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  1. AU="Scharer, Mirah"
  2. AU="Freeman, Andrew M"
  3. AU="Chalkley, E"
  4. AU="Wong, Xianrong"
  5. AU="Akamatsu, Akira"
  6. AU="Richardson, Carrie"
  7. AU="Subudhi, Amit K"
  8. AU="Rebecca Moore"
  9. AU="Pagali, Sandeep"
  10. AU="Sun, Lova"
  11. AU="Etienne, Z. B."

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  1. Artikel: Community-based participatory research to improve alumni transition from an intensive research training program for historically underrepresented undergraduates.

    Raymaker, Dora M / Scharer, Mirah / Miller, Rebecca / Widmer, Ashley / Posadas, Dhale Larsen / Keller, Thomas E

    Journal of women and minorities in science and engineering

    2023  Band 29, Heft 4, Seite(n) 29–54

    Abstract: Various initiatives for undergraduates from historically underrepresented backgrounds attempt to address disparities in the completion of science, technology, engineering, mathematics (STEM) degrees and the pursuit of careers in scientific research. ... ...

    Abstract Various initiatives for undergraduates from historically underrepresented backgrounds attempt to address disparities in the completion of science, technology, engineering, mathematics (STEM) degrees and the pursuit of careers in scientific research. Intensive research training programs for historically underrepresented undergraduates may include multiple components, such as authentic research experiences, advising and mentoring, supplemental curriculum, and financial assistance. Following comprehensive support during program participation, the post-program transition may present a vulnerable period in students' career trajectories. This study used a community-based participatory research (CBPR) approach to investigate the experiences of students completing an intensive research training program to understand and develop recommendations for the post-program transition process. As a team of program alumni, academic researchers, and program staff, we developed, conducted, and analyzed semi-structured, open-ended interviews of recent program alumni and students approaching program completion (n=11; 55% female, 55% non-White). Applying thematic analysis at semantic and latent levels through a critical paradigm revealed the transition as a bittersweet experience, with feelings of pride and accomplishment mixed with sadness and anxiety. Findings also suggested the transition is described as a narrative influenced by preceding program experiences and adaptations. Financial concerns were prominent, and specific barriers and facilitators of successful transition included: aligned mentoring, negotiation of continued research employment, consideration of culture, planning for next steps, and engagement with the scholar community. Collaboratively, we developed recommendations for program improvements potentially relevant to similarly intensive STEM diversity programs. We also highlight the value of a CBPR approach that includes students equitably as co-researchers in program research and evaluation.
    Sprache Englisch
    Erscheinungsdatum 2023-08-09
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ISSN 1072-8325
    ISSN 1072-8325
    DOI 10.1615/jwomenminorscieneng.2022043449
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  2. Artikel ; Online: Psychometric testing of a set of patient-reported instruments to assess healthcare interventions for autistic adults.

    Nicolaidis, Christina / Zhen, Kelly Y / Lee, Junghee / Raymaker, Dora M / Kapp, Steven K / Croen, Lisa A / Urbanowicz, Anna / Maslak, Joelle / Scharer, Mirah

    Autism : the international journal of research and practice

    2020  Band 25, Heft 3, Seite(n) 786–799

    Abstract: Lay abstract: Interventions to improve healthcare for autistic adults are greatly needed. To evaluate such interventions, researchers often use surveys to collect data from autistic adults (or sometimes, their supporters), but few survey measures have ... ...

    Abstract Lay abstract: Interventions to improve healthcare for autistic adults are greatly needed. To evaluate such interventions, researchers often use surveys to collect data from autistic adults (or sometimes, their supporters), but few survey measures have been tested for use with autistic adults. Our objective was to create and test a set of patient- or proxy-reported survey measures for use in studies that evaluate healthcare interventions. We used a community-based participatory research (CBPR) approach, in partnership with autistic adults, healthcare providers, and supporters. We worked together to create or adapt survey measures. Three survey measures focus on things that interventions may try to change directly: (1) how prepared patients are for visits; (2) how confident they feel in managing their health and healthcare; and (3) how well the healthcare system is making the accommodations patients feel they need. The other measures focus on the outcomes that interventions may hope to achieve: (4) improved patient-provider communication; (5) reduced barriers to care; and (6) reduced unmet healthcare needs. We then tested these measures in a survey of 244 autistic adults recruited from 12 primary care clinics in Oregon and California, USA (with 194 participating directly and 50 participating via a proxy reporter). Community partners made sure items were easy to understand and captured what was important about the underlying idea. We found the survey measures worked well in this sample. These measures may help researchers evaluate new healthcare interventions. Future research needs to assess whether interventions improve healthcare outcomes in autistic adults.
    Mesh-Begriff(e) Adult ; Autism Spectrum Disorder ; Autistic Disorder/therapy ; Delivery of Health Care ; Humans ; Patient Reported Outcome Measures ; Psychometrics
    Sprache Englisch
    Erscheinungsdatum 2020-10-25
    Erscheinungsland England
    Dokumenttyp Journal Article ; Research Support, N.I.H., Extramural
    ZDB-ID 1338513-6
    ISSN 1461-7005 ; 1362-3613
    ISSN (online) 1461-7005
    ISSN 1362-3613
    DOI 10.1177/1362361320967178
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  3. Artikel ; Online: Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-based Early Psychosis Web Resource with Young Adults.

    Raymaker, Dora M / Sale, Tamara / Rija, Mariam / Buekea, Nicholas / Caruso, Nybelle / Melton, Ryan / Cohrs, Natalie / Gould, Veronica / Wall, Christina / Scharer, Mirah

    Progress in community health partnerships : research, education, and action

    2021  Band 14, Heft 4, Seite(n) 471–480

    Abstract: Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.: Objectives: We used a community-based participatory research (CBPR) approach in ... ...

    Abstract Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.
    Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, webbased, recovery resource.
    Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it.
    Lessons learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers.
    Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult coresearchers. We strongly recommend including YA who have experienced EP as co-researchers.
    Mesh-Begriff(e) Community-Based Participatory Research ; Humans ; Peer Group ; Psychotic Disorders/diagnosis ; Psychotic Disorders/therapy ; Research Personnel ; Universities ; Young Adult
    Sprache Englisch
    Erscheinungsdatum 2021-01-08
    Erscheinungsland United States
    Dokumenttyp Journal Article ; Research Support, U.S. Gov't, Non-P.H.S.
    ZDB-ID 2275483-0
    ISSN 1557-055X ; 1557-0541
    ISSN (online) 1557-055X
    ISSN 1557-0541
    DOI 10.1353/cpr.2020.0052
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  4. Artikel ; Online: "Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew": Defining Autistic Burnout.

    Raymaker, Dora M / Teo, Alan R / Steckler, Nicole A / Lentz, Brandy / Scharer, Mirah / Delos Santos, Austin / Kapp, Steven K / Hunter, Morrigan / Joyce, Andee / Nicolaidis, Christina

    Autism in adulthood : challenges and management

    2020  Band 2, Heft 2, Seite(n) 132–143

    Abstract: Background:: Lay summary: Why was this study done?: ...

    Abstract Background:
    Lay summary: Why was this study done?:
    Sprache Englisch
    Erscheinungsdatum 2020-06-10
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ISSN 2573-959X
    ISSN (online) 2573-959X
    DOI 10.1089/aut.2019.0079
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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