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Article ; Online: 360-degree phenomenology: A qualitative approach to exploring the infant experience of hospitalisation in neonatal intensive care.

Duffy, Natalie / Hickey, Leah / Treyvaud, Karli / Delany, Clare

2024 Volume 190, Page(s) 105963

Abstract: This paper describes the development and justification of a qualitative methodology aimed at exploring the infant's personal experience of hospitalisation in the neonatal intensive care unit (NICU). We begin by briefly reviewing existing methods for ... ...

Abstract	This paper describes the development and justification of a qualitative methodology aimed at exploring the infant's personal experience of hospitalisation in the neonatal intensive care unit (NICU). We begin by briefly reviewing existing methods for documenting and recording infant experiences. These methods focus on the clinical needs of the infant predominantly through quantifiable medical outcome data. Research understanding their experience of receiving clinical care is lacking. By exploring newborn infant behaviour, cues, and communication strategies we assert the infant as a capable participant in neonatal research. We then describe the methodology and methods which we have named 360-degree phenomenology that draws directly from the capabilities and knowledge of the infants themselves. We propose this methodology will address the gap in the literature by enabling a rich and comprehensive overview of the early life experiences of infants hospitalised in NICU.
MeSH term(s)	Humans ; Infant ; Infant, Newborn ; Hospitalization ; Intensive Care Units, Neonatal ; Intensive Care, Neonatal ; Parents ; Qualitative Research
Language	English
Publishing date	2024-02-04
Publishing country	Ireland
Document type	Journal Article
ZDB-ID	752532-1
ISSN	1872-6232 ; 0378-3782
ISSN (online)	1872-6232
ISSN	0378-3782
DOI	10.1016/j.earlhumdev.2024.105963
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Article: Mental health of children and parents after very preterm birth.

Treyvaud, Karli / Brown, Stephanie J

World psychiatry : official journal of the World Psychiatric Association (WPA)

2022 Volume 21, Issue 1, Page(s) 148–149

Language	English
Publishing date	2022-01-11
Publishing country	Italy
Document type	Journal Article
ZDB-ID	2236130-3
ISSN	2051-5545 ; 1723-8617
ISSN (online)	2051-5545
ISSN	1723-8617
DOI	10.1002/wps.20936
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Article ; Online: Longitudinal and subgroup analysis approach to understand early intervention programme outcomes for very preterm infants.

Treyvaud, Karli

Acta paediatrica (Oslo, Norway : 1992)

2016 Volume 105, Issue 7, Page(s) 782

MeSH term(s)	Early Intervention (Education) ; Humans ; Infant ; Infant, Newborn ; Infant, Premature ; Infant, Premature, Diseases
Language	English
Publishing date	2016
Publishing country	Norway
Document type	Journal Article ; Comment
ZDB-ID	203487-6
ISSN	1651-2227 ; 0365-1436 ; 0803-5253
ISSN (online)	1651-2227
ISSN	0365-1436 ; 0803-5253
DOI	10.1111/apa.13423
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Article ; Online: Parent and family outcomes following very preterm or very low birth weight birth: a review.

Treyvaud, Karli

Seminars in fetal & neonatal medicine

2014 Volume 19, Issue 2, Page(s) 131–135

Abstract: Parents and the family environment have a pronounced influence on child development. For children at increased risk such as those born very preterm (VPT) or with very low birth weight (VLBW), parent and family functioning can influence the child's level ... ...

