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  1. Article ; Online: Reflections on Goal-Concordant Care: A Christmas Story.

    Sanders, Justin J

    Journal of palliative medicine

    2021  Volume 24, Issue 3, Page(s) 329–330

    MeSH term(s) Goals ; Humans ; Motivation
    Language English
    Publishing date 2021-01-08
    Publishing country United States
    Document type Editorial
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2020.0782
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    Zs.A 5440: Show issues Location:
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  2. Article ; Online: Palliative Care for Patients With Cancer: ASCO Guideline Clinical Insights.

    Ferrell, Betty R / Firn, Janice I / Temin, Sarah / Sanders, Justin J

    JCO oncology practice

    2024  , Page(s) OP2400225

    Language English
    Publishing date 2024-05-15
    Publishing country United States
    Document type Journal Article
    ZDB-ID 3028198-2
    ISSN 2688-1535 ; 2688-1527
    ISSN (online) 2688-1535
    ISSN 2688-1527
    DOI 10.1200/OP.24.00225
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  3. Article ; Online: Discussing prognosis and what matters most for people with serious illness.

    Sanders, Justin J / Manson, Leigh / Constien, Deborah / Downar, James

    BMJ (Clinical research ed.)

    2022  Volume 376, Page(s) e067572

    MeSH term(s) Chronic Disease ; Communication ; Ethnicity ; Healthcare Disparities ; Humans ; Neoplasms ; Practice Patterns, Physicians'
    Language English
    Publishing date 2022-02-28
    Publishing country England
    Document type Journal Article
    ZDB-ID 1362901-3
    ISSN 1756-1833 ; 0959-8154 ; 0959-8146 ; 0959-8138 ; 0959-535X ; 1759-2151
    ISSN (online) 1756-1833
    ISSN 0959-8154 ; 0959-8146 ; 0959-8138 ; 0959-535X ; 1759-2151
    DOI 10.1136/bmj-2021-067572
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  4. Article ; Online: When treatment algorithms fail: A response to the development of a nomogram to determine the frequency of elevated risk for non-medical opioid use in cancer patients.

    Jones, Katie Fitzgerald / Sager, Zachary / Leiter, Richard E / Sanders, Justin J

    Palliative & supportive care

    2022  Volume 19, Issue 5, Page(s) 636–637

    MeSH term(s) Algorithms ; Analgesics, Opioid ; Humans ; Neoplasms/complications ; Neoplasms/drug therapy ; Nomograms ; Prognosis ; ROC Curve
    Chemical Substances Analgesics, Opioid
    Language English
    Publishing date 2022-06-01
    Publishing country England
    Document type Letter ; Research Support, N.I.H., Extramural
    ZDB-ID 2454009-2
    ISSN 1478-9523 ; 1478-9515
    ISSN (online) 1478-9523
    ISSN 1478-9515
    DOI 10.1017/S1478951521001255
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  5. Article ; Online: Communication Skills: Delivering Bad News, Conducting a Goals of Care Family Meeting, and Advance Care Planning.

    Baran, Caitlin N / Sanders, Justin J

    Primary care

    2019  Volume 46, Issue 3, Page(s) 353–372

    Abstract: Primary care clinicians face difficult conversations with patients across the life cycle. As clinicians care for patients in different health states, the focus of these challenging conversations shifts. Even the most skilled clinicians struggle to find ... ...

    Abstract Primary care clinicians face difficult conversations with patients across the life cycle. As clinicians care for patients in different health states, the focus of these challenging conversations shifts. Even the most skilled clinicians struggle to find the right words at the right time in these scenarios. This article focuses on communication skills to make difficult conversations easier, whether through assigning a health care proxy, breaking bad news, having conversations about serious illness, or leading a family meeting to discuss goals of care.
    MeSH term(s) Advance Care Planning/organization & administration ; Communication ; Family ; Humans ; Patient Care Planning ; Physician-Patient Relations ; Primary Health Care/organization & administration ; Prognosis ; Truth Disclosure
    Language English
    Publishing date 2019-06-10
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 604005-6
    ISSN 1558-299X ; 0095-4543
    ISSN (online) 1558-299X
    ISSN 0095-4543
    DOI 10.1016/j.pop.2019.05.003
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  6. Article ; Online: "Find Out What They Lack, Try to Provide": A Qualitative Investigation of Palliative Care Services Adapted to Local Need in a Low-Resource Setting.

