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  1. Article: Leitlinie der Österreichischen Palliativgesellschaft zur Palliiativen Sedierungstherapie (Kurzversion)

    Roider-Schur, Sophie / Weixler, Dietmar / Likar, Rudolf

    Praxis PallativeCare

    2018  , Issue 39, Page(s) 5

    Keywords Alter. ; Palliativpflege ; Sedierung ; Betreuung ; Angehöriger ; Österreich
    Language German
    Document type Article
    ZDB-ID 2469387-X
    ISSN 1867-7126
    ISSN 1867-7126
    Database bibnet.org

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  2. Article ; Online: 'It needs experience and courage': Awareness towards end of life communication practices in oncologists: A mixed methods study.

    Diendorfer, Tamara / Roider-Schur, Sophie / Lütgendorf-Caucig, Carola / Masel, Eva Katharina / Watzke, Herbert / Pötter, Richard / Kirchheiner, Kathrin

    European journal of cancer care

    2022  Volume 31, Issue 6, Page(s) e13737

    Abstract: Objective: End of life communication (EOLC) is generally regarded as a challenging aspect of the medical profession, with high influences of culture, the physician's experience and awareness. The aim of the current study was to assess the awareness of ... ...

    Abstract Objective: End of life communication (EOLC) is generally regarded as a challenging aspect of the medical profession, with high influences of culture, the physician's experience and awareness. The aim of the current study was to assess the awareness of Austrian oncologists towards EOLC practices in their daily clinical routine and to identify limiting and supporting factors of these conversations.
    Methods: Overall, 45 oncologists participated in the assessment in this cross-sectional, mixed-method design using semi-structured interviews and questionnaire.
    Results: Themes that occurred during the interviews included the initiation of EOLC, EOLC in practice, strategies for EOLC, limiting and supporting factors and consequences of EOLC. There were several variations in the EOLC approach, that is, the use of time frames, timing, initiation and the amount of details given to the patient.
    Conclusion: Oncologists agreed that EOLC is important in their daily clinical routine and for their patients. Nevertheless, there seems to be an underlying variation in approaches chosen by Austrian oncologists. This variation might be reduced by asking patients about their information preferences in advance and by routine implementation of communication guidelines, nomograms and prognostic calculators to reduce uncertainty.
    MeSH term(s) Humans ; Terminal Care/methods ; Courage ; Cross-Sectional Studies ; Attitude of Health Personnel ; Oncologists ; Communication ; Death
    Language English
    Publishing date 2022-10-18
    Publishing country England
    Document type Journal Article
    ZDB-ID 1303114-4
    ISSN 1365-2354 ; 0961-5423 ; 1360-5801
    ISSN (online) 1365-2354
    ISSN 0961-5423 ; 1360-5801
    DOI 10.1111/ecc.13737
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  3. Article: Pazopanib in Primary Cardiac Angiosarcoma of the Right Atrium: A Case Report.

    Schur, Sophie / Hamacher, Rainer / Brodowicz, Thomas

    Case reports in oncology

    2016  Volume 9, Issue 2, Page(s) 363–367

    Abstract: Primary heart tumors are an extremely rare oncological entity with primary cardiac sarcomas usually representing 20% of all primary cardiac tumorous lesions [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925-932; Orlandi et al.: J Thorac Oncol 2010;5: 1483- ...

    Abstract Primary heart tumors are an extremely rare oncological entity with primary cardiac sarcomas usually representing 20% of all primary cardiac tumorous lesions [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925-932; Orlandi et al.: J Thorac Oncol 2010;5: 1483-1489]. Angiosarcoma is the most prevalent histology and despite a multidisciplinary approach tends to have a dismal prognosis [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925-932; Fury et al.: Cancer J 2005;11: 241-247]. Based on the prevailing literature, we report a 48-year-old woman diagnosed with primary metastatic cardiac angiosarcoma who showed a severe hypersensitivity reaction to conventional chemotherapy with taxanes but an excellent response to treatment with the multitargeted receptor tyrosine kinase inhibitor pazopanib.
    Language English
    Publishing date 2016-06-27
    Publishing country Switzerland
    Document type Case Reports
    ZDB-ID 2458961-5
    ISSN 1662-6575
    ISSN 1662-6575
    DOI 10.1159/000447088
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  4. Article ; Online: Establishing end-of-life boards for palliative care of patients with advanced diseases.