Abstract	Parents and the family environment have a pronounced influence on child development. For children at increased risk such as those born very preterm (VPT) or with very low birth weight (VLBW), parent and family functioning can influence the child's level of risk or resilience. This review describes parent and family outcomes after VPT/VLBW birth, specifically parental mental health, parenting stress and the impact of the child on the family. Factors associated with these outcomes are examined, as well as the specific outcomes for fathers. Overall the influence of VPT/VLBW birth on parents and the family appears to be more pronounced in early childhood, with less influence seen by the time of adolescence. Emerging evidence suggests that fathers experience high rates of psychological distress in the first months after VPT birth. Whereas characteristics of the VPT/VLBW child are strongly associated with parent and family outcomes, parent and social factors are also important influences.
MeSH term(s)	Adult ; Family/psychology ; Female ; Humans ; Infant, Extremely Low Birth Weight ; Infant, Extremely Premature ; Infant, Newborn ; Male ; Parents/psychology ; Social Support ; Stress, Psychological/psychology
Language	English
Publishing date	2014-04
Publishing country	Netherlands
Document type	Journal Article ; Research Support, Non-U.S. Gov't ; Review
ZDB-ID	2174416-6
ISSN	1878-0946 ; 1744-165X
ISSN (online)	1878-0946
ISSN	1744-165X
DOI	10.1016/j.siny.2013.10.008
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Article ; Online: Best practice when using the Strengths and Difficulties Questionnaire with extremely preterm children: are two informants better than one?

Treyvaud, Karli

Developmental medicine and child neurology

2014 Volume 56, Issue 5, Page(s) 413–414

MeSH term(s)	Child Behavior Disorders/etiology ; Data Collection/methods ; Female ; Humans ; Male ; Mass Screening ; Mental Disorders/complications ; Mental Disorders/diagnosis ; Surveys and Questionnaires
Language	English
Publishing date	2014-05
Publishing country	England
Document type	Comment ; Journal Article
ZDB-ID	80369-8
ISSN	1469-8749 ; 0012-1622
ISSN (online)	1469-8749
ISSN	0012-1622
DOI	10.1111/dmcn.12448
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Article ; Online: Prevalence and risk factors associated with perinatal depression in sexual minority women.

Marsland, Sophie / Treyvaud, Karli / Pepping, Christopher A

Clinical psychology & psychotherapy

2021 Volume 29, Issue 2, Page(s) 611–621

Abstract: Perinatal depression is associated with wide-ranging negative outcomes for women and their families, though little research has examined perinatal depression in sexual minority women. We examined depression in sexual minority women in the perinatal ... ...

Abstract	Perinatal depression is associated with wide-ranging negative outcomes for women and their families, though little research has examined perinatal depression in sexual minority women. We examined depression in sexual minority women in the perinatal period, and whether there were unique minority stress-related risk and protective factors that predicted perinatal depression. One hundred ninety-four perinatal sexual minority women aged 18 years and older were recruited from the US and Australia. Participants completed an online questionnaire incorporating the Edinburgh Postnatal Depression Scale (EPDS) and measures of minority stress and social support. Over one third (35.6%) of the sample scored in the clinical range on the EPDS. Experiences of discrimination were associated with greater depression symptoms via poor social support from family. Higher concealment motivation was associated with greater depression symptoms via poor family and partner support. There were no direct or indirect effects of internalized stigma on depression. Rates of clinically elevated perinatal depression symptoms among sexual minority women are high, extending previous research demonstrating mental health disparities between sexual minorities and their heterosexual counterparts to the perinatal period. The role of social support in mediating the relationships between minority stress and depression suggests that increasing partner and family support might be effective targets for therapeutic interventions during the perinatal period.
MeSH term(s)	Depression/epidemiology ; Depression/psychology ; Female ; Humans ; Pregnancy ; Prevalence ; Risk Factors ; Sexual and Gender Minorities ; Social Stigma
Language	English
Publishing date	2021-08-01
Publishing country	England
Document type	Journal Article
ZDB-ID	1169313-7
ISSN	1099-0879 ; 1063-3995
ISSN (online)	1099-0879
ISSN	1063-3995
DOI	10.1002/cpp.2653
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Article ; Online: Prospective Association of Parenting Stress with Later Child Behavior Problems in Early Childhood Autism.

O'Connor, Erin / Grant, Megan / Green, Cherie C / Treyvaud, Karli / Hudry, Kristelle

Journal of autism and developmental disorders

2023

Abstract: Purpose: Autistic children are reported to display higher levels of externalizing and internalizing behaviors than neurotypical children, and their parents report more stress than parents of neurotypical children. It is unclear whether child behavior ... ...