    Taylor, Grace H / Krakauer, Eric L / Sanders, Justin J

    Journal of palliative medicine

    2020  Volume 23, Issue 6, Page(s) 792–800

    Abstract: Background: ...

    Abstract Background:
    MeSH term(s) Chronic Disease ; Delivery of Health Care ; Humans ; Neoplasms ; Palliative Care ; Social Support
    Language English
    Publishing date 2020-01-07
    Publishing country United States
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2019.0406
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  7. Article ; Online: Improving serious illness communication: a qualitative study of clinical culture.

    Paladino, Joanna / Sanders, Justin J / Fromme, Erik K / Block, Susan / Jacobsen, Juliet C / Jackson, Vicki A / Ritchie, Christine S / Mitchell, Suzanne

    BMC palliative care

    2023  Volume 22, Issue 1, Page(s) 104

    Abstract: Objective: Communication about patients' values, goals, and prognosis in serious illness (serious illness communication) is a cornerstone of person-centered care yet difficult to implement in practice. As part of Serious Illness Care Program ... ...

    Abstract Objective: Communication about patients' values, goals, and prognosis in serious illness (serious illness communication) is a cornerstone of person-centered care yet difficult to implement in practice. As part of Serious Illness Care Program implementation in five health systems, we studied the clinical culture-related factors that supported or impeded improvement in serious illness conversations.
    Methods: Qualitative analysis of semi-structured interviews of clinical leaders, implementation teams, and frontline champions.
    Results: We completed 30 interviews across palliative care, oncology, primary care, and hospital medicine. Participants identified four culture-related domains that influenced serious illness communication improvement: (1) clinical paradigms; (2) interprofessional empowerment; (3) perceived conversation impact; (4) practice norms. Changes in clinicians' beliefs, attitudes, and behaviors in these domains supported values and goals conversations, including: shifting paradigms about serious illness communication from 'end-of-life planning' to 'knowing and honoring what matters most to patients;' improvements in psychological safety that empowered advanced practice clinicians, nurses and social workers to take expanded roles; experiencing benefits of earlier values and goals conversations; shifting from avoidant norms to integration norms in which earlier serious illness discussions became part of routine processes. Culture-related inhibitors included: beliefs that conversations are about dying or withdrawing care; attitudes that serious illness communication is the physician's job; discomfort managing emotions; lack of reliable processes.
    Conclusions: Aspects of clinical culture, such as paradigms about serious illness communication and inter-professional empowerment, are linked to successful adoption of serious illness communication. Further research is warranted to identify effective strategies to enhance clinical culture and drive clinician practice change.
    MeSH term(s) Humans ; Communication ; Qualitative Research ; Death ; Emotions ; Hospice and Palliative Care Nursing
    Language English
    Publishing date 2023-07-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 2091556-1
    ISSN 1472-684X ; 1472-684X
    ISSN (online) 1472-684X
    ISSN 1472-684X
    DOI 10.1186/s12904-023-01229-x
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  8. Article ; Online: A Pilot Study of the Serious Illness Conversation Guide in a Dialysis Clinic.

    Mandel, Ernest I / Maloney, Francine L / Pertsch, Nathan J / Gass, Jonathon D / Sanders, Justin J / Bernacki, Rachelle E / Block, Susan D

    The American journal of hospice & palliative care

    2023  Volume 40, Issue 10, Page(s) 1106–1113

    Abstract: Clinician-led conversations about future care priorities occur infrequently with end-stage renal disease (ESRD) patients on dialysis. This was a pilot study of structured serious illness conversations using the Serious Illness Conversation Guide (SICG) ... ...