    Masel, Eva K / Unseld, Matthias / Adamidis, Feroniki / Roider-Schur, Sophie / Watzke, Herbert H

    Wiener klinische Wochenschrift

    2018  Volume 130, Issue 7-8, Page(s) 259–263

    Abstract: Background: Interdisciplinary tumor board decisions improve the quality of oncological therapies, while no such boards exist for end-of-life (EOL) decisions. The aim of this study was to assess the willingness of hemato-oncological and palliative care ... ...

    Abstract Background: Interdisciplinary tumor board decisions improve the quality of oncological therapies, while no such boards exist for end-of-life (EOL) decisions. The aim of this study was to assess the willingness of hemato-oncological and palliative care professionals to develop and participate in EOL boards. An aim of an EOL board would be to establish an interdisciplinary and comprehensive care for the remaining lifetime of patients suffering from advanced incurable diseases.
    Study design: Staff from the interdisciplinary teams of all hemato-oncological and palliative care wards in Vienna were invited to anonymously participate in an online survey.
    Results: 309 professionals responded. 91% respondents reported a need to establish an EOL board, 63% expressed their willingness to actively participate in an EOL board, and 25% were indecisive. Regarding patient presence, 50% voted for an EOL board in the presence of the patients, and 36% voted for an EOL board in the absence of the patients. 95% had the opinion that an EOL board could improve patient care in the last phase of life. 64% stated that the development of an EOL board would be worthwhile, while 28% did not see enough resources available at their institutions. Regarding the desired type of documentation, 61% voted for a centrally available EOL decision, and 31% supported an in-house-based documentation. 94% voted for the availability of an information folder about EOL care.
    Conclusion: The willingness of professionals to establish an EOL board was very high. Further steps should be taken to implement such boards to improve EOL care.
    MeSH term(s) Humans ; Interdisciplinary Communication ; Medical Oncology ; Palliative Care/organization & administration ; Patient Care Team ; Surveys and Questionnaires ; Terminal Care
    Language English
    Publishing date 2018-02-23
    Publishing country Austria
    Document type Journal Article
    ZDB-ID 200462-8
    ISSN 1613-7671 ; 0043-5325 ; 0300-5178
    ISSN (online) 1613-7671
    ISSN 0043-5325 ; 0300-5178
    DOI 10.1007/s00508-018-1323-2
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  5. Article: Pazopanib in Primary Cardiac Angiosarcoma of the Right Atrium: A Case Report

    Schur, Sophie / Hamacher, Rainer / Brodowicz, Thomas

    Case Reports in Oncology

    2016  Volume 9, Issue 2, Page(s) 363–367

    Abstract: Primary heart tumors are an extremely rare oncological entity with primary cardiac sarcomas usually representing 20% of all primary cardiac tumorous lesions [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925–932; Orlandi et al.: J Thorac Oncol 2010;5: 1483– ...

    Institution Comprehensive Cancer Center – Musculo Skeletal Tumors, GIST, Bone Sarcoma & Soft Tissue Sarcoma Program, Clinical Division of Oncology, Department of Internal Medicine I, Medical University of Vienna, General Hospital Vienna, and Sarcoma Platform Austria, Vienna, Austria
    Abstract Primary heart tumors are an extremely rare oncological entity with primary cardiac sarcomas usually representing 20% of all primary cardiac tumorous lesions [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925–932; Orlandi et al.: J Thorac Oncol 2010;5: 1483–1489]. Angiosarcoma is the most prevalent histology and despite a multidisciplinary approach tends to have a dismal prognosis [Shanmugam: Eur J Cardiothorac Surg 2006;29: 925–932; Fury et al.: Cancer J 2005;11: 241–247]. Based on the prevailing literature, we report a 48-year-old woman diagnosed with primary metastatic cardiac angiosarcoma who showed a severe hypersensitivity reaction to conventional chemotherapy with taxanes but an excellent response to treatment with the multitargeted receptor tyrosine kinase inhibitor pazopanib.
    Keywords Cardiac sarcoma ; Angiosarcoma ; Soft tissue sarcoma ; Right atrium ; Pazopanib
    Language English
    Publishing date 2016-06-27
    Publisher S. Karger AG
    Publishing place Basel, Switzerland
    Document type Article
    Note Case Report ; This article is licensed under the Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC).
    ZDB-ID 2458961-5
    ISSN 1662-6575 ; 1662-6575
    ISSN (online) 1662-6575
    ISSN 1662-6575
    DOI 10.1159/000447088
    Database Karger publisher's database

