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  1. AU="Steinberg, Karl E"
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  1. Article: Responses to Open Peer Commentaries about "Timely dying in dementia: use patients' judgments and broaden the concept of suffering" and "Can an effective end-of-life intervention for advanced dementia be viewed as moral?"

    Terman, Stanley A / Steinberg, Karl E

    Alzheimer's & dementia (Amsterdam, Netherlands)

    2024  Volume 16, Issue 1, Page(s) e12529

    Language English
    Publishing date 2024-03-15
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2832898-X
    ISSN 2352-8729
    ISSN 2352-8729
    DOI 10.1002/dad2.12529
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article: Timely dying in dementia: Use patients' judgments and broaden the concept of suffering.

    Terman, Stanley A / Steinberg, Karl E / Hinerman, Nathaniel

    Alzheimer's & dementia (Amsterdam, Netherlands)

    2024  Volume 16, Issue 1, Page(s) e12527

    Abstract: Patients living with advanced dementia (PLADs) face several challenges to attain the goal of avoiding prolonged dying with severe suffering. One is how to determine when PLADs' current suffering becomes severe enough to cease all life-sustaining ... ...

    Abstract Patients living with advanced dementia (PLADs) face several challenges to attain the goal of avoiding prolonged dying with severe suffering. One is how to determine when PLADs' current suffering becomes severe enough to cease all life-sustaining treatments, including withdrawing assistance with oral feeding and hydrating, a controversial order. This article broadens the concept of suffering by including suffering that cannot be observed contemporaneously and the suffering of loved ones. Four paradigm shifts operationalize these concepts. During advance care planning, patients can judge which future clinical conditions would cause severe suffering. To decide when to allow patients to die, treating physicians/providers only need to assess if patients have reached patients' previously judged, qualifying conditions. Questions: Will this protocol prevent PLADs' prolonged dying with suffering? Deter early-stage dementia patients from committing preemptive suicide? Sway decision-making surrogates from withholding life-sustaining treatments from patients with middle-stage dementia? Provoke providers' resistance to relinquish their traditional, unilateral authority to determine patients' suffering?
    Language English
    Publishing date 2024-03-15
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2832898-X
    ISSN 2352-8729
    ISSN 2352-8729
    DOI 10.1002/dad2.12527
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: WITHDRAWN: Taking Our Own Pulse in Considering Medication Changes.

    Steinberg, Karl E / Stefanacci, Richard G

    Journal of the American Medical Directors Association

    2021  

    Abstract: This article has been withdrawn at the request of the author(s) and/or editor. The Publisher apologizes for any inconvenience this may cause. The full Elsevier Policy on Article Withdrawal can be found at https://www.elsevier.com/about/our-business/ ... ...

    Abstract This article has been withdrawn at the request of the author(s) and/or editor. The Publisher apologizes for any inconvenience this may cause. The full Elsevier Policy on Article Withdrawal can be found at https://www.elsevier.com/about/our-business/policies/article-withdrawal.
    Language English
    Publishing date 2021-01-10
    Publishing country United States
    Document type Retraction of Publication
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2020.07.006
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
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  4. Article ; Online: Person-Centered Care Planning: Preferences Are a Priority.

    Steinberg, Karl E

    Journal of the American Medical Directors Association

    2017  Volume 19, Issue 2, Page(s) 100–101

    MeSH term(s) Humans ; Patient-Centered Care ; Self Care
    Language English
    Publishing date 2017-12-06
    Publishing country United States
    Document type Editorial ; Comment
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2017.10.024
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
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  5. Article ; Online: Correction to: Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.

    Terman, Stanley A / Steinberg, Karl E / Hinerman, Nathaniel

    BMC medical ethics

    2022  Volume 23, Issue 1, Page(s) 111

    Language English
    Publishing date 2022-11-16
    Publishing country England
    Document type Published Erratum
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-022-00850-4
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  6. Article ; Online: Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying.

    Terman, Stanley A / Steinberg, Karl E / Hinerman, Nathaniel

    BMC medical ethics

    2022  Volume 23, Issue 1, Page(s) 100

    Abstract: Background: The terminal illness of late-stage (advanced) Alzheimer's and related dementias is progressively cruel, burdensome, and can last years if caregivers assist oral feeding and hydrating. Options to avoid prolonged dying are limited since ... ...

