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  1. AU="Kluger, Benzi"
  2. AU="Mitchell, Krista"
  3. AU="Oakes, Mary"
  4. AU="Kevill, Dennis N"
  5. AU="Rojas, Almudena"
  6. AU=Dalmau Josep AU=Dalmau Josep
  7. AU="Vaňáčová, Štěpánka"
  8. AU="Hancioglu, Baris"
  9. AU="Scribner, Kim T"
  10. AU="Emanuel Schmassmann"
  11. AU="Patel, Monica"
  12. AU=Passariello Margherita
  13. AU=Saikia Bedangshu
  14. AU="Dion, Dominique"
  15. AU="Magami, Shunsuke"
  16. AU="Wagner, Henrik"

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  1. Buch ; Online ; E-Book: Neuropalliative care / Part 2 / edited by Janis M. Miyasaki, Benzi M. Kluger

    Miyasaki, Janis M. / Kluger, Benzi M.

    (Handbook of clinical neurology ; 191)

    2023  

    Verfasserangabe edited by Janis M. Miyasaki, Benzi M. Kluger
    Serientitel Handbook of clinical neurology ; 191
    Neuropalliative care
    Überordnung Neuropalliative care
    Sprache Englisch
    Umfang 1 Online-Ressource (xvi, 278 Seiten), Illustrationen, Diagramme
    Verlag Elsevier
    Erscheinungsort Amsterdam
    Erscheinungsland Niederlande
    Dokumenttyp Buch ; Online ; E-Book
    Bemerkung Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    HBZ-ID HT021686649
    ISBN 9780323860086 ; 9780128245354 ; 0323860087 ; 0128245352
    Datenquelle ZB MED Katalog Medizin, Gesundheit, Ernährung, Umwelt, Agrar

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  2. Buch ; Online: Neuropalliative care

    Miyasaki, Janis M. / Kluger, Benzi M.

    (Handbook of clinical neurology)

    2022  

    Verfasserangabe edited by Janis M. Miyasaki, Benzi M. Kluger
    Serientitel Handbook of clinical neurology
    Sprache Englisch
    Erscheinungsverlauf 2022-9999
    Umfang 2 Online-Ressourcen
    Verlag Elsevier
    Erscheinungsort Amsterdam
    Erscheinungsland Niederlande
    Dokumenttyp Buch ; Online
    HBZ-ID HT021686639
    Datenquelle ZB MED Katalog Medizin, Gesundheit, Ernährung, Umwelt, Agrar

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  3. Buch ; Online ; E-Book: Neuropalliative care / Part 1 / edited by Janis M. Miyasaki, Benzi M. Kluger

    Miyasaki, Janis M. / Kluger, Benzi M.

    (Handbook of clinical neurology ; 190)

    2022  

    Verfasserangabe edited by Janis M. Miyasaki, Benzi M. Kluger
    Serientitel Handbook of clinical neurology ; 190
    Neuropalliative care
    Überordnung Neuropalliative care
    Sprache Englisch
    Umfang 1 Online-Ressource (xvi, 243 Seiten), Illustrationen, Diagramme
    Verlag Elsevier
    Erscheinungsort Amsterdam
    Erscheinungsland Niederlande
    Dokumenttyp Buch ; Online ; E-Book
    Bemerkung Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    HBZ-ID HT021478035
    ISBN 978-0-323-85029-2 ; 0-323-85029-4
    Datenquelle ZB MED Katalog Medizin, Gesundheit, Ernährung, Umwelt, Agrar

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  4. Artikel ; Online: A multipronged approach to advancing palliative care for people with intellectual disabilities - Author's reply.

    Kluger, Benzi M

    The Lancet. Neurology

    2023  Band 23, Heft 2, Seite(n) 138–139

    Mesh-Begriff(e) Humans ; Palliative Care ; Intellectual Disability/therapy
    Sprache Englisch
    Erscheinungsdatum 2023-12-06
    Erscheinungsland England
    Dokumenttyp Letter
    ZDB-ID 2081241-3
    ISSN 1474-4465 ; 1474-4422
    ISSN (online) 1474-4465
    ISSN 1474-4422
    DOI 10.1016/S1474-4422(23)00499-4
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  5. Artikel ; Online: Medical Aid in Living.

    Kluger, Benzi M

    JAMA neurology

    2021  Band 77, Heft 11, Seite(n) 1349–1350

    Mesh-Begriff(e) Colorado ; Female ; Humans ; Male ; Suicide, Assisted/legislation & jurisprudence ; Supranuclear Palsy, Progressive/diagnosis ; Supranuclear Palsy, Progressive/psychology ; Supranuclear Palsy, Progressive/therapy ; Terminal Care/legislation & jurisprudence ; Terminal Care/methods
    Sprache Englisch
    Erscheinungsdatum 2021-06-18
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ZDB-ID 2702023-X
    ISSN 2168-6157 ; 2168-6149
    ISSN (online) 2168-6157
    ISSN 2168-6149
    DOI 10.1001/jamaneurol.2020.2915
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  6. Artikel ; Online: Prognosis in chronic progressive neurologic disease: a narrative review.

    Corcoran, Jennifer / Kluger, Benzi M

    Annals of palliative medicine

    2023  Band 12, Heft 5, Seite(n) 952–962

    Abstract: Background and objective: Prognostication is the process of predicting a patient's likely outcome from their medical condition, and consists of determining both how well and how long a patient may live. There are few disease-specific prognostic tools to ...

