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Article ; Online: Screening and Assessment of Cancer-Related Fatigue: A Clinical Practice Guideline for Health Care Providers.

Fisher, Mary Insana / Cohn, Joy C / Harrington, Shana E / Lee, Jeanette Q / Malone, Daniel

2022 Volume 102, Issue 9

Abstract: Cancer-related fatigue (CRF) is the most common side effect of cancer treatment. Regular surveillance is recommended, but few clinical practice guidelines transparently assess study bias, quality, and clinical utility in deriving recommendations of ... ...

Abstract	Cancer-related fatigue (CRF) is the most common side effect of cancer treatment. Regular surveillance is recommended, but few clinical practice guidelines transparently assess study bias, quality, and clinical utility in deriving recommendations of screening and assessment methods. The purpose of this clinical practice guideline (CPG) is to provide recommendations for the screening and assessment of CRF for health care professions treating individuals with cancer. Following best practices for development of a CPG using the Appraisal of Guidelines for Research and Evaluation (AGREE) Statement and Emergency Care Research Institute (ECRI) Guidelines Trust Scorecard, this CPG included a systematic search of the literature, quality assessment of included evidence, and stakeholder input from diverse health care fields to derive the final CPG. Ten screening and 15 assessment tools supported by 114 articles were reviewed. One screen (European Organisation for Research and Treatment of Cancer-Quality of Life Questionnaire-30 Core Questionnaire) and 3 assessments (Piper Fatigue Scale-Revised, Functional Assessment of Chronic Illness Therapy-Fatigue, and Patient Reported Outcome Measurement Information System [PROMIS] Fatigue-SF) received an A recommendation ("should be used in clinical practice"), and 1 screen and 5 assessments received a B recommendation ("may be used in clinical practice"). Health care providers have choice in determining appropriate screening and assessment tools to be used across the survivorship care continuum. The large number of tools available to screen for or assess CRF may result in a lack of comprehensive research evidence, leaving gaps in the body of evidence for measurement tools. More research into the responsiveness of these tools is needed in order to adopt their use as outcome measures. Impact: Health care providers should screen for and assess CRF using one of the tools recommended by this CPG.
MeSH term(s)	Early Detection of Cancer ; Fatigue/diagnosis ; Fatigue/etiology ; Fatigue/therapy ; Health Personnel ; Humans ; Neoplasms/complications ; Quality of Life
Language	English
Publishing date	2022-11-11
Publishing country	United States
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	415886-6
ISSN	1538-6724 ; 0031-9023
ISSN (online)	1538-6724
ISSN	0031-9023
DOI	10.1093/ptj/pzac120
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Article ; Online: Explaining the Asian American Youth Paradox: Universal Factors versus Asian American Family Process Among Filipino and Korean American Youth.

Choi, Yoonsun / Park, Michael / Lee, Jeanette Park / Lee, Mina

Family process

2020 Volume 59, Issue 4, Page(s) 1818–1836

Abstract: This study used longitudinal survey data of Filipino American and Korean American youth to examine ways in which universal factors (e.g., peer antisocial behaviors and parent-child conflict) and Asian American (AA) family process variables (e.g., ... ...