    Abstract Background: The terminal illness of late-stage (advanced) Alzheimer's and related dementias is progressively cruel, burdensome, and can last years if caregivers assist oral feeding and hydrating. Options to avoid prolonged dying are limited since advanced dementia patients cannot qualify for Medical Aid in Dying. Physicians and judges can insist on clear and convincing evidence that the patient wants to die-which many advance directives cannot provide. Proxies/agents' substituted judgment may not be concordant with patients' requests. While advance directives can be patients' last resort to attain a peaceful and timely dying consistent with their lifelong values, success depends on their being effective and acceptable. A single flaw can provide opponents justification to refuse the directive's requests to cease assisted feeding.
    Aim: This article considers 24 common advance directive flaws in four categories. Process flaws focus on how patients express their end-of-life wishes. Content flaws reflect drafters' selection of conditions and interventions, and how they are described. Inherent flaws can make advance directives unacceptable to authorities concerned about premature dying. Strategies are needed to compel physicians to write needed orders and to prevent third parties from sabotaging these orders after they are  implemented. The article includes excerpts from "dementia-specific" directives or supplements that exemplify each flaw-mostly from the US and Europe. No directive critiqued here included an effective strategy to resolve this long-debated bioethical conflict: the past directive requests "Cease assisted feeding" but the incapacitated patient apparently expresses the desire to "Continue assisted feeding." Some opponents to the controversial request, cease assisted feeding, use this conflict as a conceptual wedge to practice hard paternalism. This article proposes a protocol to prevent this conflict from emerging. These strategies may prevent authorities from requiring patients to fulfill authorities' additional clinical criteria as a prerequisite to honor the requests in patients directives.
    Conclusion: This critique of flaws may serve as a guide to drafting and to selecting effective and acceptable advance directives for dementia. It also poses several bioethical and clinical questions to those in authority: Does your paternalistic refusal to honor patients' wishes respect their self-determination? Protect vulnerable patients from harm? Force patients to endure prolonged suffering? Violate the principles of bioethics? Violate the very foundation of patient-centered care?
    MeSH term(s) Advance Directives ; Dementia ; Humans ; Paternalism ; Personal Autonomy ; Proxy
    Language English
    Publishing date 2022-10-06
    Publishing country England
    Document type Journal Article
    ZDB-ID 2041552-7
    ISSN 1472-6939 ; 1472-6939
    ISSN (online) 1472-6939
    ISSN 1472-6939
    DOI 10.1186/s12910-022-00831-7
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  7. Article ; Online: Skin Failure: A Practical Concept when Properly Applied.

    Steinberg, Karl E

    Journal of the American Medical Directors Association

    2016  Volume 17, Issue 7, Page(s) 570

    MeSH term(s) Skin
    Language English
    Publishing date 2016-05-24
    Publishing country United States
    Document type Editorial ; Comment
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2016.04.011
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  8. Article ; Online: Assistance With Eating and Drinking Only When Requested Can Prevent Living With Advanced Dementia.

    Volicer, Ladislav / Pope, Thaddeus Mason / Steinberg, Karl E

    Journal of the American Medical Directors Association

    2021  Volume 20, Issue 11, Page(s) 1353–1355

    MeSH term(s) Advance Directives/ethics ; Advance Directives/psychology ; Caregivers/psychology ; Decision Making/ethics ; Dementia/psychology ; Feeding Behavior/ethics ; Feeding Behavior/psychology ; Humans ; Patient Acceptance of Health Care/psychology ; Withholding Treatment/ethics
    Language English
    Publishing date 2021-03-04
    Publishing country United States
    Document type Editorial
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2019.08.035
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  9. Article ; Online: Advance care planning: just do it!

    Steinberg, Karl E

    Journal of the American Medical Directors Association

    2014  Volume 15, Issue 7, Page(s) 454–456

    MeSH term(s) Advance Care Planning ; Communication ; Humans
    Language English
    Publishing date 2014-07
    Publishing country United States
    Document type Comment ; Editorial
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2014.04.016
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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  10. Article ; Online: Disparities between preferences and practice for end-of-life care.

    Steinberg, Karl E

    Journal of the American Medical Directors Association

    2010  Volume 11, Issue 1, Page(s) 9–10

    MeSH term(s) Advance Care Planning ; Assisted Living Facilities ; Decision Making ; Humans ; Nursing Homes ; Patient Preference ; Resuscitation Orders ; Terminal Care
    Language English
    Publishing date 2010-01
    Publishing country United States
    Document type Comment ; Editorial
    ZDB-ID 2171030-2
    ISSN 1538-9375 ; 1525-8610
    ISSN (online) 1538-9375
    ISSN 1525-8610
    DOI 10.1016/j.jamda.2009.09.010
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    In stock of ZB MED Cologne/Königswinter

    Zs.A 5971: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 1994: Bestellungen von Artikeln über das Online-Bestellformular
    Jg. 1995 - 2021: Lesesall (2.OG)
    ab Jg. 2022: Lesesaal (EG)

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