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  1. Article ; Online: It's time to address the mental health needs of people with intellectual disability.

    Trollor, Julian N

    Australasian psychiatry : bulletin of Royal Australian and New Zealand College of Psychiatrists

    2018  Volume 26, Issue 6, Page(s) 575–576

    MeSH term(s) Australia ; Health Services Needs and Demand/standards ; Humans ; Intellectual Disability/rehabilitation ; Mental Health Services/standards ; Mentally Disabled Persons/rehabilitation
    Language English
    Publishing date 2018-11-28
    Publishing country England
    Document type Address ; Editorial
    ZDB-ID 2213198-X
    ISSN 1440-1665 ; 1039-8562
    ISSN (online) 1440-1665
    ISSN 1039-8562
    DOI 10.1177/1039856218809770
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  2. Article: Impact of post-release community mental health and disability support on reincarceration for prisoners with intellectual disability and serious mental illness in NSW, Australia.

    Trofimovs, Julian / Dowse, Leanne / Srasuebkul, Preeyaporn / Trollor, Julian N

    BJPsych open

    2023  Volume 9, Issue 2, Page(s) e44

    Abstract: Background: Prisoners with an intellectual disability are overrepresented in custody and more likely to reoffend and be reincarcerated compared with the general prison population. Although prisoners with intellectual disability have many of the same ... ...

    Abstract Background: Prisoners with an intellectual disability are overrepresented in custody and more likely to reoffend and be reincarcerated compared with the general prison population. Although prisoners with intellectual disability have many of the same risk factors for recidivism as the general prison population, the high rates of mental illness experienced by this group are key drivers of recidivism.
    Aims: We aimed to assess the impact of provision of post-release disability and community mental health support on rates of reincarceration in a cohort with identified intellectual disability and serious mental illness diagnosis.
    Method: We conducted a historical cohort study using linked administrative data-sets, including data on hospital admissions, community mental health, disability support and corrections custody in New South Wales, Australia (
    Results: Over the median follow-up period of 7.4 years, 73.7% (357) received community mental health support, 19.8% (96) received disability support and 18.6% (85) received a combination of supports during a post-release period from prison. Lower hazards of reincarceration in a post-release period were associated with receipt of community mental health support (hazard ratio [HR] = 0.58, CI 0.49-0.69,
    Conclusions: High rates of reincarceration for prisoners with intellectual disability and history of serious mental illness may be modifiable by provision of appropriate mental health and disability supports.
    Language English
    Publishing date 2023-02-27
    Publishing country England
    Document type Journal Article
    ZDB-ID 2829557-2
    ISSN 2056-4724
    ISSN 2056-4724
    DOI 10.1192/bjo.2023.9
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  3. Article ; Online: "I've Spent My Whole Life Striving to Be Normal": Internalized Stigma and Perceived Impact of Diagnosis in Autistic Adults.

    Huang, Yunhe / Trollor, Julian N / Foley, Kitty-Rose / Arnold, Samuel R C

    Autism in adulthood : challenges and management

    2023  Volume 5, Issue 4, Page(s) 423–436

    Abstract: Background: Receiving an autism diagnosis in adulthood often leads to improved self-understanding and deeper self-reflection, which can have major impacts on people's well-being and sense of identity. However, autism diagnosis also exposes individuals ... ...

    Abstract Background: Receiving an autism diagnosis in adulthood often leads to improved self-understanding and deeper self-reflection, which can have major impacts on people's well-being and sense of identity. However, autism diagnosis also exposes individuals to societal stigma, which may become internalized over time. This study aimed to explore relationships between psychological and service-related impacts of diagnosis and internalized stigma using mixed methods.
    Methods: One hundred forty-three autistic adults completed an online survey involving impact of diagnosis domains of Self-Understanding, Well-being, Clinician Support, and Service Access, internalized stigma, and open-ended questions on beliefs about autism diagnosis.
    Results: On average, participants reported mild levels of internalized stigma and positive impact of diagnosis in all domains except Service Access. Older age at diagnosis was positively associated with Clinician Support only. The path analysis model showed positive relationships between impact of diagnosis domains, with Self-Understanding having a positive effect on Well-being via lowered internalized stigma. We developed four themes of
    Conclusions: Self-understanding protects against the development of internalized autism stigma. Diagnosticians and service providers play an important role in improving self-understanding and well-being in autistic adults. More research is needed to understand the role of age at diagnosis and mechanisms behind positive identity development after autism diagnosis.
    Language English
    Publishing date 2023-12-12
    Publishing country United States
    Document type Journal Article
    ISSN 2573-959X
    ISSN (online) 2573-959X
    DOI 10.1089/aut.2022.0066
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  4. Article ; Online: Potentially preventable hospitalisations of people with intellectual disability in New South Wales.