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  6. Article ; Online: Pushing boundaries-culture-sensitive care in oncology and palliative care: a qualitative study.

    Schrank, Beate / Rumpold, Tamara / Amering, Michaela / Masel, Eva Katharina / Watzke, Herbert / Schur, Sophie

    Psycho-oncology

    2017  Volume 26, Issue 6, Page(s) 763–769

    Abstract: Objective: In increasingly globalized societies, patient-centered cancer care requires culture-sensitive approaches in order to ensure patients well-being. While migrant patients' needs are frequently reported in the literature, staff members' ... ...

    Abstract Objective: In increasingly globalized societies, patient-centered cancer care requires culture-sensitive approaches in order to ensure patients well-being. While migrant patients' needs are frequently reported in the literature, staff members' perception of work with migrant patients, associated challenges, or individual work approaches are largely unknown. This study addresses this research gap through qualitative exploration of experiences of multicultural health care professionals in supportive oncology and palliative care, working with patients from different cultural backgrounds. This study aims to understand staff experience of the impact of culture on cancer care.
    Methods: This study was conducted at the Medical University of Vienna, including staff from different settings of oncology and palliative care, in different professional positions, and with a range of individual migration backgrounds. Semistructured interviews were conducted with 21 staff members working with patients from different cultural backgrounds. Interviews explored views on the impact of culture on care were audio-taped, transcribed, and analyzed using a rigorous method of thematic analysis, enhanced with grounded theory techniques.
    Results: Interviews revealed 4 key topics: culture-specific differences, assumed reasons for differences, consequences of multicultural care, and tools for culture-sensitive care. Strategies to better deal with migrant patients and their families were suggested to improve work satisfaction amongst staff.
    Conclusions: This study identifies relevant staff challenges in work with migrant patients. Concrete suggestions for improvement include measures on an organizational level, team level, and personal tools. The suggested measures are applicable to improve work satisfaction and culture-sensitive care not only in cancer care but also in other areas of medicine.
    MeSH term(s) Adult ; Attitude of Health Personnel ; Culturally Competent Care ; Culture ; Female ; Health Personnel/psychology ; Health Personnel/statistics & numerical data ; Humans ; Job Satisfaction ; Male ; Medical Oncology ; Middle Aged ; Neoplasms/ethnology ; Neoplasms/therapy ; Palliative Care ; Qualitative Research ; Young Adult
    Language English
    Publishing date 2017
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1118536-3
    ISSN 1099-1611 ; 1057-9249
    ISSN (online) 1099-1611
    ISSN 1057-9249
    DOI 10.1002/pon.4217
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  7. Article ; Online: Migrate your mind: the role of palliative care in transcultural cancer treatment : A qualitative analysis.

    Roider-Schur, Sophie / Rumpold, Tamara / Kirchheiner, Kathrin / Masel, Eva Katharina / Nemecek, Romina / Amering, Michaela / Watzke, Herbert / Schrank, Beate

    Wiener klinische Wochenschrift

    2019  Volume 131, Issue 9-10, Page(s) 191–199

    Abstract: Background: In increasingly multi-ethnic societies fostering cultural awareness and integration of immigrants is not only a political duty but also an obligation for social and healthcare systems. Importantly, cultural beliefs and needs strongly impact ... ...