    Abstract Background and objective: Prognostication is the process of predicting a patient's likely outcome from their medical condition, and consists of determining both how well and how long a patient may live. There are few disease-specific prognostic tools to estimate a patient's individualized prognosis in terms of symptom burden and mortality. Here we summarize relevant literature on prognosis in four progressive neurologic diseases-dementia, Parkinson's disease, amyotrophic lateral sclerosis, and multiple sclerosis-as well as on best practices on communicating prognosis with patients and care partners.
    Methods: We conducted a PubMed search for terms including "prognosis", "mortality" and "prognostic indicators" in addition to specific diseases, and for terms including "prognosis AND communication". Only English-language papers were included in this review. The time frame of our literature search was 1965 through March 1, 2023.
    Key content and findings: There is some literature to help clinicians in predicting disease progression and survival. These include both general factors (e.g., age, medical co-morbidities) and disease-specific factors (e.g., postural instability in Parkinson's disease). There is also literature on communication of prognosis in neurologic and non-neurologic disease which demonstrates that many patients and care partners prefer to hear prognosis early after diagnosis and to have prognosis discussed as a roadmap of disease.
    Conclusions: More work is needed to develop tools for individualized prognostication and communication for patients with neurologic disease. While there is limited literature on disease-specific prognostic models, existing literature combined with palliative care approaches may improve prognostic guidance for patients.
    Mesh-Begriff(e) Humans ; Parkinson Disease/diagnosis ; Parkinson Disease/therapy ; Nervous System Diseases ; Prognosis ; Palliative Care ; Chronic Disease ; Dementia
    Sprache Englisch
    Erscheinungsdatum 2023-08-24
    Erscheinungsland China
    Dokumenttyp Review ; Journal Article
    ZDB-ID 2828544-X
    ISSN 2224-5839 ; 2224-5839
    ISSN (online) 2224-5839
    ISSN 2224-5839
    DOI 10.21037/apm-22-1338
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  7. Artikel ; Online: The Total Enjoyment of Life: A Framework for Exploring and Supporting the Positive in Palliative Care.

    Kluger, Benzi M / Arnold, Robert M

    Journal of palliative medicine

    2023  Band 26, Heft 10, Seite(n) 1322–1326

    Abstract: The World Health Organization defines palliative care by its focus on improving quality of life (QOL). Although reducing suffering is part of improving QOL, it should not be the sole focus of our efforts. Opportunities for joy, meaning, love, and growth ... ...

    Abstract The World Health Organization defines palliative care by its focus on improving quality of life (QOL). Although reducing suffering is part of improving QOL, it should not be the sole focus of our efforts. Opportunities for joy, meaning, love, and growth exist in the midst of serious illness and should be explored and supported even in the face of suffering. Intentionally focusing on these outcomes expands provider's toolset for improving QOL, creates opportunities to better understand, celebrate, and support the full humanity of the person in front of us, and may increase the satisfaction of practice for clinicians. The "Total Enjoyment of Life" provides a framework for reminding clinicians to systematically address positive outcomes. This framework can also be used to suggest clinical strategies for promoting positive outcomes and expanding the scope of interventions and outcomes to be considered in clinical research.
    Mesh-Begriff(e) Humans ; Palliative Care ; Quality of Life ; Pleasure ; Hospice and Palliative Care Nursing ; Personal Satisfaction
    Sprache Englisch
    Erscheinungsdatum 2023-07-20
    Erscheinungsland United States
    Dokumenttyp Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2023.0321
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  8. Artikel ; Online: Palliative care for Parkinson's disease and related disorders: stepping into the future.

    Kluger, Benzi M

    Annals of palliative medicine

    2020  Band 9, Heft Suppl 1, Seite(n) S3–S5

    Mesh-Begriff(e) Forecasting ; Humans ; Palliative Care/trends ; Parkinson Disease/therapy
    Sprache Englisch
    Erscheinungsdatum 2020-03-06
    Erscheinungsland China
    Dokumenttyp Editorial
    ZDB-ID 2828544-X
    ISSN 2224-5839 ; 2224-5820
    ISSN (online) 2224-5839
    ISSN 2224-5820
    DOI 10.21037/apm.2020.02.05
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  9. Artikel: Preface.

    Miyasaki, Janis M / Kluger, Benzi M

    Handbook of clinical neurology

    2022  Band 190, Seite(n) xi

    Sprache Englisch
    Erscheinungsdatum 2022-07-22
    Erscheinungsland Netherlands
    Dokumenttyp Editorial
    ISSN 0072-9752
    ISSN 0072-9752
    DOI 10.1016/B978-0-323-85029-2.09987-5
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  10. Artikel: Key concepts and opportunities.

    Kluger, Benzi M / Miyasaki, Janis M

    Handbook of clinical neurology

    2022  Band 190, Seite(n) 3–15

    Abstract: Neuropalliative care is an emerging field dedicated to applying palliative care approaches to meet the needs of persons living with neurologic illness and their families. The development of this field acknowledges the unique needs of this population, ... ...

    Abstract Neuropalliative care is an emerging field dedicated to applying palliative care approaches to meet the needs of persons living with neurologic illness and their families. The development of this field acknowledges the unique needs of this population, including in terms of neuropsychiatric symptoms, the impact of neurologic illness on personhood, and the logistics of managing neurologic disability. In defining the goals of this field, it is important to distinguish between neuropalliative care as an approach to care, as a skillset, as a medical subspecialty, and as a public health goal as each of these constructs offers their own contributions and opportunities. As a newly emerging field, there are nearly unlimited opportunities to improve care through research, clinical care, education, and advocacy.
    Mesh-Begriff(e) Humans ; Palliative Care
    Sprache Englisch
    Erscheinungsdatum 2022-07-22
    Erscheinungsland Netherlands
    Dokumenttyp Journal Article ; Review
    ISSN 0072-9752
    ISSN 0072-9752
    DOI 10.1016/B978-0-323-85029-2.00014-2
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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