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  1. Article ; Online: Access to eye care and support services among adults from minority ethnic communities living with visual impairment in the United Kingdom.

    Heinze, Nikki / Jones, Lee

    Frontiers in public health

    2024  Volume 11, Page(s) 1277519

    Abstract: Background: Despite an increased risk of certain eye conditions which can lead to visual impairment (V.I.), there is evidence of a greater delay to treatment-seeking among adults from minority ethnic communities (MEC). MEC adults may also be ... ...

    Abstract Background: Despite an increased risk of certain eye conditions which can lead to visual impairment (V.I.), there is evidence of a greater delay to treatment-seeking among adults from minority ethnic communities (MEC). MEC adults may also be underrepresented on V.I. registers, within early intervention services, and among the beneficiaries of national V.I. charities. However, much of this evidence is outdated or anecdotal.
    Methods: This secondary analysis of V.I. Lives survey data explored use of eye health and support services and mobility aids among a matched control sample of 77 MEC and 77 adults aged 18 and over from white communities (WC). Participants were matched on age, gender, UK region and urban/rural setting. Additional subgroup analysis was conducted for Asian (
    Results: There were no significant group differences in areas such as eye health service use, registration status, contact with charities, and level of practical support received. But MEC participants were significantly more likely than WC participants to have received direct payments from social services to cover their care needs,
    Conclusion: The preliminary findings suggests that there is scope to increase support provided by V.I. charities and the V.I. register, although, contrary to existing evidence, there were no statistically significant differences in eye health service use, registration status and use of wider support services. Further research is required to confirm these findings and explore reasons for differences.
    MeSH term(s) Adolescent ; Adult ; Animals ; Dogs ; Humans ; Black People/statistics & numerical data ; Ethnicity/statistics & numerical data ; Minority Groups/statistics & numerical data ; United Kingdom/epidemiology ; Vision Disorders/epidemiology ; Vision Disorders/ethnology ; Vision Disorders/rehabilitation ; Vision Disorders/therapy ; Health Services Accessibility/statistics & numerical data ; Psychosocial Support Systems ; White People/statistics & numerical data ; Asian People/statistics & numerical data ; Canes ; Service Animals
    Language English
    Publishing date 2024-01-08
    Publishing country Switzerland
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2711781-9
    ISSN 2296-2565 ; 2296-2565
    ISSN (online) 2296-2565
    ISSN 2296-2565
    DOI 10.3389/fpubh.2023.1277519
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Social functioning in adults with visual impairment from minority ethnic communities in the United Kingdom.

    Heinze, Nikki / Jones, Lee

    Frontiers in public health

    2024  Volume 12, Page(s) 1277472

    Abstract: Background: Visual impairment (V.I.) has been associated with a negative impact on social functioning, while social support can impact on well-being in those with V.I. Adults from minority ethnic communities (MEC) are projected to make up an increasing ... ...

    Abstract Background: Visual impairment (V.I.) has been associated with a negative impact on social functioning, while social support can impact on well-being in those with V.I. Adults from minority ethnic communities (MEC) are projected to make up an increasing proportion of adults living with V.I. in the UK, but limited research has explored their social functioning. This article provides a preliminary insight into social functioning among MEC adults living with V.I. in the UK.
    Methods: The article reports findings from a secondary analysis of V.I. Lives survey data. V.I. Lives was a UK telephone survey, which explored the life experiences of people with V.I. across a wide range of topics including social functioning. This secondary analysis explored social participation, support, isolation, and relationships among a matched control sample of 77 MEC and 77 adults aged 18 and over from White communities (WC). Participants were matched on age, gender, UK region and urban/rural setting. Subgroup analyses were also conducted for the two largest subgroups within the MEC group, Asian (
    Results: Contact with like-minded people (
    Conclusion: The findings suggest that V.I. may have had a greater impact on social functioning among Asian participants in this sample, including on experiences of social isolation and participation in social activities. Future research will need to confirm these findings and explore the possible reasons.
    MeSH term(s) Adult ; Humans ; Adolescent ; Social Interaction ; Minority Groups ; United Kingdom ; Ethnicity ; Vision Disorders
    Language English
    Publishing date 2024-02-01
    Publishing country Switzerland
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2711781-9
    ISSN 2296-2565 ; 2296-2565
    ISSN (online) 2296-2565
    ISSN 2296-2565
    DOI 10.3389/fpubh.2024.1277472
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article: 'It would help people to help me': Acceptability of digital phenotyping among young people with visual impairment and their families.