Abstract	Purpose: Autistic children are reported to display higher levels of externalizing and internalizing behaviors than neurotypical children, and their parents report more stress than parents of neurotypical children. It is unclear whether child behavior difficulties contribute to increased parenting stress, whether parenting stress contributes to child behavior difficulties, or whether the relationship may be bidirectional. Methods: We investigated prospective bidirectional associations between parenting stress and child externalizing and internalizing behaviors when autistic children were aged on average 3.5, 4.5, and 5.5 years. Data collected at these three timepoints were examined across two panels: Time 1 to Time 2 (n = 38 parent-child dyads) and Time 2 to Time 3 (n = 27 dyads). Results: Across Time 1 to Time 2, early parenting stress was significantly associated with later child externalizing behavior, and cross-lagged panel analysis supported a uni- rather than a bidirectional association between these factors. There was some evidence of a bidirectional association between parenting stress and child internalizing behavior, though this was non-significant when the strong stability of child internalizing behavior was statistically controlled. In contrast, across Time 2 to Time 3, there were no significant prospective associations found between variables, highlighting the importance of considering the impact of parenting stress early in the course of childhood autism. Conclusion: Our results add to research indicating that support targeting parent characteristics, especially parenting stress, could ameliorate subsequent outcomes for both parents and children.
Language	English
Publishing date	2023-12-07
Publishing country	United States
Document type	Journal Article
ZDB-ID	391999-7
ISSN	1573-3432 ; 0162-3257
ISSN (online)	1573-3432
ISSN	0162-3257
DOI	10.1007/s10803-023-06177-2
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Article ; Online: The lived experiences of critically ill infants hospitalised in neonatal intensive care: A scoping review.

Duffy, Natalie / Hickey, Leah / Treyvaud, Karli / Delany, Clare

Early human development

2020 Volume 151, Page(s) 105244

Abstract: Background: Neonatal intensive care saves lives, but the environment in which this occurs is complex and has been shown to negatively disrupt some aspects of an infant's early development. Identifying these negative effects has relied on measuring ... ...

Abstract	Background: Neonatal intensive care saves lives, but the environment in which this occurs is complex and has been shown to negatively disrupt some aspects of an infant's early development. Identifying these negative effects has relied on measuring physiological and behavioural responses. Little research has sought to understand and learn from what an individual infant can communicate about their lived experience. Aim: To examine what is known of the lived experiences of infants hospitalised in neonatal intensive care. Study design: A scoping review using the revised Arksey and O'Malley framework was undertaken. Relevant studies, exploring an infant's experience of hospitalisation were identified through a comprehensive, systematic literature search. Results: 4955 articles were retrieved, 88 full texts reviewed, and 23 studies included. We identified no studies that assessed the experience from the infant's perspective. The infant experience was explored using quantitative methodology, characterising, and describing the experience in measurable physiological, behavioural, and neurodevelopmental terms or through the lens of medical outcomes. The environment is described as too loud and too bright and infants are exposed to high levels of medical handling, impacting on physiology, behaviour, sleep, feeding, and both short- and longer-term outcomes. Conclusion: The studies captured in this review focused on quantitative, measurable outcomes as a proxy for the experience as it might be felt, interpreted, and processed by an infant. Medical focus has been crucial to advance the field of neonatology, but the review highlights an important gap; the need to explore and better understand the infant's experience through their eyes.
MeSH term(s)	Child Development ; Humans ; Infant Behavior ; Infant, Newborn ; Infant, Premature/growth & development ; Infant, Premature/psychology ; Intensive Care, Neonatal/methods ; Intensive Care, Neonatal/standards ; Stress, Psychological/epidemiology
Language	English
Publishing date	2020-10-26
Publishing country	Ireland
Document type	Journal Article ; Review
ZDB-ID	752532-1
ISSN	1872-6232 ; 0378-3782
ISSN (online)	1872-6232
ISSN	0378-3782
DOI	10.1016/j.earlhumdev.2020.105244
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Article ; Online: Early developmental interventions for infants born very preterm - what works?

Anderson, Peter J / Treyvaud, Karli / Spittle, Alicia J

Seminars in fetal & neonatal medicine

2020 Volume 25, Issue 3, Page(s) 101119

Abstract: Interventions are needed to enhance early development and minimise long-term impairments for children born very preterm (VP, <32 weeks' gestation) and their families. Given the role of the environment on the developing brain, the potential for ... ...