    Abstract Background: In increasingly multi-ethnic societies fostering cultural awareness and integration of immigrants is not only a political duty but also an obligation for social and healthcare systems. Importantly, cultural beliefs and needs strongly impact on the quality of life of cancer patients and may become even more crucial at the end of life. However, to date, ethnic and cultural aspects of palliative care are insufficiently researched.
    Methods: This qualitative study at the Medical University of Vienna included 21 staff members from different disciplines in oncology and palliative care working with patients with various cultural backgrounds at the end of life. Semi-structured interviews were performed to gain insights into specific aspects of palliative care that are important in the clinical encounter with terminally ill cancer patients with migrant backgrounds and their relatives.
    Results: Interviews revealed specific aspects of palliative care, which fell into four fundamental categories and were all perceived as beneficial in the clinical encounter with migrant clients: (A) structural and (B) personal conditions of the palliative care setting, (C) specific care and treatment intentions and (D) personnel requirements and attitudes.
    Conclusion: This study revealed first insights into possibilities and prospects of transcultural palliative care for migrants and their relatives. The results might have important implications for the end of life care in this growing population.
    MeSH term(s) Cross-Cultural Comparison ; Emigrants and Immigrants/statistics & numerical data ; Female ; Humans ; Male ; Neoplasms/psychology ; Neoplasms/therapy ; Palliative Care ; Quality of Life ; Terminal Care
    Language English
    Publishing date 2019-04-17
    Publishing country Austria
    Document type Journal Article
    ZDB-ID 200462-8
    ISSN 1613-7671 ; 0043-5325 ; 0300-5178
    ISSN (online) 1613-7671
    ISSN 0043-5325 ; 0300-5178
    DOI 10.1007/s00508-019-1474-9
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  8. Article ; Online: Telemedically augmented palliative care : Empowerment for patients with advanced cancer and their family caregivers.

    Nemecek, Romina / Huber, Patrick / Schur, Sophie / Masel, Eva Katharina / Baumann, Lukas / Hoeller, Christoph / Watzke, Herbert / Binder, Michael

    Wiener klinische Wochenschrift

    2019  Volume 131, Issue 23-24, Page(s) 620–626

    Abstract: Background: Studies have shown that initiating early palliative care of patients with end-stage cancer can improve their quality of life and decrease symptoms of depression. The challenge is to find an effective way to care for these patients while ... ...

    Abstract Background: Studies have shown that initiating early palliative care of patients with end-stage cancer can improve their quality of life and decrease symptoms of depression. The challenge is to find an effective way to care for these patients while minimizing the burden on healthcare resources. Telemedicine can play a vital role in solving this problem.
    Methods: A user-friendly telemedical device enabling patients encountering medical problems to send a direct request to a palliative care team was developed. A controlled feasibility study was conducted by assigning 15 patients with advanced cancer and their family caregivers to receive either standard palliative care or telemedically augmented palliative care. Th quality of life (QoL) was assessed using standardized validated questionnaires as well as frequency and duration of hospital admissions and user satisfaction. The primary goal of this study was to increase the QoL of patients and their family caregivers. The secondary goal of this study was to decrease the frequency and duration of hospital admissions.
    Results: This study showed a good feasibility despite the low overall willingness to participate in a relatively "technical" trial. The hospital anxiety and depression scale (HADS) was significantly lower in the intervention group, suggesting an improved quality of life. Although a decrease in the number of hospital admissions could not be shown, the user satisfaction was very good.
    Conclusion: Telemedicine could be a useful tool to enhance the general well-being of palliative oncology patients. Now that the feasibility of this approach has been confirmed, larger studies are needed to verify its positive impact on the QoL.
    MeSH term(s) Caregivers ; Empowerment ; Humans ; Neoplasms/therapy ; Palliative Care ; Quality of Life ; Telemedicine
    Language English
    Publishing date 2019-10-30
    Publishing country Austria
    Document type Journal Article
    ZDB-ID 200462-8
    ISSN 1613-7671 ; 0043-5325 ; 0300-5178
    ISSN (online) 1613-7671
    ISSN 0043-5325 ; 0300-5178
    DOI 10.1007/s00508-019-01562-3
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  9. Article ; Online: Patients' attitude and knowledge towards resuscitation and advance care planning at the palliative care unit.