    Abstract Clinician-led conversations about future care priorities occur infrequently with end-stage renal disease (ESRD) patients on dialysis. This was a pilot study of structured serious illness conversations using the Serious Illness Conversation Guide (SICG) in a single dialysis clinic to assess acceptability of the approach and explore conversation themes and potential outcomes among patients with ESRD. Twelve individuals with ESRD on dialysis from a single outpatient dialysis clinic participated in this study. Participants completed a baseline demographics survey, engaged in a clinician-led structured serious illness conversation, and completed an acceptability questionnaire. Conversations were recorded, transcribed and thematically analyzed. The average age of participants was 68.8 years. The conversations averaged 20:53 in length. Ten participants (83%) felt that the conversation was held at the right time in their clinical course and eleven participants (91%) felt that it was worthwhile. Most participants (73%) reported neutral feelings about clinician use of a printed guide. Eleven participants (91%) reported no change in anxiety about their illness following the conversation, and five participants (42%) reported that the conversation increased their hopefulness about future quality of life. Thematic analysis revealed common perspectives on dialysis including that participants view in-center hemodialysis as temporary, compartmentalize their kidney disease, perceive narrowed life experiences and opportunities, and believe dialysis is their only option. This pilot study suggests that clinician-led structured serious illness conversations may be acceptable to patients with ESRD on dialysis. The themes identified can inform future serious illness conversations with dialysis patients.
    MeSH term(s) Humans ; Aged ; Pilot Projects ; Renal Dialysis ; Quality of Life ; Communication ; Kidney Failure, Chronic/therapy ; Critical Illness
    Language English
    Publishing date 2023-01-28
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1074344-3
    ISSN 1938-2715 ; 1049-9091
    ISSN (online) 1938-2715
    ISSN 1049-9091
    DOI 10.1177/10499091221147303
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    Zs.B 3090: Show issues Location:
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  9. Article ; Online: Methodological innovations to strengthen evidence-based serious illness communication.

    Sanders, Justin J / Blanch-Hartigan, Danielle / Ericson, Jonathan / Tarbi, Elise / Rizzo, Donna / Gramling, Robert / van Vliet, Liesbeth

    Patient education and counseling

    2023  Volume 114, Page(s) 107790

    Abstract: Background/objective: A growing population of those affected by serious illness, prognostic uncertainty, patient diversity, and healthcare digitalization pose challenges for the future of serious illness communication. Yet, there is paucity of evidence ... ...

    Abstract Background/objective: A growing population of those affected by serious illness, prognostic uncertainty, patient diversity, and healthcare digitalization pose challenges for the future of serious illness communication. Yet, there is paucity of evidence to support serious illness communication behaviors among clinicians. Herein, we propose three methodological innovations to advance the basic science of serious illness communication.
    Results: First, advanced computation techniques - e.g. machine-learning techniques and natural language processing - offer the possibility to measure the characteristics and complex patterns of audible serious illness communication in large datasets. Second, immersive technologies - e.g., virtual- and augmented reality - allow for experimentally manipulating and testing the effects of specific communication strategies, and interactional and environmental aspects of serious illness communication. Third, digital-health technologies - e.g., shared notes and videoconferences - can be used to unobtrusively observe and manipulate communication, and compare in-person to digitally-mediated communication elements and effects. Immersive and digital health technologies allow integration of physiological measurement (e.g. synchrony or gaze) that may advance our understanding of patient experience.
    Conclusion/practice implications: New technologies and measurement approaches, while imperfect, will help advance our understanding of the epidemiology and quality of serious illness communication in an evolving healthcare environment.
    MeSH term(s) Humans ; Communication ; Delivery of Health Care
    Language English
    Publishing date 2023-05-09
    Publishing country Ireland
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 605590-4
    ISSN 1873-5134 ; 0738-3991
    ISSN (online) 1873-5134
    ISSN 0738-3991
    DOI 10.1016/j.pec.2023.107790
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  10. Article ; Online: Communication Strategies for Sharing Prognostic Information With Patients: Beyond Survival Statistics.

    Paladino, Joanna / Lakin, Joshua R / Sanders, Justin J

    JAMA

    2019  Volume 322, Issue 14, Page(s) 1345–1346

    Language English
    Publishing date 2019-10-10
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2958-0
    ISSN 1538-3598 ; 0254-9077 ; 0002-9955 ; 0098-7484
    ISSN (online) 1538-3598
    ISSN 0254-9077 ; 0002-9955 ; 0098-7484
    DOI 10.1001/jama.2019.11533
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