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  1. Article ; Online: Factors and scenarios influencing Arab Americans' preference for male versus female physicians.

    Ayyash, Mariam / Ayyash, Marwa / Hassan, Zakaa / Farhat, Ali / Rakine, Hanan / Blackwood, R Alexander

    Journal of the National Medical Association

    2022  Volume 114, Issue 2, Page(s) 199–206

    Abstract: As the Arab American community sees an increase in female physicians, knowledge of patients' perceptions is necessary to foster the physician-patient relationship. The objective of this study was to better understand physician gender preference among ... ...

    Abstract As the Arab American community sees an increase in female physicians, knowledge of patients' perceptions is necessary to foster the physician-patient relationship. The objective of this study was to better understand physician gender preference among Arab Americans when given a range of selected medical scenarios. An anonymous survey was distributed electronically through social media. The survey elicited gender preferences of Arab Americans given different scenarios. Data was collected from 325 participants. No physician gender preference was noted for 6 out of 7 scenarios with the exception for sensitive medical issues. Same-sex gender preference was noted in the cases of sensitive medical issues, routine medical visits, medical emergencies, and minor medical procedures. Predominant visitations to male physicians across specialties was found. The current study shows that although most Arab Americans expressed no preference for physician gender, the majority currently visit male physicians. The study highlights similarities to other populations in terms of same-sex physician gender preference when it comes to patient choices. Our study shows, however, that physicians' experience and empathy were leading criteria as opposed to gender or Arab identity when it came to physician selection by Arab American patients.
    MeSH term(s) Arabs ; Female ; Humans ; Male ; Physician-Patient Relations ; Physicians ; Physicians, Women ; United States ; Whites
    Language English
    Publishing date 2022-01-31
    Publishing country United States
    Document type Journal Article
    ZDB-ID 419737-9
    ISSN 1943-4693 ; 0027-9684
    ISSN (online) 1943-4693
    ISSN 0027-9684
    DOI 10.1016/j.jnma.2021.12.018
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Content generation for patient-reported outcome measures for retinal degeneration therapeutic trials.

    Lacy, Gabrielle D / Abalem, Maria Fernanda / Popova, Lilia T / Santos, Erin P / Yu, Gina / Rakine, Hanan Y / Rosenthal, Julie M / Ehrlich, Joshua R / Musch, David C / Jayasundera, K Thiran

    Ophthalmic genetics

    2020  Volume 41, Issue 4, Page(s) 315–324

    Abstract: Purpose: Generate content for a patient-reported outcome (PRO) measure for use in future clinical trials for inherited retinal degenerations.: Methods: Patients at the University of Michigan Kellogg Eye Center with a clinical diagnosis of inherited ... ...

    Abstract Purpose: Generate content for a patient-reported outcome (PRO) measure for use in future clinical trials for inherited retinal degenerations.
    Methods: Patients at the University of Michigan Kellogg Eye Center with a clinical diagnosis of inherited retinal degeneration with varying phenotypes were recruited for interviews. First, in-depth interviews were performed to solicit a wide range of patient experiences pertaining to visual function. Coders qualitatively analyzed the transcripts from these interviews using Atlas.ti software (Version 8.1.3 (522)) to draft questionnaire items. Next, the questionnaire was tested and refined based on participant feedback in cognitive interviews and administrator feedback in the pilot survey administration (pilot interviews).
    Results: A total of 55 participants with a clinical diagnosis of inherited retinal degeneration were interviewed throughout the three study phases: in-depth interviews (n = 26), cognitive interviews (n = 16), and pilot interviews (n = 13). Coded items were analyzed for frequency of occurrence and related themes, then organized into common domains. Within each domain, PRO items were drafted to address the functional limitations or adaptations experienced by patients.
    Conclusions: Items for a PRO measure have been drafted and evaluated for interpretability in the target inherited retinal degeneration patient population. Content validity for the items was established through a process of in-depth interviews, cognitive interviews, and pilot interviews.
    MeSH term(s) Adult ; Aged ; Clinical Trials as Topic/statistics & numerical data ; Female ; Humans ; Male ; Middle Aged ; Patient Reported Outcome Measures ; Pilot Projects ; Quality of Life ; Retinal Degeneration/therapy ; Surveys and Questionnaires
    Language English
    Publishing date 2020-06-22
    Publishing country England
    Document type Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1199279-7
    ISSN 1744-5094 ; 0167-6784 ; 1381-6810
    ISSN (online) 1744-5094
    ISSN 0167-6784 ; 1381-6810
    DOI 10.1080/13816810.2020.1776337
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  3. Article ; Online: The Michigan Retinal Degeneration Questionnaire: A Patient-Reported Outcome Instrument for Inherited Retinal Degenerations.