    Unseld, Matthias / Gager, Gloria M / Adamidis, Feroniki / Kitta, Anna / Roider-Schur, Sophie / Watzke, Herbert H / Masel, Eva Katharina

    European journal of cancer care

    2019  Volume 28, Issue 5, Page(s) e13109

    Abstract: Objective: There is a lack of information about patients' attitudes towards and knowledge of resuscitation and advance care planning (ACP) in the palliative care unit (PCU). The aims of this study were to examine (a) patients' attitudes towards and ... ...

    Abstract Objective: There is a lack of information about patients' attitudes towards and knowledge of resuscitation and advance care planning (ACP) in the palliative care unit (PCU). The aims of this study were to examine (a) patients' attitudes towards and knowledge of the topic of resuscitation, (b) patients' level of education about their illness and (c) their concept of ACP.
    Methods: This study used a qualitative methodology that involved semi-structured interviews with advanced cancer patients admitted to the PCU. Interviews were conducted during the first week after admission, recorded digitally and transcribed verbatim. Data were analysed through content analysis using NVivo 12.
    Results: Eighteen interviews revealed the following themes: (a) ambivalence regarding preference for or refusal of resuscitation, (b) patient confidence concerning their level of education, (c) lack of information about ACP and (d) positive perception of the stay in the PCU. The data showed that a high percentage of PCU patients desired resuscitation even though education about their illness was mostly perceived as good. Many patients did not receive information about ACP. Patients perceived the stay in the PCU positively.
    Conclusion: The study results reveal that there is lack of knowledge about ACP and resuscitation in patients in the PCU.
    MeSH term(s) Adult ; Advance Care Planning ; Aged ; Aged, 80 and over ; Female ; Health Knowledge, Attitudes, Practice ; Hospital Units ; Humans ; Male ; Middle Aged ; Neoplasms ; Palliative Care ; Qualitative Research ; Resuscitation Orders
    Language English
    Publishing date 2019-05-29
    Publishing country England
    Document type Journal Article
    ZDB-ID 1303114-4
    ISSN 1365-2354 ; 0961-5423 ; 1360-5801
    ISSN (online) 1365-2354
    ISSN 0961-5423 ; 1360-5801
    DOI 10.1111/ecc.13109
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  10. Article ; Online: Life is uncertain. death is certain. Buddhism and palliative care.

    Masel, Eva K / Schur, Sophie / Watzke, Herbert H

    Journal of pain and symptom management

    2012  Volume 44, Issue 2, Page(s) 307–312

    Abstract: It is part of a palliative care assessment to identify patients' spiritual needs. According to Buddhism, suffering is inherent to all human beings. Advice on how suffering can be reduced in the course of serious illness might be helpful to patients with ... ...

    Abstract It is part of a palliative care assessment to identify patients' spiritual needs. According to Buddhism, suffering is inherent to all human beings. Advice on how suffering can be reduced in the course of serious illness might be helpful to patients with incurable and progressive diseases. Palliative care could benefit from Buddhist insights in the form of compassionate care and relating death to life. Buddhist teachings may lead to a more profound understanding of incurable diseases and offer patients the means by which to focus their minds while dealing with physical symptoms and ailments. This might not only be beneficial to followers of Buddhism but to all patients.
    MeSH term(s) Aged ; Breast Neoplasms/psychology ; Buddhism/psychology ; Death ; Female ; Humans ; Palliative Care ; Philosophy, Medical
    Language English
    Publishing date 2012-08
    Publishing country United States
    Document type Case Reports ; Journal Article
    ZDB-ID 639142-4
    ISSN 1873-6513 ; 0885-3924
    ISSN (online) 1873-6513
    ISSN 0885-3924
    DOI 10.1016/j.jpainsymman.2012.02.018
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