    Higgins, Bethany / Jones, Lee / Devraj, Kishan / Kilduff, Caroline / Moosajee, Mariya

    Digital health

    2024  Volume 10, Page(s) 20552076231220804

    Abstract: Objectives: To explore the acceptability of an eHealth App for vision-related monitoring and symptom reporting among young people with a visual impairment and their parents.: Methods: Qualitative investigation using virtual semi-structured focus ... ...

    Abstract Objectives: To explore the acceptability of an eHealth App for vision-related monitoring and symptom reporting among young people with a visual impairment and their parents.
    Methods: Qualitative investigation using virtual semi-structured focus groups (via Zoom software) of seven young participants with a genetic eye disorder including inherited retinal disease and structural eye abnormalities (e.g. microphthalmia), and 7 parents; all recruited from ocular genetic clinics at Moorfields Eye Hospital. Audio transcripts were analysed using thematic analysis.
    Results: Data were coded into six key themes: (1) increased involvement in care, (2) opportunity for less hospital-centric care, (3) better representation of visual impairment in a real-world setting, (4) trust in a reputable service provider, (5) harnessing data for health purposes and (6) intended purpose of the app. Both young people and their families were accepting of an eHealth app and felt they would be empowered by greater involvement in their care plan, if privacy of the data was retained, and information was managed correctly. While parents endorsed the opportunity for mental health tracking, young people were hesitant towards its inclusion.
    Conclusion: In summary, there was overall acceptability of an eHealth app among young people with a visual impairment and their parents. These findings will help to maximise the effective integration of digital phenotyping when monitoring and supporting young people experiencing sight loss.
    Language English
    Publishing date 2024-01-05
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2819396-9
    ISSN 2055-2076
    ISSN 2055-2076
    DOI 10.1177/20552076231220804
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Practice patterns in reporting and documentation of Charles Bonnet syndrome: a retrospective review following COVID-19.

    Abdulhussein, Dalia / Jones, Lee / Dintakurti, Sri Harsha / Moosajee, Mariya

    Therapeutic advances in ophthalmology

    2024  Volume 16, Page(s) 25158414241232285

    Abstract: Background: Charles Bonnet syndrome (CBS) is characterized by visual hallucinations occurring in people with visual impairment. CBS can negatively impact psychological well-being, and the COVID-19 pandemic period was associated with an exacerbation of ... ...

    Abstract Background: Charles Bonnet syndrome (CBS) is characterized by visual hallucinations occurring in people with visual impairment. CBS can negatively impact psychological well-being, and the COVID-19 pandemic period was associated with an exacerbation of symptoms.
    Objectives: To compare clinical practice patterns and reporting of CBS at a tertiary eye care center between an interval prior to the COVID-19 pandemic and an interval during the pandemic.
    Design: Retrospective chart review.
    Methods: A search of electronic medical records for all suspected CBS cases was conducted between 1 March 2019 and 29 February 2020 (prior pandemic interval) and between 1 September 2020 and 29 August 2021 (peri-pandemic interval). Data retrieved from records included patient demographics, visual acuity at the time of CBS onset, type of hallucinations, reporting healthcare professional, management strategies and patient-reported impact of hallucinations.
    Results: In total, 223 appointments referred to CBS in 156 patients at the prior interval, while 239 appointments referred to CBS in 155 patients at the peri-pandemic interval, representing 0.07% and 0.09% of all hospital attendance, respectively. Clinical subspecialty where CBS was most commonly reported was medical retina, and a greater proportion of patients at both time intervals were female. Types of hallucinations, management strategies and patient-reported impact were seldom reported, although documentation improved at the latter interval.
    Conclusion: Practice patterns and patient characteristics were similar between the two intervals; however, subtle differences suggest a growing awareness of CBS. Targeted interventions in high-burden clinical subspecialties may encourage reporting and improve documentation of CBS.
    Language English
    Publishing date 2024-03-27
    Publishing country United States
    Document type Journal Article
    ISSN 2515-8414
    ISSN (online) 2515-8414
    DOI 10.1177/25158414241232285
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article ; Online: Impact of minimally invasive glaucoma surgery on the ocular surface and quality of life in patients with glaucoma.

