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  1. Article ; Online: Recognising Illness in a Loved One: The Obligation to Speak, the Pull of Silence.

    Robins-Browne, Kate

    Narrative inquiry in bioethics

    2018  Volume 8, Issue 1, Page(s) 25–28

    MeSH term(s) Communication ; Friends ; Humans ; Moral Obligations ; Neurodegenerative Diseases/diagnosis ; Physician-Patient Relations ; Physicians ; Recognition (Psychology)
    Language English
    Publishing date 2018-02-13
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2632728-4
    ISSN 2157-1740 ; 2157-1732
    ISSN (online) 2157-1740
    ISSN 2157-1732
    DOI 10.1353/nib.2018.0011
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article: Why we need to acknowledge the multiple aims of advance care planning.

    Robins-Browne, Kate

    The Hastings Center report

    2014  Volume 44, Issue 2, Page(s) 3

    MeSH term(s) Advance Care Planning/organization & administration ; Decision Making ; Directive Counseling/organization & administration ; Humans ; Patient Participation/economics ; Patient Participation/methods ; Patient Protection and Affordable Care Act ; Patient-Centered Care/economics ; Patient-Centered Care/methods ; Terminal Care/organization & administration
    Language English
    Publishing date 2014-03
    Publishing country United States
    Document type Comment ; Journal Article
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.272
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Mental health symptoms in Australian general practitioners during the COVID-19 pandemic.

    Ng, Irene / Robins-Browne, Kate / Putland, Mark / Pascoe, Amy / Paul, Eldho / Willis, Karen / Smallwood, Natasha

    Australian journal of primary health

    2022  Volume 28, Issue 5, Page(s) 387–398

    Abstract: Background: General practitioners (GPs) play a central role during the COVID-19 pandemic, and yet awareness of their mental health is limited.: Methods: A nationwide online survey of self-identified frontline healthcare workers was conducted between ... ...

    Abstract Background: General practitioners (GPs) play a central role during the COVID-19 pandemic, and yet awareness of their mental health is limited.
    Methods: A nationwide online survey of self-identified frontline healthcare workers was conducted between 27 August and 23 October 2020. Participants were recruited through health and professional organisations, colleges, universities, government contacts, and media. A subset of the findings on GPs and hospital medical staff (HMS) was used for this study.
    Results: Of 9518 responses, there were 389 (4%) GPs and 1966 (21%) HMS. Compared with HMS, GPs received significantly less training on personal protective equipment usage or care for COVID-19 patients, and less support or communication within their workplace. GPs were significantly more concerned about household income, disease transmission to family and being blamed by colleagues if they became infected, all of which were associated with worse psychological outcomes. Significantly more GPs reported burnout, and experienced moderate-to-severe emotional exhaustion than HMS. Both groups used similar coping strategies, except fewer GPs than HMS used digital health applications or increased alcohol consumption. Less than 25% of either group sought professional help.
    Conclusions: GPs are vital in our healthcare systems, yet face unique workplace challenges and mental health stressors during the pandemic. Targeted workplace and psychological support is essential to protect wellbeing among the primary care workforce.
    MeSH term(s) Australia/epidemiology ; COVID-19 ; General Practitioners/psychology ; Health Personnel/psychology ; Humans ; Mental Health ; Pandemics
    Language English
    Publishing date 2022-07-28
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 2566332-X
    ISSN 1836-7399 ; 1448-7527
    ISSN (online) 1836-7399
    ISSN 1448-7527
    DOI 10.1071/PY21308
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  4. Article ; Online: Interventions to support the mental health and well-being of front-line healthcare workers in hospitals during pandemics: an evidence review and synthesis.

    Robins-Browne, Kate / Lewis, Matthew / Burchill, Luke James / Gilbert, Cecily / Johnson, Caroline / O'Donnell, Meaghan / Kotevski, Aneta / Poonian, Jasmine / Palmer, Victoria J

    BMJ open

    2022  Volume 12, Issue 11, Page(s) e061317

    Abstract: Objective: Pandemics negatively impact healthcare workers' (HCW's) mental health and well-being causing additional feelings of anxiety, depression, moral distress and post-traumatic stress. A comprehensive review and evidence synthesis of HCW's mental ... ...