Abstract	This study used longitudinal survey data of Filipino American and Korean American youth to examine ways in which universal factors (e.g., peer antisocial behaviors and parent-child conflict) and Asian American (AA) family process variables (e.g., gendered norms) independently and collectively predict grade point average (GPA), externalizing, and internalizing problems. We aimed to explain the "Asian American youth paradox" in which low externalizing problems and high GPA coexist with high internalizing problems. We found that universal factors were extensively predictive of youth problems and remained robust when AA family process was accounted for. AA family process also independently explained youth development and, in part, the AA youth paradox. For example, gendered norms increased mental distress. Academic controls did the opposite of what it is intended, that is, had a negative impact on GPA as well as other developmental domains. Family obligation, assessed by family-centered activities and helping out, was beneficial to both externalizing and internalizing youth outcomes. Parental implicit affection, one of the distinct traits of AA parenting, was beneficial, particularly for GPA. This study provided important empirical evidence that can guide cross-cultural parenting and meaningfully inform intervention programs for AA youth.
MeSH term(s)	Adolescent ; Adolescent Behavior/ethnology ; Adolescent Behavior/psychology ; Asian Americans/psychology ; Cultural Characteristics ; Defense Mechanisms ; Educational Status ; Family/ethnology ; Family/psychology ; Family Conflict/ethnology ; Family Conflict/psychology ; Female ; Humans ; Internal-External Control ; Longitudinal Studies ; Male ; Parent-Child Relations/ethnology ; Parenting/ethnology ; Parenting/psychology ; Philippines/ethnology ; Psychological Distress ; Republic of Korea/ethnology ; Sexism ; Social Norms/ethnology
Language	English
Publishing date	2020-03-10
Publishing country	United States
Document type	Journal Article
ZDB-ID	212740-4
ISSN	1545-5300 ; 0014-7370
ISSN (online)	1545-5300
ISSN	0014-7370
DOI	10.1111/famp.12532
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Article: Upholding Familism Among Asian American Youth: Measures of Familism among Filipino and Korean American Youth.

Choi, Yoonsun / Kim, Tae Yeun / Lee, Jeanette Park / Tan, Kevin Poh Hiong / Noh, Samuel / Takeuchi, David

Adolescent research review

2021 Volume 6, Issue 4, Page(s) 437–455

Abstract: Although it is one of the core cultural values of Asian American families and an influential determinant of youth development, familism remains under-studied among Asian Americans and, despite crucial within-group heterogeneity, lacks subgroup ... ...

Abstract	Although it is one of the core cultural values of Asian American families and an influential determinant of youth development, familism remains under-studied among Asian Americans and, despite crucial within-group heterogeneity, lacks subgroup specificity. This study describes the ways in which two major Asian American subgroups of youth, i.e., Filipino Americans and Korean Americans, maintain traditional familism. Specifically, this study constructed six self-report subscales of familism utilizing underused and new survey items and tested their psychometric properties. Using data collected from Filipino American (
Language	English
Publishing date	2021-01-16
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	2823587-3
ISSN	2363-8354 ; 2363-8346
ISSN (online)	2363-8354
ISSN	2363-8346
DOI	10.1007/s40894-020-00148-9
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Article ; Online: Temporal recovery of activities of daily living in the first year after ischemic stroke: a prospective study of patients admitted to a rehabilitation unit.

Kong, Keng-He / Lee, Jeanette

NeuroRehabilitation

2014 Volume 35, Issue 2, Page(s) 221–226

Abstract: Background: The ability to perform basic activities of daily living (ADL) independently is a marker of functional recovery after a stroke. However, there few studies documenting their long-term recovery.: Objective: To document temporal recovery of ... ...

