

    BMJ Global Health, Vol 6, Iss

    the lived experience of COVID-19

    2021  Volume 10

    Keywords Medicine (General) ; R5-920 ; Infectious and parasitic diseases ; RC109-216
    Language English
    Publishing date 2021-10-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  3. Article ; Online: 1.1 Basic Concepts, Definitions and Models

    Gerold Stucki / Jerome Bickenbach

    The Journal of the International Society of Physical and Rehabilitation Medicine, Vol 2, Iss 5, Pp 8-

    2019  Volume 12

    Keywords Orthopedic surgery ; RD701-811 ; Medicine ; R
    Language English
    Publishing date 2019-01-01T00:00:00Z
    Publisher Wolters Kluwer Medknow Publications
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  4. Article ; Online: The best national programs protecting the rights of persons aging with disabilities

    Jerome Bickenbach

    International Journal of Integrated Care, Vol 12, Iss

    2012  Volume 9

    Keywords ageing ; disability ; alliances ; international classification of functioning ; disability and health ; Medicine (General) ; R5-920
    Language English
    Publishing date 2012-11-01T00:00:00Z
    Publisher Ubiquity Press
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  5. Article ; Online: The best national programs protecting the rights of persons aging with disabilities

    Jerome Bickenbach

    International Journal of Integrated Care, Vol 12, Iss

    2012  Volume 9

    Keywords ageing ; disability ; alliances ; international classification of functioning ; disability and health ; Medicine (General) ; R5-920
    Language English
    Publishing date 2012-11-01T00:00:00Z
    Publisher Ubiquity Press
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  6. Article ; Online: Covid-19 and Post Intensive Care Syndrome

    Henk J. Stam / Gerold Stucki / Jerome Bickenbach

    Journal of Rehabilitation Medicine, Vol 52, Iss 4, p jrm

    A Call for Action

    2020  Volume 00044

    Abstract: Although we are currently overwhelmed by the astonishing speed of infection of the Covid-19 pandemic, and the daily onslaught of new, and ever-worsening predictions, it is vital that we begin to prepare for the aftershocks of the pandemic. Prominent ... ...

    Abstract Although we are currently overwhelmed by the astonishing speed of infection of the Covid-19 pandemic, and the daily onslaught of new, and ever-worsening predictions, it is vital that we begin to prepare for the aftershocks of the pandemic. Prominent among this will be the cohort of post-intensive case survivors who have been mechanically ventilated and will like experience short- and medium-term consequences. The notion that patients surviving intensive care and mechanical ventilation for several weeks can be discharged home without further medical attention is a dangerous illusion. Post Intensive Care Syndrome and other severe conditions will require not only adequate screening but early rehabilitation and other interventions. Action must be taken now to prepare for this inevitable aftershock to the healthcare system.
    Keywords covid-19 ; post intensive care syndrome ; rehabilitation ; Therapeutics. Pharmacology ; RM1-950 ; covid19
    Language English
    Publishing date 2020-04-01T00:00:00Z
    Publisher Foundation for Rehabilitation Information
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  7. Article ; Online: Legal and Regulatory Approaches to Rehabilitation Planning

    Aditi Garg / Dimitrios Skempes / Jerome Bickenbach

    International Journal of Environmental Research and Public Health, Vol 17, Iss 4363, p

    A Concise Overview of Current Laws and Policies Addressing Access to Rehabilitation in Five European Countries

    2020  Volume 4363

    Abstract: Background: The rising prevalence of disability due to noncommunicable diseases and the aging process in tandem with under-prioritization and underdevelopment of rehabilitation services remains a significant concern for European public health. Over ... ...