    Abstract Objective: Pandemics negatively impact healthcare workers' (HCW's) mental health and well-being causing additional feelings of anxiety, depression, moral distress and post-traumatic stress. A comprehensive review and evidence synthesis of HCW's mental health and well-being interventions through pandemics reporting mental health outcomes was conducted addressing two questions: (1) What mental health support interventions have been reported in recent pandemics, and have they been effective in improving the mental health and well-being of HCWs? (2) Have any mobile apps been designed and implemented to support HCWs' mental health and well-being during pandemics?
    Design: A narrative evidence synthesis was conducted using Cochrane criteria for synthesising and presenting findings when systematic review and pooling data for statistical analysis are not suitable due to the heterogeneity of the studies.
    Data sources: Evidence summary resources, bibliographic databases, grey literature sources, clinical trial registries and protocol registries were searched.
    Eligibility criteria: Subject heading terms and keywords covering three key concepts were searched: SARS-CoV-2 coronavirus (or similar infectious diseases) epidemics, health workforce and mental health support interventions. Searches were limited to English-language items published from 1 January 2000 to 14 June 2022. No publication-type limit was used.
    Data extraction and synthesis: Two authors determined eligibility and extracted data from identified manuscripts. Data was synthesised into tables and refined by coauthors.
    Results: 2694 studies were identified and 27 papers were included. Interventions were directed at individuals and/or organisations and most were COVID-19 focused. Interventions had some positive impacts on HCW's mental health and well-being, but variable study quality, low sample sizes and lack of control conditions were limitations. Two mobile apps were identified with mixed outcomes.
    Conclusion: HCW interventions were rapidly designed and implemented with few comprehensively described or evaluated. Tailored interventions that respond to HCWs' needs using experience co-design for mental health and well-being are required with process and outcome evaluation.
    MeSH term(s) Humans ; Pandemics ; Mental Health ; SARS-CoV-2 ; COVID-19/epidemiology ; Health Personnel/psychology ; Hospitals
    Language English
    Publishing date 2022-11-07
    Publishing country England
    Document type Review ; Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2599832-8
    ISSN 2044-6055 ; 2044-6055
    ISSN (online) 2044-6055
    ISSN 2044-6055
    DOI 10.1136/bmjopen-2022-061317
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  5. Article: Rapid Design and Delivery of an Experience-Based Co-designed Mobile App to Support the Mental Health Needs of Health Care Workers Affected by the COVID-19 Pandemic: Impact Evaluation Protocol.

    Lewis, Matthew / Palmer, Victoria J / Kotevski, Aneta / Densley, Konstancja / O'Donnell, Meaghan L / Johnson, Caroline / Wohlgezogen, Franz / Gray, Kathleen / Robins-Browne, Kate / Burchill, Luke

    JMIR research protocols

    2021  Volume 10, Issue 3, Page(s) e26168

    Abstract: Background: The COVID-19 pandemic has highlighted the importance of health care workers' mental health and well-being for the successful function of the health care system. Few targeted digital tools exist to support the mental health of hospital-based ... ...

    Abstract Background: The COVID-19 pandemic has highlighted the importance of health care workers' mental health and well-being for the successful function of the health care system. Few targeted digital tools exist to support the mental health of hospital-based health care workers, and none of them appear to have been led and co-designed by health care workers.
    Objective: RMHive is being led and developed by health care workers using experience-based co-design (EBCD) processes as a mobile app to support the mental health challenges posed by the COVID-19 pandemic to health care workers. We present a protocol for the impact evaluation for the rapid design and delivery of the RMHive mobile app.
    Methods: The impact evaluation will adopt a mixed methods design. Qualitative data from photo interviews undertaken with up to 30 health care workers and semistructured interviews conducted with up to 30 governance stakeholders will be integrated with qualitative and quantitative user analytics data and user-generated demographic and mental health data entered into the app. Analyses will address three evaluation questions related to engagement with the mobile app, implementation and integration of the app, and the impact of the app on individual mental health outcomes. The design and development will be described using the Mobile Health Evidence Reporting and Assessment guidelines. Implementation of the app will be evaluated using normalization process theory to analyze qualitative data from interviews combined with text and video analysis from the semistructured interviews. Mental health impacts will be assessed using the total score of the 4-item Patient Health Questionnaire (PHQ4) and subscale scores for the 2-item Patient Health Questionnaire for depression and the 2-item Generalized Anxiety Scale for anxiety. The PHQ4 will be completed at baseline and at 14 and 28 days.
    Results: The anticipated average use period of the app is 30 days. The rapid design will occur over four months using EBCD to collect qualitative data and develop app content. The impact evaluation will monitor outcome data for up to 12 weeks following hospital-wide release of the minimal viable product release. The study received funding and ethics approvals in June 2020. Outcome data is expected to be available in March 2021, and the impact evaluation is expected to be published mid-2021.
    Conclusions: The impact evaluation will examine the rapid design, development, and implementation of the RMHive app and its impact on mental health outcomes for health care workers. Findings from the impact evaluation will provide guidance for the integration of EBCD in rapid design and implementation processes. The evaluation will also inform future development and rollout of the app to support the mental health needs of hospital-based health care workers more widely.
    International registered report identifier (irrid): DERR1-10.2196/26168.
    Language English
    Publishing date 2021-03-09
    Publishing country Canada
    Document type Journal Article
    ZDB-ID 2719222-2
    ISSN 1929-0748
    ISSN 1929-0748
    DOI 10.2196/26168
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article: The Role of Relational Knowing in Advance Care Planning.