Abstract	Background: The ability to perform basic activities of daily living (ADL) independently is a marker of functional recovery after a stroke. However, there few studies documenting their long-term recovery. Objective: To document temporal recovery of activities of daily living (ADL) and establish predictors of ADL in a cohort of ischemic stroke patients in the first year after stroke. Methods: Prospective cohort study of 163 patients with first-ever ischemic stroke admitted to a rehabilitation centre. The Modified Barthel Index (MBI) was used to measure the patient's ability to perform the following 10 ADLs: feeding, grooming, dressing, bathing, toileting, bladder and bowel continence, transfers, ambulation and stair climbing. It was assessed on rehabilitation admission, discharge, and at 3, 6 and 12 months after stroke. The Motricity Index was used to measure motor power of the hemiplegic limb. Results: The mean age was 63.8 (10.7) years, with 111 males and 52 females. The mean total MBI scores on rehabilitation admission, rehabilitation discharge, 3, 6 and 12 months after stroke were 41.3 (24.6), 72.9 (20.5), 88.4 (18.6), 90.5 (17.2) and 84.2 (20.4) respectively. Median scores of feeding, grooming, toileting, bladder/bowel continence, transfers and ambulation plateaued by 3 months after stroke. Median scores of dressing and stair climbing plateaued at 6 months and that for bathing, 12 months after stroke. None of the patients were functionally independent (defined as MBI score of 100) on rehabilitation admission, but this improved to 8.6% on discharge, and 32.1%, 41.4% and 50.3% at 3, 6 and 12 months after stroke respectively. The MBI and Motricity scores were strongly correlated at all periods of follow up (r = 0.67 to 0.69, p < 0.0001). Univariate analysis showed that age, neglect, a cortical stroke, admission MBI, NIHSS, Motricity Index and Abbreviated Mental Score scores were predictors of functional independence at 12 months after stroke. On logistic regression, only age remained significant, younger patients being more likely than older patients to be functionally independent. Conclusion: Most recovery of ADL occurs by 3 months after stroke. For individual ADLs, dressing, stair climbing and bathing appear to take a longer time to recover. Older age was a negative predictor of functional dependence at 12 months after stroke.
MeSH term(s)	Activities of Daily Living ; Aged ; Cohort Studies ; Female ; Follow-Up Studies ; Humans ; Logistic Models ; Longitudinal Studies ; Male ; Middle Aged ; Patient Discharge/statistics & numerical data ; Prospective Studies ; Recovery of Function ; Rehabilitation Centers ; Self Care ; Singapore ; Stroke Rehabilitation ; Walking
Language	English
Publishing date	2014-01-01
Publishing country	Netherlands
Document type	Journal Article
ZDB-ID	1087912-2
ISSN	1878-6448 ; 1053-8135
ISSN (online)	1878-6448
ISSN	1053-8135
DOI	10.3233/NRE-141110
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Article: Asian American mental health: Longitudinal trend and explanatory factors among young Filipino- and Korean Americans.

Choi, Yoonsun / Park, Michael / Noh, Samuel / Lee, Jeanette Park / Takeuchi, David

SSM - population health

2020 Volume 10, Page(s) 100542

Abstract: Objectives: This study examined a longitudinal trend of mental health among young Asian Americans during the transition from adolescence to emerging adulthood and investigated explanatory factors of the trend.: Method: We longitudinally followed a ... ...

Abstract	Objectives: This study examined a longitudinal trend of mental health among young Asian Americans during the transition from adolescence to emerging adulthood and investigated explanatory factors of the trend. Method: We longitudinally followed a cohort of Filipino American and Korean American youth and their families in Midwest since 2014 ( Results: Depressive symptoms and suicidal ideation significantly increased among the samples between 2014 and 2018, which also became more serious in severity. Intergenerational cultural conflict in the family and the experience of racial discrimination significantly contributed to the upsurge of mental health distress. Conversely, a strong peer relationship and ethnic identity were critical resources suppressing both depressive symptoms and suicidal ideation. Conclusions: This study substantiated a troubling upward trend in mental health struggles among young Asian Americans and demonstrated a significant additive influence of culture and race/ethnicity on mental health beyond the normative influences of family process and peers. These key factors should be targeted in intervention to better serve Asian American young people who may mask their internal struggles.
Language	English
Publishing date	2020-01-11
Publishing country	England
Document type	Journal Article
ISSN	2352-8273
ISSN	2352-8273
DOI	10.1016/j.ssmph.2020.100542
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Article ; Online: Temporal recovery and predictors of upper limb dexterity in the first year of stroke: a prospective study of patients admitted to a rehabilitation centre.

Kong, Keng-He / Lee, Jeanette

NeuroRehabilitation

2013 Volume 32, Issue 2, Page(s) 345–350

Abstract: Objective: To document temporal recovery of upper extremity dexterity and establish predictors of limb dexterity in a cohort of stroke patients in the first year after stroke.: Design: Prospective cohort study.: Subjects: One hundred patients with ...