    Abstract Background: The rising prevalence of disability due to noncommunicable diseases and the aging process in tandem with under-prioritization and underdevelopment of rehabilitation services remains a significant concern for European public health. Over recent years, health system responses to population health needs, including rehabilitation needs, have been increasingly acknowledging the power of law and formal written policies as strategic governance tools to improve population health outcomes. However, the contents and scope of enacted legislation and adopted policies concerning rehabilitation services in Europe has not been synthesized. This paper presents a concise overview of laws and policies addressing rehabilitation in five European countries. Methods: Publicly available laws, policies, and national action plans addressing rehabilitation issues of Sweden, Italy, Germany, the Netherlands and the United Kingdom were reviewed and descriptive documents analyzed. Actions found in national health policies were also evaluated for compliance with the key recommendations specified in the World Health Organization’s Rehabilitation 2030: Call for Action. Results : Across countries, legal and policy approaches to rehabilitation planning varied in scope and reach. While all countries entitle citizens to rehabilitation services, comprehensiveness of coverage varied. Health legislation of Germany and Netherlands recognizes access to rehabilitation as a human right for persons with disabilities, while Sweden and the United Kingdom acknowledge its importance in disability laws for achieving substantive equality for persons with disabilities. Regarding policies, in all countries but Italy, targeted universalism remains the predominant strategy governing rehabilitation services, as demonstrated by the lack of comprehensive, national action plans for rehabilitation addressing the general population. Nevertheless, references found in disease specific policies indicate a solid consensus that rehabilitation remains an integral ...
    Keywords rehabilitation ; health policy ; health planning ; health services for disabled persons ; Convention on the Rights of Persons with Disabilities ; Europe ; Medicine ; R
    Subject code 300 ; 360
    Language English
    Publishing date 2020-06-01T00:00:00Z
    Publisher MDPI AG
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  8. Article ; Online: Rethinking Disability

    Alarcos Cieza / Carla Sabariego / Jerome Bickenbach / Somnath Chatterji

    BMC Medicine, Vol 16, Iss 1, Pp 1-

    2018  Volume 5

    Abstract: Abstract Disability as a health outcome deserves more attention than it has so far received. With people living longer and the epidemiological transition from infectious to noncommunicable diseases as the major cause of health burden, we need to focus ... ...

    Abstract Abstract Disability as a health outcome deserves more attention than it has so far received. With people living longer and the epidemiological transition from infectious to noncommunicable diseases as the major cause of health burden, we need to focus attention on disability – the non-fatal impact of heath conditions – over and above our concern for causes of mortality. With the first Global Burden of Disease study, WHO provided a metric that enabled the comparison of the impact of diseases, drawing on a model of disability that focused on decrements of health. This model has since been elaborated in the International Classification of Functioning, Disability and Health as being either a feature of the individual or arising out of the interaction between the individual’s health condition and contextual factors. The basis of WHO’s ongoing work is a set of principles: that disability is a universal human experience; that disability is not determined solely by the underlying health condition or predicated merely on the presence of specific health conditions; and finally, that disability lies on a continuum from no to complete disability. To determine whether interventions at individual or population levels are effective, an approach to disability measurement that allows for an appropriate and fair comparison across health conditions is needed. WHO has designed the Model Disability Survey (MDS) to collect information relevant to understand the lived experience of disability, including the person’s capacity to perform tasks actions in daily life, their actual performance, the barriers and facilitators in the environment they experience, and their health conditions. As disability gains prominence within the development agenda in the United Nations Sustainable Development Goals, and the implementation of the United Nations Convention on the Rights of Persons with Disabilities, the MDS will provide the data to monitor the progress of countries on meeting their obligations. The lesson learned from WHO’s activities is ...
    Keywords International Classification of Functioning ; Disability and Health ; Disability ; Health Status Indicators ; Model Disability Survey ; Global Burden of Disease ; Medicine ; R
    Subject code 360
    Language English
    Publishing date 2018-01-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  9. Article ; Online: Generating comprehensive functioning and disability data worldwide

    Carla Sabariego / Carolina Fellinghauer / Lindsay Lee / Kaloyan Kamenov / Aleksandra Posarac / Jerome Bickenbach / Nenad Kostanjsek / Somnath Chatterji / Alarcos Cieza

    Archives of Public Health, Vol 80, Iss 1, Pp 1-

    development process, data analyses strategy and reliability of the WHO and World Bank Model Disability Survey

    2022  Volume 10

    Abstract: Abstract Background Data on functioning and disability collected at population level is essential to complement mortality and morbidity, to estimate rehabilitation needs of countries and regions and to monitor the Convention on the Rights of Persons with ...