    Robins-Browne, Kate / Hegarty, Kelsey / Guillmen, Marilys / Komesaroff, Paul / Palmer, Victoria

    The Journal of clinical ethics

    2017  Volume 28, Issue 2, Page(s) 122–134

    Abstract: Medical decision making when a patient cannot participate is complicated by the question of whose voice should be heard. The most common answer to this question is that "autonomy" is paramount, and therefore it is the voice of the unwell person that ... ...

    Abstract Medical decision making when a patient cannot participate is complicated by the question of whose voice should be heard. The most common answer to this question is that "autonomy" is paramount, and therefore it is the voice of the unwell person that should be given priority. Advance care planning processes and practices seek to capture this sentiment and to allow treatment preferences to be documented and decision makers to be nominated. Despite good intentions, advance care planning is often deficient because it is unable to facilitate a relational approach to decision making in cases when the patient's competence is reduced. In this article we present findings from a study of the ways in which older people and their significant others understand decision making in such circumstances. Critical to the participants' understanding was the emergent concept of "relational knowing," a concept that is poorly articulated in the advance care planning literature. Our findings suggest that the dominant understanding of decision making in conditions of impaired competence is incomplete and obscures much of what matters to people. We conclude that, having recognized a broader set of ethical concerns, it is necessary to develop a relational and narrative based approach that applies in appropriate settings.
    Language English
    Publishing date 2017
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1122655-9
    ISSN 1046-7890
    ISSN 1046-7890
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Rapid Design and Delivery of an Experience-Based Co-designed Mobile App to Support the Mental Health Needs of Health Care Workers Affected by the COVID-19 Pandemic

    Lewis, Matthew / Palmer, Victoria J / Kotevski, Aneta / Densley, Konstancja / O'Donnell, Meaghan L / Johnson, Caroline / Wohlgezogen, Franz / Gray, Kathleen / Robins-Browne, Kate / Burchill, Luke

    JMIR Research Protocols, Vol 10, Iss 3, p e

    Impact Evaluation Protocol

    2021  Volume 26168

    Abstract: BackgroundThe COVID-19 pandemic has highlighted the importance of health care workers’ mental health and well-being for the successful function of the health care system. Few targeted digital tools exist to support the mental health of hospital-based ... ...

    Abstract BackgroundThe COVID-19 pandemic has highlighted the importance of health care workers’ mental health and well-being for the successful function of the health care system. Few targeted digital tools exist to support the mental health of hospital-based health care workers, and none of them appear to have been led and co-designed by health care workers. ObjectiveRMHive is being led and developed by health care workers using experience-based co-design (EBCD) processes as a mobile app to support the mental health challenges posed by the COVID-19 pandemic to health care workers. We present a protocol for the impact evaluation for the rapid design and delivery of the RMHive mobile app. MethodsThe impact evaluation will adopt a mixed methods design. Qualitative data from photo interviews undertaken with up to 30 health care workers and semistructured interviews conducted with up to 30 governance stakeholders will be integrated with qualitative and quantitative user analytics data and user-generated demographic and mental health data entered into the app. Analyses will address three evaluation questions related to engagement with the mobile app, implementation and integration of the app, and the impact of the app on individual mental health outcomes. The design and development will be described using the Mobile Health Evidence Reporting and Assessment guidelines. Implementation of the app will be evaluated using normalization process theory to analyze qualitative data from interviews combined with text and video analysis from the semistructured interviews. Mental health impacts will be assessed using the total score of the 4-item Patient Health Questionnaire (PHQ4) and subscale scores for the 2-item Patient Health Questionnaire for depression and the 2-item Generalized Anxiety Scale for anxiety. The PHQ4 will be completed at baseline and at 14 and 28 days. ResultsThe anticipated average use period of the app is 30 days. The rapid design will occur over four months using EBCD to collect qualitative data and develop app ...
    Keywords Medicine ; R ; Computer applications to medicine. Medical informatics ; R858-859.7
    Subject code 360
    Language English
    Publishing date 2021-03-01T00:00:00Z
    Publisher JMIR Publications
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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