Abstract	Objective: To document temporal recovery of upper extremity dexterity and establish predictors of limb dexterity in a cohort of stroke patients in the first year after stroke. Design: Prospective cohort study. Subjects: One hundred patients with a first-ever ischemic stroke admitted to a rehabilitation centre. Methods: Assessment of upper extremity dexterity, motor power and selfcare function using the Motor Assessment Scale (MAS), Upper Extremity Motor Index (UEMI) and Modified Barthel Index (MBI) respectively. Results: Eighteen percent, 25.5% and 31.6% of patients recovered limb dexterity at 3, 6 and 12 months after stroke respectively. Patients who recovered dexterity late (≥6 months after stroke) were significantly younger with lower rehabilitation admission UEMI scores than those who recovered dexterity early. The UEMI score was the most significant correlate of limb dexterity at all follow up periods. Recovery of limb dexterity at 12 months was predicted by UEMI (OR1.54, 95% CI 1.13-2.10) and MBI (OR 1.03, 95% CI 1.00-1.07) scores on admission to rehabilitation. Conclusions: In this study, 31.6% of patients recovered upper extremity dexterity at 12 months after stroke. Although late recovery of dexterity occurs only in a small proportion of patients, this finding is still pertinent given the significant impact of dexterity on upper limb and selfcare function.
MeSH term(s)	Aged ; Cohort Studies ; Female ; Humans ; Male ; Middle Aged ; Motor Activity/physiology ; Odds Ratio ; Outcome Assessment (Health Care) ; Predictive Value of Tests ; Psychomotor Performance/physiology ; Recovery of Function/physiology ; Rehabilitation Centers ; Stroke/physiopathology ; Stroke Rehabilitation ; Time Factors ; Upper Extremity/physiopathology
Language	English
Publishing date	2013
Publishing country	Netherlands
Document type	Journal Article
ZDB-ID	1087912-2
ISSN	1878-6448 ; 1053-8135
ISSN (online)	1878-6448
ISSN	1053-8135
DOI	10.3233/NRE-130854
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Article: Disempowering Parenting and Mental Health among Asian American Youth: Immigration and Ethnicity.

Choi, Yoonsun / Lee, Mina / Lee, Jeanette Park / Park, Michael / Lee, Soo Young / Hahm, Hyeouk Chris

Journal of applied developmental psychology

2019 Volume 66

Abstract: Guided by the concept of ABCDG (Abusive, Burdening, Culturally Disjointed, Disengaged, and Gender Prescriptive) parenting, this study investigated how subdomains of disempowering parenting adversely influence young people's mental health, independently ... ...

Abstract	Guided by the concept of ABCDG (Abusive, Burdening, Culturally Disjointed, Disengaged, and Gender Prescriptive) parenting, this study investigated how subdomains of disempowering parenting adversely influence young people's mental health, independently and collectively, using a large-scale longitudinal survey data of community samples among Filipino American (FA) and Korean American (KA) youth (
Language	English
Publishing date	2019-12-16
Publishing country	United States
Document type	Journal Article
ISSN	0193-3973
ISSN	0193-3973
DOI	10.1016/j.appdev.2019.101077
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Article ; Online: Interdisciplinary palliative care for people with advanced Parkinson's disease: a view from the home.

Fleisher, Jori E / Klostermann, Ellen C / Hess, Serena P / Lee, Jeanette / Myrick, Erica / Chodosh, Joshua

Annals of palliative medicine

2019 Volume 9, Issue Suppl 1, Page(s) S80–S89

Abstract: Background: Advanced Parkinson's disease (PD) is a multidimensional neurodegenerative condition with motor and non-motor symptoms contributing to increasing disability and decreasing quality of life. As the disease progresses, patients may become ... ...