    Jones, Lee / Maes, Natalia / Qidwai, Umair / Ratnarajan, Gokulan

    Therapeutic advances in ophthalmology

    2023  Volume 15, Page(s) 25158414231152765

    Abstract: Background: Minimally invasive glaucoma procedures are emerging as clinically effective and safe glaucoma management approaches; however, evidence regarding quality-of-life outcomes is limited.: Objectives: To explore the impact of minimally invasive ...

    Abstract Background: Minimally invasive glaucoma procedures are emerging as clinically effective and safe glaucoma management approaches; however, evidence regarding quality-of-life outcomes is limited.
    Objectives: To explore the impact of minimally invasive glaucoma surgery (MIGS) combined with phacoemulsification on patient-reported outcomes and clinical parameters related to ocular surface disease in people with glaucoma.
    Design: Retrospective observational study.
    Methods: Fifty-seven consecutive patients were examined prior to undergoing iStent combined with phacoemulsification with or without adjunctive endocyclophotocoagulation and at 4-month follow-up.
    Results: At follow-up, on average patients returned statistically significantly improved scores on glaucoma-specific (GQL-15,
    Conclusion: This retrospective audit shows quality of life and clinical parameters related to the ocular surface are improved following MIGS combined with phacoemulsification in patients previously treated with anti-glaucoma therapy.
    Language English
    Publishing date 2023-02-13
    Publishing country United States
    Document type Journal Article
    ISSN 2515-8414
    ISSN (online) 2515-8414
    DOI 10.1177/25158414231152765
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: A rapid review of evidence relating to service use, experiences, and support needs of adults from minority ethnic communities along the eyecare pathway in the United Kingdom.

    Heinze, Nikki / Jones, Lee / Makwana, Bhavini

    Frontiers in public health

    2023  Volume 11, Page(s) 1119540

    Abstract: Background: There is growing awareness of the health inequalities experienced by minority ethnic communities, who make up an increasing proportion of the United Kingdom (UK) population and have been found to be at increased risk of visual impairment (V ... ...

    Abstract Background: There is growing awareness of the health inequalities experienced by minority ethnic communities, who make up an increasing proportion of the United Kingdom (UK) population and have been found to be at increased risk of visual impairment (V.I.). V.I. impacts on a wide range of life domains including employment, social functioning and activities of daily living. Considering existing health inequalities, the increased risk of V.I. and its wide-ranging impact, it is important to understand the experiences of adults from minority ethnic communities living with V.I. in the UK.
    Methods: A rapid evidence review of academic and gray literature published since 2005 and in English was performed. A search of AMED, CINAHL Plus and MEDLINE
    Results: A total of 11 academic articles and 4 charity reports presented findings relating to perceptions of V.I. and eye disease (
    Conclusions: This review summarizes our current knowledge of the experiences of adults from minority ethnic communities living with V.I. in the UK and highlights substantial gaps in the evidence. The findings provide practical implications for practitioners and researchers committed to addressing health inequalities in the field of eyecare in the UK.
    MeSH term(s) Adult ; Humans ; Ethnicity ; Activities of Daily Living ; Minority Groups ; United Kingdom
    Language English
    Publishing date 2023-02-28
    Publishing country Switzerland
    Document type Journal Article ; Review ; Research Support, Non-U.S. Gov't
    ZDB-ID 2711781-9
    ISSN 2296-2565 ; 2296-2565
    ISSN (online) 2296-2565
    ISSN 2296-2565
    DOI 10.3389/fpubh.2023.1119540
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Illness severity characteristics and outcomes of patients remaining on an acute ward following medical emergency team review: a latent profile analysis.