Abstract	Interventions are needed to enhance early development and minimise long-term impairments for children born very preterm (VP, <32 weeks' gestation) and their families. Given the role of the environment on the developing brain, the potential for developmental interventions that modify the infant's hospital and home environments to improve outcomes is high. Although early developmental interventions vary widely in focus, timing, and mode of delivery, evidence generally supports the effectiveness of these programs to improve specific outcomes for children born VP and their families. However, little is known about mechanisms for effectiveness, cost- and long-term effectiveness, which programs might work better for whom, and how to provide early intervention services equitably. This information is critical to facilitate systematic integration of effective developmental interventions into clinical care for infants born very preterm and their families.
MeSH term(s)	Brain/growth & development ; Child ; Child Development ; Child, Preschool ; Early Intervention, Educational/methods ; Humans ; Infant ; Infant, Extremely Premature ; Infant, Newborn ; Intensive Care, Neonatal/methods ; Outcome Assessment, Health Care ; Social Environment
Language	English
Publishing date	2020-05-15
Publishing country	Netherlands
Document type	Journal Article ; Research Support, Non-U.S. Gov't ; Review
ZDB-ID	2174416-6
ISSN	1878-0946 ; 1744-165X
ISSN (online)	1878-0946
ISSN	1744-165X
DOI	10.1016/j.siny.2020.101119
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Article ; Online: Associations between physical activity and development in preschool-aged children born <30 weeks' gestation: a cohort study.

FitzGerald, Tara L / Cameron, Kate L / Albesher, Reem A / Mentiplay, Benjamin F / Mainzer, Rheanna M / Burnett, Alice C / Treyvaud, Karli / Clark, Ross A / Anderson, Peter J / Cheong, Jeanie Ly / Doyle, Lex W / Spittle, Alicia J

Archives of disease in childhood. Fetal and neonatal edition

2024

Abstract: Objective: To investigate the effect of physical activity (PA) on development (motor, cognitive, social-emotional) in children 4-5 years old born <30 weeks' gestation, and to describe subgroups of children at risk of low PA in this cohort.: Design: ... ...

Abstract	Objective: To investigate the effect of physical activity (PA) on development (motor, cognitive, social-emotional) in children 4-5 years old born <30 weeks' gestation, and to describe subgroups of children at risk of low PA in this cohort. Design: Longitudinal cohort study. Patients: 123 children born <30 weeks were recruited at birth and assessed between 4 and 5 years' corrected age. Main outcome measures: Development was assessed using the Movement Assessment Battery for Children, Second Edition (MABC-2), Little Developmental Coordination Disorder Questionnaire (L-DCDQ), Wechsler Preschool and Primary Scale of Intelligence (Fourth Edition; WPPSI-IV), and Strengths and Difficulties Questionnaire (SDQ). To measure PA, children wore an accelerometer and parents completed a diary for 7 days. Effects of PA on developmental outcomes, and associations between perinatal risk factors and PA, were estimated using linear regression. Results: More accelerometer-measured PA was associated with better MABC-2 aiming and catching scores (average standard score increase per hour increase in PA: 0.54, 95% CI 0.11, 0.96; p=0.013), and lower WPPSI-IV processing speed index scores (average composite score decrease per hour increase in PA: -2.36, 95% CI -4.19 to -0.53; p=0.012). Higher accelerometer-measured PA was associated with better SDQ prosocial scores. Major brain injury in the neonatal period was associated with less moderate-vigorous and less unstructured PA at 4-5 years. Conclusions: Higher levels of PA are associated with aspects of motor, cognitive and social-emotional skill development in children 4-5 years old born <30 weeks. Those with major brain injury in the neonatal period may be more vulnerable to low PA at preschool age.
Language	English
Publishing date	2024-02-26
Publishing country	England
Document type	Journal Article
ZDB-ID	2007331-8
ISSN	1468-2052 ; 1359-2998
ISSN (online)	1468-2052
ISSN	1359-2998
DOI	10.1136/archdischild-2023-326045
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