Abstract	Background: Advanced Parkinson's disease (PD) is a multidimensional neurodegenerative condition with motor and non-motor symptoms contributing to increasing disability and decreasing quality of life. As the disease progresses, patients may become homebound and estranged from neurological care, with dire consequences. We describe the increasing epidemiologic burden of and individual risks faced by patients with palliative-stage PD and their caregivers. Methods: With the aim of mitigating these risks, we designed and iterated two models of interdisciplinary home visits to maintain continuity of care and illuminate the unmet needs and barriers to care faced by this population. We describe both models in detail, with data on feasibility and patient-centered outcomes achieved in the initial model, and baseline characteristics of participants in the ongoing expanded model. Finally, we illustrate the scope and common themes of such palliative care-informed home visits with two cases. Results: The pilot model involved over 380 visits with 109 individual patients. Among those patients, PD severity worsened by nearly 12 points annually on the Unified Parkinson's Disease Rating Scale (UPDRS), without a corresponding decline in quality of life. In an ongoing study of the second iteration of the model, 52 patient-caregiver dyads have completed their initial visit, with 44% bearing a diagnosis of dementia and the majority requiring an assistive device or being bedbound. Two cases highlight the critical importance of thorough medication reconciliation and home safety assessment in the comprehensive evaluation and management of such patients. Conclusions: As our population ages, therapies increase, and the number of individuals living with advanced PD and related disorders grows, so too does the imperative to recognize and address the palliative care needs of such patients and families. For many, home may be a viable, and perhaps optimal, site for this care.
MeSH term(s)	Aged ; Female ; House Calls ; Humans ; Male ; Palliative Care ; Parkinson Disease/therapy ; Patient Care Team
Language	English
Publishing date	2019-10-14
Publishing country	China
Document type	Case Reports ; Journal Article
ZDB-ID	2828544-X
ISSN	2224-5839 ; 2224-5839
ISSN (online)	2224-5839
ISSN	2224-5839
DOI	10.21037/apm.2019.09.12
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Article ; Online: Acute Leukemia of Ambiguous Lineage in Elderly Patients - Analysis of Survival Using Surveillance Epidemiology and End Results-Medicare Database.

Guru Murthy, Guru Subramanian / Dhakal, Ishwori / Lee, Jeanette Y / Mehta, Paulette

Clinical lymphoma, myeloma & leukemia

2017 Volume 17, Issue 2, Page(s) 100–107

Abstract: Background: Acute leukemia of ambiguous lineage (ALAL) is a rare leukemia with sparse data availability about the survival and management strategies in elderly patients.: Methods: We used the Surveillance Epidemiology and End Results (SEER)-Medicare ... ...

Abstract	Background: Acute leukemia of ambiguous lineage (ALAL) is a rare leukemia with sparse data availability about the survival and management strategies in elderly patients. Methods: We used the Surveillance Epidemiology and End Results (SEER)-Medicare database to describe the overall survival (OS) and treatment pattern of elderly patients (age > 65 years) with ALAL. OS analysis was done using the Kaplan-Meier method, and its determinants were analyzed using the Cox proportional hazard regression method with a significant P < .05. Results: We included 705 patients with ALAL and a median age of 80 years. The 2-year OS was 16.4% for patients aged 66 to 70 years, 8.1% for patients aged 71 to 75 years, 5.5% for patients aged 76 to 80 years, and 3.7% for patients aged > 80 years (P < .01). Two-year OS did not significantly vary by race or gender. Among the study cohort, 151 patients received chemotherapy. Two-year OS was 17% in the chemotherapy group and 3% in the no-chemotherapy group (P < .001). On multivariate analysis, age less than 80 years (Age 66-70 years: hazard ratio [HR]; 0.66, 95% confidence interval [CI], 0.52-0.85; age 71-75 years: HR, 0.80; 95% CI, 0.65-0.99; age 76-80 years: HR, 0.80; 95% CI, 0.66-0.98; P = .004) and chemotherapy (HR, 0.51; 95% CI, 0.42-0.62; P = .001) significantly reduced the hazard for mortality. Conclusion: Our study suggests that the OS of elderly patients with ALAL remains poor. Although treatment improved the OS, only 21.5% of patients received therapy. The optimal choice of therapy needs to be determined by prospective studies.
MeSH term(s)	Acute Disease/epidemiology ; Acute Disease/mortality ; Aged ; Aged, 80 and over ; Continental Population Groups ; Female ; Humans ; Leukemia/epidemiology ; Leukemia/mortality ; Male ; Medicare ; Multivariate Analysis ; Retrospective Studies ; SEER Program ; Survival Analysis ; United States/epidemiology
Language	English
Publishing date	2017-02
Publishing country	United States
Document type	Journal Article
ZDB-ID	2540992-X
ISSN	2152-2669 ; 2152-2650
ISSN (online)	2152-2669
ISSN	2152-2650
DOI	10.1016/j.clml.2016.11.007
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Article: Peer Mentoring Program for Informal Caregivers of Homebound Individuals With Advanced Parkinson Disease (Share the Care): Protocol for a Single-Center, Crossover Pilot Study.