    Batterbury, Anthony / Douglas, Clint / Jones, Lee / Coyer, Fiona

    BMJ quality & safety

    2023  Volume 32, Issue 7, Page(s) 404–413

    Abstract: Background: Patients requiring medical emergency team (MET) review have complex clinical needs, and most remain on the ward after review. Current detection instruments cannot identify post-MET patient requirements, meaning patients remain ... ...

    Abstract Background: Patients requiring medical emergency team (MET) review have complex clinical needs, and most remain on the ward after review. Current detection instruments cannot identify post-MET patient requirements, meaning patients remain undistinguished, potentially resulting in missed management opportunities. We propose that deteriorating patients will cluster along dimensions of illness severity and that these clusters may be used to strengthen patient risk management practices.
    Objective: To identify and define the number of illness severity clusters and report outcomes among ward patients following MET review.
    Study design and setting: This retrospective cohort study examined the clinical records of 1500 adult ward patients following MET review at an Australian quaternary hospital. Three-step latent profile analysis methods were used to determine clusters using Sequential Organ Failure Assessment (SOFA) and Nursing Activities Score (NAS) as illness severity indicators. Study outcomes were (1) hospital mortality, (2) unplanned intensive care unit (ICU) admission and (3) subsequent MET review.
    Results: Patients were unplanned (73.9%) and medical (57.5%) admissions with at least one comorbidity (51.4%), and complex combinations of acuity (SOFA range 1-17) and dependency (NAS range 22.4%-148.5%). Five clusters are reported. Patients in cluster 1 were equivalent to clinically stable general ward patients. Organ failure and complexity increased with cluster progression-clusters 2 and 3 were equivalent to subspecialty/higher-dependency wards, and clusters 4 and 5 were equivalent to ICUs. Patients in cluster 5 had the greatest odds for death (OR 26.2, 95% CI 23.3 to 31.3), unplanned ICU admission (OR 3.1, 95% CI 3.0 to 3.1) and subsequent MET review (OR 2.4, 95% CI 2.4 to 2.6).
    Conclusion: The five illness severity clusters may be used to define patients at risk of poorer outcomes who may benefit from enhanced levels of monitoring and targeted care.
    MeSH term(s) Adult ; Humans ; Retrospective Studies ; Australia ; Hospitalization ; Intensive Care Units ; Hospitals ; Patient Acuity ; Hospital Mortality
    Language English
    Publishing date 2023-01-19
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2592909-4
    ISSN 2044-5423 ; 2044-5415
    ISSN (online) 2044-5423
    ISSN 2044-5415
    DOI 10.1136/bmjqs-2022-015637
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  8. Article: The Application of Terrestrial LiDAR for Geohazard Mapping, Monitoring and Modelling in the British Geological Survey

    Jones, Lee / Hobbs, Peter

    Remote Sensing. 2021 Jan. 23, v. 13, no. 3

    2021  

    Abstract: Geomatics is the discipline of electronically gathering, storing, processing, and delivering spatially related digital information; it continues to be one of the fastest expanding global markets, driven by technology. The British Geological Survey (BGS) ... ...

