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  1. AU="Talia Gutman"
  2. AU="Coroyer, Lucas"
  3. AU="Norred, Carol L"
  4. AU="Pejić, Tomislav"
  5. AU=Popovitchenko Tatiana AU=Popovitchenko Tatiana
  6. AU=Lee Jiun
  7. AU="Ricklund, Niklas"
  8. AU="Doyle, Taylor"
  9. AU="McLaughlin, Katie A" AU="McLaughlin, Katie A"
  10. AU="Konrad Grützmann"
  11. AU=Pulido Amada
  12. AU="Malawski, Maciej"
  13. AU="Luquain-Costaz, Céline"
  14. AU=Channin David S
  15. AU="Chiba, Takahito"
  16. AU="Jeffcoat, A. Robert"
  17. AU=Scappatura Giuseppe
  18. AU=Sakaguchi Atsumi
  19. AU="Rodriguez-Cabello, Jose C"
  20. AU=Merter Ayse Arducoglu
  21. AU="Ewers, U."
  22. AU="Reichling, Jürgen"
  23. AU="Eichner, Timo"
  24. AU="Seunghee Kim-Schulze"
  25. AU=Ozaki Shoichi
  26. AU="Clerici, Giovanna" AU="Clerici, Giovanna"
  27. AU="Firoz Ahmed"
  28. AU="Dżugan, Małgorzata"
  29. AU="Rolf Bjerkvig"
  30. AU=Khosravi-Far Roya
  31. AU="Udeochu, Joe C"
  32. AU="Osoba, Osonde A." AU="Osoba, Osonde A."
  33. AU="Palani, Sowmiya"
  34. AU="Manfred Frick"
  35. AU="Jensen, Leonard"
  36. AU="Pakhomov, Evgeny A."
  37. AU="Subramanyam, Chithirala Bala"
  38. AU=Petrek J A
  39. AU="Thomson-Baker, B"
  40. AU=Shahidi Shahrzad
  41. AU="Taylor, Holly A"
  42. AU="Yeong Jeong Jeon"
  43. AU="Bueno-Cavanillas, Aurora"
  44. AU="Kavčič, Tina"
  45. AU="Arias-Jiménez, José Luís"
  46. AU="Tünçok, Ekin"
  47. AU="Roberto Toro"
  48. AU="Bharti Sahu"
  49. AU="Soo-Yeon Choi"
  50. AU="Nono, Sandra"
  51. AU="Diepens, Robin J W"
  52. AU="Baselga-Garriga, Clara"

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  1. Artikel ; Online: Clinicians’ perspectives on equity of access to dialysis and kidney transplantation for rural people in Australia

    Allison Tong / Jonathan Craig / Martin Howell / Talia Gutman / Matthew Jose / Rachel Chalmers / Nicole Jane Scholes-Robertson / Karen M Dwyer / Ieyesha Roberts

    BMJ Open, Vol 12, Iss

    a semistructured interview study

    2022  Band 2

    Schlagwörter Medicine ; R
    Sprache Englisch
    Erscheinungsdatum 2022-02-01T00:00:00Z
    Verlag BMJ Publishing Group
    Dokumenttyp Artikel ; Online
    Datenquelle BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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  2. Artikel ; Online: Reporting guideline for priority setting of health research (REPRISE)

    Allison Tong / Anneliese Synnot / Sally Crowe / Sophie Hill / Andrea Matus / Nicole Scholes-Robertson / Sandy Oliver / Katherine Cowan / Mona Nasser / Soumyadeep Bhaumik / Talia Gutman / Amanda Baumgart / Jonathan C. Craig

    BMC Medical Research Methodology, Vol 19, Iss 1, Pp 1-

    2019  Band 11

    Abstract: Abstract Background Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for ... ...