Fleisher, Jori E / Akram, Faizan / Lee, Jeanette / Klostermann, Ellen C / Hess, Serena P / Myrick, Erica / Levin, Melissa / Ouyang, Bichun / Wilkinson, Jayne / Hall, Deborah A / Chodosh, Joshua

JMIR research protocols

2022 Volume 11, Issue 5, Page(s) e34750

Abstract: Background: Homebound individuals with advanced Parkinson disease (PD) require intensive caregiving, the majority of which is provided by informal, family caregivers. PD caregiver strain is an independent risk factor for institutionalization. There are ... ...

Abstract	Background: Homebound individuals with advanced Parkinson disease (PD) require intensive caregiving, the majority of which is provided by informal, family caregivers. PD caregiver strain is an independent risk factor for institutionalization. There are currently no effective interventions to support advanced PD caregivers. Studies in other neurologic disorders, however, have demonstrated the potential for peer mentoring interventions to improve caregiver outcomes. In the context of an ongoing trial of interdisciplinary home visits, we designed and piloted a nested trial of caregiver peer mentoring for informal caregivers of individuals with advanced PD. Objective: The aim of this study was to test the feasibility of peer mentoring for caregivers of homebound individuals with advanced PD and to evaluate its effects on anxiety, depression, and caregiver strain. Methods: This was a single-center, 16-week pilot study of caregiver peer mentoring nested within a year-long controlled trial of interdisciplinary home visits. We recruited 34 experienced former or current family caregivers who completed structured mentor training. Caregivers enrolled in the larger interdisciplinary home visit trial consented to receive 16 weeks of weekly, one-to-one peer mentoring calls with a trained peer mentor. Weekly calls were guided by a curriculum on advanced PD management and caregiver support. Fidelity to and satisfaction with the intervention were gathered via biweekly study diaries. Anxiety, depression, and caregiver strain were measured pre- and postmentoring intervention at home visits 2 and 3. Results: Enrollment and peer-mentor training began in 2018, and 65 caregivers enrolled in the overarching trial. The majority of mentors and mentees were White, female spouses or partners of individuals with PD; mentors had a mean of 8.7 (SD 6.4) years of caregiving experience, and 33 mentors were matched with at least 1 mentee. Conclusions: This is the first study of caregiver peer mentoring in PD and may establish an adaptable and sustainable model for disease-specific caregiver interventions in PD and other neurodegenerative diseases. Trial registration: ClinicalTrials.gov NCT03189459; http://clinicaltrials.gov/ct2/show/NCT03189459. International registered report identifier (irrid): DERR1-10.2196/34750.
Language	English
Publishing date	2022-05-26
Publishing country	Canada
Document type	Journal Article
ZDB-ID	2719222-2
ISSN	1929-0748
ISSN	1929-0748
DOI	10.2196/34750
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