    Lacy, Gabrielle D / Abalem, Maria Fernanda / Andrews, Chris A / Popova, Lilia T / Santos, Erin P / Yu, Gina / Rakine, Hanan Y / Baig, Natasha / Ehrlich, Joshua R / Fahim, Abigail T / Branham, Kari H / Stelmack, Joan A / Swenor, Bonnielin K / Dagnelie, Gislin / Musch, David C / Jayasundera, K Thiran

    American journal of ophthalmology

    2020  Volume 222, Page(s) 60–68

    Abstract: Purpose: To create a psychometrically validated patient-reported outcome measure for inherited retinal degenerations.: Design: Qualitative and quantitative patient-reported outcome (PROs) questionnaire development using item response theory ... ...

    Abstract Purpose: To create a psychometrically validated patient-reported outcome measure for inherited retinal degenerations.
    Design: Qualitative and quantitative patient-reported outcome (PROs) questionnaire development using item response theory validation.
    Methods: One hundred twenty-eight patients with a diagnosis of an inherited retinal degeneration at the Kellogg Eye Center (University of Michigan) were recruited and administered a 166-item questionnaire comprising 7 expert-defined domains. The questionnaire was re-administered 4-16 days later to a subset of 25 participants to assess test-retest variability. Graded response models were fit by Cai's Metropolis-Hastings Robbins-Monro algorithm using the R (version 3.6.3) package mirt. Model data were fit to assess questionnaire dimensionality, to estimate item information, and to score participants. Poorly functioning items were removed, and the model was refit to create the final questionnaire.
    Results: The psychometrically validated PROs measure was reduced to a 59-item questionnaire measuring 7 unidimesnional domains: central vision, color vision, contrast sensitivity, scotopic function, photopic peripheral vision, mesopic peripheral vision, and photosensitivity. A total of 39 items were removed because of poor factor loading, low item information, poor person-ability differentiation, or high item-level interdependence. This novel questionnaire produces a reliable domain score for person ability that does not show significant test-retest variability across repeated administration.
    Conclusions: The final PRO questionnaire, known as the Michigan Retinal Degeneration Questionnaire, is psychometrically validated and available for use in the evaluation of patients with inherited retinal degenerations.
    MeSH term(s) Activities of Daily Living ; Adolescent ; Adult ; Aged ; Aged, 80 and over ; Female ; Humans ; Incidence ; Male ; Michigan/epidemiology ; Middle Aged ; Patient Reported Outcome Measures ; Psychometrics/methods ; Quality of Life ; Retinal Degeneration/diagnosis ; Retinal Degeneration/epidemiology ; Retinal Degeneration/physiopathology ; Retrospective Studies ; Surveys and Questionnaires ; Young Adult
    Language English
    Publishing date 2020-08-26
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't
    ZDB-ID 80030-2
    ISSN 1879-1891 ; 0002-9394
    ISSN (online) 1879-1891
    ISSN 0002-9394
    DOI 10.1016/j.ajo.2020.08.032
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  4. Article ; Online: Characteristics and distribution of obesity in the Arab-American population of southeastern Michigan.

    Kamatham, Saivaishnavi / Trak, Joseph / Alzouhayli, Suma / Fehmi, Ziad / Rahoui, Nabil / Sulieman, Noor / Khoury, Zaina / Fehmi, Omar / Rakine, Hanan / El-Masri, Dana / Ujayli, Deema / Elhagehassan, Hanin / Naaman, James / Almsaddi, Firas / Salloum, Michael / Farooquee, Iqra / Syed, Nadia / Kim, Seongho / Lattouf, Omar /
    Cote, Michele L / Ali-Fehmi, Rouba

    BMC public health

    2020  Volume 20, Issue 1, Page(s) 1685

    Abstract: Background: Arab-Americans constitute ~ 5% of Michigan's population. Estimates of obesity in Arab-Americans are not up-to-date. We aim to describe the distribution of and factors associated with obesity in an Arab-American population in Southeastern ... ...