    Abstract Geomatics is the discipline of electronically gathering, storing, processing, and delivering spatially related digital information; it continues to be one of the fastest expanding global markets, driven by technology. The British Geological Survey (BGS) geomatics capabilities have been utilized in a variety of scientific studies such as the monitoring of actively growing volcanic lava domes and rapidly retreating glaciers; coastal erosion and platform evolution; inland and coastal landslide modelling; mapping of geological structures and fault boundaries; rock stability and subsidence feature analysis, and geo-conservation. In 2000, the BGS became the first organization outside the mining industry to use Terrestrial LiDAR Scanning (TLS) as a tool for measuring change; paired with a Global Navigation Satellite System (GNSS), BGS were able to measure, monitor, and model geomorphological features of landslides in the United Kingdom (UK) digitally. Many technologies are used by the BGS to monitor the earth, employed on satellites, airplanes, drones, and ground-based equipment, in both research and commercial settings to carry out mapping, monitoring, and modelling of earth surfaces and processes. Outside BGS, these technologies are used for close-range, high-accuracy applications such as bridge and dam monitoring, crime and accident scene analysis, forest canopy and biomass measurements and military applications.
    Keywords accidents ; biomass ; crime ; evolution ; forest canopy ; global positioning systems ; landslides ; lava ; lidar ; subsidence ; surveys ; United Kingdom
    Language English
    Dates of publication 2021-0123
    Publishing place Multidisciplinary Digital Publishing Institute
    Document type Article
    Note NAL-AP-2-clean
    ZDB-ID 2513863-7
    ISSN 2072-4292
    ISSN 2072-4292
    DOI 10.3390/rs13030395
    Database NAL-Catalogue (AGRICOLA)

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  9. Article: How does the UK public think and feel about people with visual impairment: a review of existing evidence.

    Heinze, Nikki / Jones, Lee / Bertiz, Firuzé / Saunders, Emma / Gomes, Renata S M

    Frontiers in psychology

    2024  Volume 15, Page(s) 1359074

    Abstract: Despite legislation to protect people with visual impairment (V.I.) from discrimination in the United Kingdom (UK), the latter continue to experience overt and covert negative behaviours. Perceived discrimination has been associated with an adverse ... ...

    Abstract Despite legislation to protect people with visual impairment (V.I.) from discrimination in the United Kingdom (UK), the latter continue to experience overt and covert negative behaviours. Perceived discrimination has been associated with an adverse impact on identity, health and well-being, while negative attitudes have been identified as the biggest barrier to participation in everyday life. This article provides a narrative review of existing evidence of how the UK public treats (behaviours), thinks (perceptions) and feels (attitudes) about people with V.I. Despite limitations, the findings suggest that there is a gap between the behaviours reported by people with V.I. and the attitudes expressed by members of the UK public. Social psychological theories are used to explore possible reasons for this gap, and ways in which it may be addressed. As such, the article provides an example of how social psychological theories can be used to address problems in an applied context.
    Language English
    Publishing date 2024-03-07
    Publishing country Switzerland
    Document type Journal Article ; Review
    ZDB-ID 2563826-9
    ISSN 1664-1078
    ISSN 1664-1078
    DOI 10.3389/fpsyg.2024.1359074
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  10. Article ; Online: Association of exercise with pan-cancer incidence and overall survival.

    Lavery, Jessica A / Boutros, Paul C / Knight, Daniel / Tammela, Tuomas / Moskowitz, Chaya S / Jones, Lee W

    Cancer cell

    2024  Volume 42, Issue 2, Page(s) 169–171

    Abstract: Lavery et al. show that the association between exercise and risk of cancer varied as a function of organ site and amount of exercise. Exercise was also associated with a longevity benefit regardless of a cancer diagnosis or not. This study further ... ...

    Abstract Lavery et al. show that the association between exercise and risk of cancer varied as a function of organ site and amount of exercise. Exercise was also associated with a longevity benefit regardless of a cancer diagnosis or not. This study further highlights the importance of exercise as an effective cancer preventive strategy.
    MeSH term(s) Humans ; Incidence ; Exercise ; Neoplasms/epidemiology
    Language English
    Publishing date 2024-01-04
    Publishing country United States
    Document type Letter ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 2078448-X
    ISSN 1878-3686 ; 1535-6108
    ISSN (online) 1878-3686
    ISSN 1535-6108
    DOI 10.1016/j.ccell.2023.12.007
    Database MEDical Literature Analysis and Retrieval System OnLINE

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