    Abstract Abstract Background Research priority setting with stakeholders can help direct the limited resources for health research toward priority areas of need. Ensuring transparency of the priority setting process can strengthen legitimacy and credibility for influencing the research agenda. This study aims to develop a reporting guideline for priority setting of health research. Methods We searched electronic databases and relevant websites for sources (frameworks, guidelines, or models for conducting, appraising, reporting or evaluating health research priority setting, and reviews (including systematic reviews)), and primary studies of research priority setting to July 2019. We inductively developed a list of reporting items and piloted the preliminary guideline with a diverse range of 30 priority setting studies from the records retrieved. Results From 21,556 records, we included 26 sources for the candidate REPRISE framework and 455 primary research studies. The REporting guideline for PRIority SEtting of health research (REPRISE) has 31 reporting items that cover 10 domains: context and scope, governance and team, framework for priority setting, stakeholders/participants, identification and collection of priorities, prioritization of research topics, output, evaluation and feedback, translation and implementation, and funding and conflict of interest. Each reporting item includes a descriptor and examples. Conclusions The REPRISE guideline can facilitate comprehensive reporting of studies of research priority setting. Improved transparency in research priority setting may strengthen the acceptability and implementation of the research priorities identified, so that efforts and funding are invested in generating evidence that is of importance to all stakeholders. Trial registration Not applicable.
    Schlagwörter Priority-setting ; Reporting ; Transparency ; Patient involvement ; Medicine (General) ; R5-920
    Thema/Rubrik (Code) 306
    Sprache Englisch
    Erscheinungsdatum 2019-12-01T00:00:00Z
    Verlag BMC
    Dokumenttyp Artikel ; Online
    Datenquelle BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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  3. Artikel ; Online: Standardised Outcomes in Nephrology—Polycystic Kidney Disease (SONG-PKD)

    Yeoungjee Cho / Benedicte Sautenet / Gopala Rangan / Jonathan C. Craig / Albert C. M. Ong / Arlene Chapman / Curie Ahn / Dongping Chen / Helen Coolican / Juliana Tze-Wah Kao / Ron Gansevoort / Ronald Perrone / Tess Harris / Vicente Torres / York Pei / Peter G. Kerr / Jessica Ryan / Talia Gutman / Martin Howell /
    Angela Ju / Karine E. Manera / Armando Teixeira-Pinto / Lorraine A. Hamiwka / Allison Tong

    Trials, Vol 18, Iss 1, Pp 1-

    study protocol for establishing a core outcome set in polycystic kidney disease

    2017  Band 11

    Abstract: Abstract Background Autosomal dominant polycystic kidney disease (ADPKD) is the most common potentially life threatening inherited kidney disease and is responsible for 5–10% of cases of end-stage kidney disease (ESKD). Cystic kidneys may enlarge up to ... ...

    Abstract Abstract Background Autosomal dominant polycystic kidney disease (ADPKD) is the most common potentially life threatening inherited kidney disease and is responsible for 5–10% of cases of end-stage kidney disease (ESKD). Cystic kidneys may enlarge up to 20 times the weight of a normal kidney due to the growth of renal cysts, and patients with ADPKD have an increased risk of morbidity, premature mortality, and other life-time complications including renal and hepatic cyst and urinary tract infection, intracranial aneurysm, diverticulosis, and kidney pain which impair quality of life. Despite some therapeutic advances and the growing number of clinical trials in ADPKD, the outcomes that are relevant to patients and clinicians, such as symptoms and quality of life, are infrequently and inconsistently reported. This potentially limits the contribution of trials to inform evidence-based decision-making. The Standardised Outcomes in Nephrology—Polycystic Kidney Disease (SONG-PKD) project aims to establish a consensus-based set of core outcomes for trials in PKD (with an initial focus on ADPKD but inclusive of all stages) that patients and health professionals identify as critically important. Methods The five phases of SONG-PKD are: a systematic review to identify outcomes that have been reported in existing PKD trials; focus groups with nominal group technique with patients and caregivers to identify, rank, and describe reasons for their choices; qualitative stakeholder interviews with health professionals to elicit individual values and perspectives on outcomes for trials involving patients with PKD; an international three-round Delphi survey with all stakeholder groups (including patients, caregivers, healthcare providers, policy makers, researchers, and industry) to gain consensus on critically important core outcome domains; and a consensus workshop to review and establish a set of core outcome domains and measures for trials in PKD. Discussion The SONG-PKD core outcome set is aimed at improving the consistency ...
    Schlagwörter Core outcome set ; Outcomes research ; Patient-centred outcomes clinical trials ; Chronic kidney disease ; Autosomal dominant polycystic kidney disease ; Medicine (General) ; R5-920
    Thema/Rubrik (Code) 610
    Sprache Englisch
    Erscheinungsdatum 2017-11-01T00:00:00Z
    Verlag BMC
    Dokumenttyp Artikel ; Online
    Datenquelle BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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