    Abstract Background: Arab-Americans constitute ~ 5% of Michigan's population. Estimates of obesity in Arab-Americans are not up-to-date. We aim to describe the distribution of and factors associated with obesity in an Arab-American population in Southeastern Michigan (SE MI).
    Methods: Retrospective medical record review identified n = 2363 Arab-American patients seeking care at an Arab-American serving clinic in SE MI, located in a city which is home to a large proportion of Arab-Americans in the United States (US). Body mass index (BMI) was the primary outcome of interest. Distribution of BMI was described using percentages, and logistic regression models were constructed to examine the association between obesity, other comorbid conditions and health behaviors. This cohort was compared to Michigan's Behavioral Risk Factor Surveillance System (BRFSS) data from 2018 (n = 9589) and to a cohort seeking care between 2013 and 2019 from a free clinic (FC) located in another city in SE MI (n = 1033).
    Results: Of the 2363 Arab-American patients, those who were older or with HTN, DM or HLD had a higher prevalence of obesity than patients who were younger or without these comorbidities (all p-value < 0.001). Patients with HTN were 3 times as likely to be obese than those without HTN (95% CI: 2.41-3.93; p < 0.001). Similarly, the odds of being obese were 2.5 times higher if the patient was diabetic (95% CI: 1.92-3.16; p < 0.001) and 2.2 times higher if the patient had HLD (95% CI: 1.75-2.83; p < 0.001). There was no significant difference in obesity rates between Arab-Americans (31%) and the BRFSS population (32.6%). Compared to Arab-Americans, patients seen at the FC had a higher obesity rate (52.6%; p < 0.001) as well as significantly higher rates of HTN, DM and HLD (all p < 0.001).
    Conclusion: Overall obesity rates in Arab-Americans were comparable to the population-based BRFSS rates, and lower than the patients seen at the FC. Further studies are required to understand the impact of obesity and the association of comorbidities in Arab-Americans.
    MeSH term(s) Arabs ; Diabetes Mellitus/epidemiology ; Humans ; Michigan/epidemiology ; Obesity/epidemiology ; Retrospective Studies ; United States
    Language English
    Publishing date 2020-11-10
    Publishing country England
    Document type Journal Article
    ISSN 1471-2458
    ISSN (online) 1471-2458
    DOI 10.1186/s12889-020-09782-3
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  5. Article ; Online: The Michigan Vision-Related Anxiety Questionnaire: A Psychosocial Outcomes Measure for Inherited Retinal Degenerations.

    Lacy, Gabrielle D / Abalem, Maria Fernanda / Andrews, Chris A / Abuzaitoun, Rebhi / Popova, Lilia T / Santos, Erin P / Yu, Gina / Rakine, Hanan Y / Baig, Natasha / Ehrlich, Joshua R / Fahim, Abigail T / Branham, Kari H / Swenor, Bonnielin K / Lichter, Paul R / Dagnelie, Gislin / Stelmack, Joan A / Musch, David C / Jayasundera, K Thiran

    American journal of ophthalmology

    2020  Volume 225, Page(s) 137–146

    Abstract: Objective: We sought to construct and validate a patient-reported outcome measure for screening and monitoring vision-related anxiety in patients with inherited retinal degenerations.: Design: Item-response theory and graded response modeling to ... ...

    Abstract Objective: We sought to construct and validate a patient-reported outcome measure for screening and monitoring vision-related anxiety in patients with inherited retinal degenerations.
    Design: Item-response theory and graded response modeling to quantitatively validate questionnaire items generated from qualitative interviews and patient feedback.
    Methods: Patients at the Kellogg Eye Center (University of Michigan, Ann Arbor, Michigan, USA) with a clinical diagnosis of an inherited retinal degeneration (n = 128) participated in an interviewer-administered questionnaire. The questionnaire consisted of 166 items, 26 of which pertained to concepts of "worry" and "anxiety." The subset of vision-related anxiety questions was analyzed by a graded response model using the Cai Metropolis-Hastings Robbins-Monro algorithm in the R software mirt package. Item reduction was performed based on item fit, item information, and item discriminability. To assess test-retest variability, 25 participants completed the questionnaire a second time 4 to 16 days later.
    Results: The final questionnaire consisted of 14 items divided into 2 unidimensional domains: rod function anxiety and cone function anxiety. The questionnaire exhibited convergent validity with the Patient Health Questionnaire for symptoms of depression and anxiety. This vision-related anxiety questionnaire has high marginal reliability (0.81 for rod-function anxiety, 0.83 for cone-function anxiety) and exhibits minimal test-retest variability (ρ = 0.81 [0.64-0.91] for rod-function anxiety and ρ = 0.83 [0.68-0.92] for cone-function anxiety).
    Conclusions: The Michigan Vision-Related Anxiety Questionnaire is a psychometrically validated 14-item patient-reported outcome measure to be used as a psychosocial screening and monitoring tool for patients with inherited retinal degenerations. It can be used in therapeutic clinical trials for measuring the benefit of an investigational therapy on a patient's vision-related anxiety.
    MeSH term(s) Adolescent ; Adult ; Aged ; Aged, 80 and over ; Anxiety Disorders/diagnosis ; Anxiety Disorders/psychology ; Female ; Humans ; Male ; Michigan ; Middle Aged ; Patient Reported Outcome Measures ; Psychometrics ; Retinal Degeneration/diagnosis ; Retinal Degeneration/psychology ; Sickness Impact Profile ; Surveys and Questionnaires ; Vision Disorders/diagnosis ; Vision Disorders/psychology ; Visual Acuity/physiology ; Young Adult
    Language English
    Publishing date 2020-12-09
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Validation Study
    ZDB-ID 80030-2
    ISSN 1879-1891 ; 0002-9394
    ISSN (online) 1879-1891
    ISSN 0002-9394
    DOI 10.1016/j.ajo.2020.12.001
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