    Abstract Abstract Background Data on functioning and disability collected at population level is essential to complement mortality and morbidity, to estimate rehabilitation needs of countries and regions and to monitor the Convention on the Rights of Persons with Disabilities (CRPD) and the Sustainable Development Goals (SDGs). The objective of this paper is to briefly report the development process of the WHO Model Disability Survey, its data analysis strategy as well as its reliability and ability to measure low to high levels of functioning and disability across countries. Methods The development process is described in detail, and a secondary analysis using Rasch methods is conducted to report reliability and targeting using data from eight national and two regional implementations of the survey. Results The currently available versions of the Model Disability Survey are presented. The survey has good to very good internal reliability and good targeting in all included countries. Conclusion The participatory and evidence-based development, consideration of the expertise of stakeholders, the availability of previously developed ICF-based surveys, and WHO tools targeting functioning and disability are reflected in its good to very good psychometric properties. The survey has been implemented to date in Afghanistan, Cameroon, Chile, Costa Rica, India, Laos, Pakistan, Philippines, Sri Lanka, and Tajikistan, and is used to inform policy-making, to monitor the CRPD and SDGs and to plan the delivery of rehabilitation services.
    Keywords Model disability survey ; Disability ; Functioning ; Reliability ; International classification of functioning ; disability and health ; Rehabilitation ; Public aspects of medicine ; RA1-1270
    Subject code 360
    Language English
    Publishing date 2022-01-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  10. Article ; Online: Measuring functioning and disability using household surveys

    Carla Sabariego / Carolina Fellinghauer / Lindsay Lee / Aleksandra Posarac / Jerome Bickenbach / Nenad Kostanjsek / Somnath Chatterji / Kaloyan Kamenov / Alarcos Cieza

    Archives of Public Health, Vol 79, Iss 1, Pp 1-

    metric properties of the brief version of the WHO and World Bank model disability survey

    2021  Volume 11

    Abstract: Abstract Background The Model Disability Survey (MDS) is the current standard recommended by WHO to collect functioning and disability data. Answering calls from countries requesting a version to be implemented as a module that could be integrated into ... ...

    Abstract Abstract Background The Model Disability Survey (MDS) is the current standard recommended by WHO to collect functioning and disability data. Answering calls from countries requesting a version to be implemented as a module that could be integrated into existing surveys and be used for monitoring disability trends and for data disaggregation, WHO developed the brief MDS. The objectives of this paper are to evaluate the metric properties of the disability metrics generated with the Brief MDS and the precision of the Brief MDS in comparison with the full MDS. Results The partial credit model, a unidimensional model for polytomous data from the Rasch family, was applied to evaluate psychometric properties using data from national MDS implementations in Chile (N = 12,265) and in Sri Lanka (N = 3000). The Brief MDS generates valid metrics for measuring disability, from the perspectives of capacity and performance, thereby achieving good levels of measurement precision in comparison with its full counterpart. Conclusion Given the scarcity of valid functioning and disability modules for household surveys, the Brief MDS represents a milestone in disability measurement. The Brief MDS is currently used by countries to monitor disability trends over time, which is especially important to evaluate the impact of health policies and public health interventions, to disaggregate indicators of the Sustainable Development Goals, and to monitor the implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).
    Keywords Model disability survey ; Disability ; Functioning ; Rasch model ; Public aspects of medicine ; RA1-1270
    Subject code 306
    Language English
    Publishing date 2021-07-01T00:00:00Z
    Publisher BMC
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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