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  1. Article ; Online: Stronger Together: Coalitions as Interventions Against Intersectional Stigma.

    Spieldenner, Andrew / Chang, Judy / Thomas, Ruth Morgan / Castellanos, Erika / Ayala, George

    American journal of public health

    2022  Volume 112, Issue S4, Page(s) S384–S386

    MeSH term(s) HIV Infections ; Humans ; Social Stigma
    Language English
    Publishing date 2022-06-27
    Publishing country United States
    Document type Editorial
    ZDB-ID 121100-6
    ISSN 1541-0048 ; 0090-0036 ; 0002-9572
    ISSN (online) 1541-0048
    ISSN 0090-0036 ; 0002-9572
    DOI 10.2105/AJPH.2021.306694
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: Addressing epistemic injustice in HIV research: a call for reporting guidelines on meaningful community engagement.

    Pantelic, Marija / Steinert, Janina I / Ayala, George / Sprague, Laurel / Chang, Judy / Thomas, Ruth Morgan / Nininahazwe, Cedric / Caswell, Georgina / Bach-Mortensen, Anders M / Bourne, Adam

    Journal of the International AIDS Society

    2022  Volume 25, Issue 1, Page(s) e25880

    Abstract: Introduction: Despite the widely recognized ethical and practical benefits of community engagement in HIV research, epistemic injustice persists within the field. Namely, the knowledge held by communities disproportionately affected by HIV is ... ...

    Abstract Introduction: Despite the widely recognized ethical and practical benefits of community engagement in HIV research, epistemic injustice persists within the field. Namely, the knowledge held by communities disproportionately affected by HIV is systematically afforded less credibility than that of more privileged academic researchers. In order to illustrate what this looks like in practice, we synthesized the extent of reporting on community engagement within recent high-impact HIV intervention research papers. However, we also posit that the HIV research sector has the potential to devise and showcase world-leading examples of equitable research-community partnerships and suggest actionable key steps to achieving this goal.
    Discussion: In the absence of reporting requirements within the publishing process, it is difficult to infer whether and how the community have been consulted in the design, implementation, analysis and/or interpretation of findings. As an illustrative exercise, we offer a rapid synthesis of the extent of reporting on community engagement in HIV research from 2017 to 2019, which highlighted sporadic and very low rates of reporting of community engagement in recent high-impact HIV intervention studies. Of note is that none of the included studies reported on community engagement through all stages of the research process. There were also discrepancies in how community involvement was reported. We provide three actionable recommendations to enhance reporting on community engagement in HIV research: (1) community-led organizations, researchers and scientific journals should band together to develop, publish and require adherence to standardized guidelines for reporting on community involvement in HIV research; (2) research funders should (continue to) require details about how relevant communities have been engaged prior to the submission of funding requests; and (3) researchers should take proactive measures to describe their engagement with community organizations in a clear and transparent manner.
    Conclusions: There is a clear and urgent need for guidelines that facilitate transparent and consistent reporting on community engagement in HIV intervention research. Without standardized reporting requirements and accountability mechanisms within the research sector, the extent of meaningful community engagement cannot be established and may remain a catchphrase rather than reality.
    MeSH term(s) Community Participation ; HIV Infections/drug therapy ; HIV Infections/prevention & control ; Humans ; Research Personnel ; Social Responsibility
    Language English
    Publishing date 2022-01-28
    Publishing country Switzerland
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2467110-1
    ISSN 1758-2652 ; 1758-2652
    ISSN (online) 1758-2652
    ISSN 1758-2652
    DOI 10.1002/jia2.25880
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Peer- and community-led responses to HIV: A scoping review.

    Ayala, George / Sprague, Laurel / van der Merwe, L Leigh-Ann / Thomas, Ruth Morgan / Chang, Judy / Arreola, Sonya / Davis, Sara L M / Taslim, Aditia / Mienies, Keith / Nilo, Alessandra / Mworeko, Lillian / Hikuam, Felicita / de Leon Moreno, Carlos Garcia / Izazola-Licea, José Antonio

    PloS one

    2021  Volume 16, Issue 12, Page(s) e0260555

    Abstract: Introduction: In June 2021, United Nations (UN) Member States committed to ambitious targets for scaling up community-led responses by 2025 toward meeting the goals of ending the AIDS epidemic by 2030. These targets build on UN Member States 2016 ... ...

    Abstract Introduction: In June 2021, United Nations (UN) Member States committed to ambitious targets for scaling up community-led responses by 2025 toward meeting the goals of ending the AIDS epidemic by 2030. These targets build on UN Member States 2016 commitments to ensure that 30% of HIV testing and treatment programmes are community-led by 2030. At its current pace, the world is not likely to meet these nor other global HIV targets, as evidenced by current epidemiologic trends. The COVID-19 pandemic threatens to further slow momentum made to date. The purpose of this paper is to review available evidence on the comparative advantages of community-led HIV responses that can better inform policy making towards getting the world back on track.
    Methods: We conducted a scoping review to gather available evidence on peer- and community-led HIV responses. Using UNAIDS' definition of 'community-led' and following PRISMA guidelines, we searched peer-reviewed literature published from January 1982 through September 2020. We limited our search to articles reporting findings from randomized controlled trials as well as from quasi-experimental, prospective, pre/post-test evaluation, and cross-sectional study designs. The overall goals of this scoping review were to gather available evidence on community-led responses and their impact on HIV outcomes, and to identify key concepts that can be used to quickly inform policy, practice, and research.
    Findings: Our initial search yielded 279 records. After screening for relevance and conducting cross-validation, 48 articles were selected. Most studies took place in the global south (n = 27) and a third (n = 17) involved youth. Sixty-five percent of articles (n = 31) described the comparative advantage of peer- and community-led direct services, e.g., prevention and education (n = 23) testing, care, and treatment programs (n = 8). We identified more than 40 beneficial outcomes linked to a range of peer- and community-led HIV activities. They include improved HIV-related knowledge, attitudes, intentions, self-efficacy, risk behaviours, risk appraisals, health literacy, adherence, and viral suppression. Ten studies reported improvements in HIV service access, quality, linkage, utilization, and retention resulting from peer- or community-led programs or initiatives. Three studies reported structural level changes, including positive influences on clinic wait times, treatment stockouts, service coverage, and exclusionary practices.
    Conclusions and recommendations: Findings from our scoping review underscore the comparative advantage of peer- and community-led HIV responses. Specifically, the evidence from the published literature leads us to recommend, where possible, that prevention programs, especially those intended for people living with and disproportionately affected by HIV, be peer- and community-led. In addition, treatment services should strive to integrate specific peer- and community-led components informed by differentiated care models. Future research is needed and should focus on generating additional quantitative evidence on cost effectiveness and on the synergistic effects of bundling two or more peer- and community-led interventions.
    MeSH term(s) Delivery of Health Care/organization & administration ; Delivery of Health Care/standards ; HIV Infections/diagnosis ; HIV Infections/epidemiology ; HIV Infections/prevention & control ; Health Knowledge, Attitudes, Practice ; Health Literacy ; Humans ; Medication Adherence ; Peer Group ; Risk-Taking ; Self Efficacy ; United Nations
    Language English
    Publishing date 2021-12-01
    Publishing country United States
    Document type Journal Article ; Review
    ZDB-ID 2267670-3
    ISSN 1932-6203 ; 1932-6203
    ISSN (online) 1932-6203
    ISSN 1932-6203
    DOI 10.1371/journal.pone.0260555
    Database MEDical Literature Analysis and Retrieval System OnLINE

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