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Article ; Online: Neuroendocrine neoplasms: Consensus on a patient care pathway.

Hooper, Jessica / Jervis, Nikie / Morgan, Lucy / Beckett, Vivienne / Hand, Philippa / Higgs, Kate / Munir, Alia / Prinn, Jenny / Pritchard, D Mark / Sarker, Debashis / Srirajaskanthan, Raj / Ellis, Catherine Bouvier

Journal of neuroendocrinology

2024  Volume 36, Issue 4, Page(s) e13380

Abstract: People with neuroendocrine neoplasms (NENs) face a multitude of challenges, including delayed diagnosis, low awareness of the cancer among healthcare professionals and limited access to multidisciplinary care and expert centres. We have developed the ... ...

Abstract People with neuroendocrine neoplasms (NENs) face a multitude of challenges, including delayed diagnosis, low awareness of the cancer among healthcare professionals and limited access to multidisciplinary care and expert centres. We have developed the first patient care pathway for people living with NENs in England to guide disease management and help overcome these barriers. The pathway was developed in two phases. First, a pragmatic review of the literature was conducted, which was used to develop a draft patient care pathway. Second, the draft pathway was then updated following semi-structured interviews with carefully selected expert stakeholders. After each phase, the pathway was discussed among a multidisciplinary, expert advisory group (which comprised the authors and the Deputy Chief Operating Officer, West Suffolk NHS Foundation Trust), who reached a consensus on the ideal care pathway. This article presents the outputs of this research. The pathway identified key barriers to care and highlighted how these may be addressed, with many of the findings relevant to the rest of the UK and international audiences. NENs are increasing in incidence and prevalence in England, compounding pre-existing inequities in diagnosis and disease management. Effective integration of this pathway within NHS England will help achieve optimal, equitable care provision for all people with NENs, and should be feasible within the existing expert multidisciplinary teams across the country.
MeSH term(s) Humans ; Consensus ; Critical Pathways ; Neuroendocrine Tumors/diagnosis ; Neuroendocrine Tumors/epidemiology ; Neuroendocrine Tumors/therapy
Language English
Publishing date 2024-03-12
Publishing country United States
Document type Review ; Journal Article
ZDB-ID 1007517-3
ISSN 1365-2826 ; 0953-8194
ISSN (online) 1365-2826
ISSN 0953-8194
DOI 10.1111/jne.13380
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