    Weise, Janelle C / Srasuebkul, Preeyaporn / Trollor, Julian N

    The Medical journal of Australia

    2022  Volume 216, Issue 3, Page(s) 161

    MeSH term(s) Hospitalization ; Humans ; Intellectual Disability/epidemiology ; New South Wales/epidemiology ; Primary Health Care
    Language English
    Publishing date 2022-01-18
    Publishing country Australia
    Document type Letter ; Comment
    ZDB-ID 186082-3
    ISSN 1326-5377 ; 0025-729X
    ISSN (online) 1326-5377
    ISSN 0025-729X
    DOI 10.5694/mja2.51390
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  5. Article ; Online: A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis.

    Huang, Yunhe / Arnold, Samuel R C / Foley, Kitty-Rose / Trollor, Julian N

    Journal of autism and developmental disorders

    2022  Volume 54, Issue 3, Page(s) 1157–1170

    Abstract: Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. ... ...

    Abstract Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families.
    MeSH term(s) Adult ; Child ; Humans ; Autistic Disorder/diagnosis ; Autism Spectrum Disorder/diagnosis ; Qualitative Research ; Child Development Disorders, Pervasive ; Educational Status
    Language English
    Publishing date 2022-12-09
    Publishing country United States
    Document type Journal Article
    ZDB-ID 391999-7
    ISSN 1573-3432 ; 0162-3257
    ISSN (online) 1573-3432
    ISSN 0162-3257
    DOI 10.1007/s10803-022-05828-0
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  6. Article ; Online: Experiences of Support Following Autism Diagnosis in Adulthood.

    Huang, Yunhe / Arnold, Samuel R C / Foley, Kitty-Rose / Trollor, Julian N

    Journal of autism and developmental disorders

    2022  Volume 54, Issue 2, Page(s) 518–531

    Abstract: This study aimed to explore experiences of support after adulthood autism diagnosis. In this mixed-methods survey study of 137 adults, we found that most common formal supports received were counselling and mental health. Common unmet support needs were ... ...

    Abstract This study aimed to explore experiences of support after adulthood autism diagnosis. In this mixed-methods survey study of 137 adults, we found that most common formal supports received were counselling and mental health. Common unmet support needs were sensory sensitivities and accessing other services. Cost, lack of information, and fear of not being taken seriously were common barriers. Informal support was mainly helpful for self-understanding and emotions toward diagnosis. Qualitative findings included difficulties accessing formal support, need for practical quality-of-life supports and support from autistic peers and online communities. Based on these findings, future development of supportive interventions should address unmet needs, improve access, and explore the integration of autistic peer support and online support into formal services.
    MeSH term(s) Adult ; Child ; Humans ; Autistic Disorder/diagnosis ; Autistic Disorder/psychology ; Autism Spectrum Disorder/diagnosis ; Autism Spectrum Disorder/psychology ; Child Development Disorders, Pervasive ; Surveys and Questionnaires ; Emotions
    Language English
    Publishing date 2022-11-21
    Publishing country United States
    Document type Journal Article
    ZDB-ID 391999-7
    ISSN 1573-3432 ; 0162-3257
    ISSN (online) 1573-3432
    ISSN 0162-3257
    DOI 10.1007/s10803-022-05811-9
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  7. Article ; Online: Potentially preventable hospitalisations of people with intellectual disability in New South Wales.

    Weise, Janelle C / Srasuebkul, Preeyaporn / Trollor, Julian N

    The Medical journal of Australia

    2021  Volume 215, Issue 1, Page(s) 31–36

    Abstract: Objective: To determine rates of potentially preventable hospitalisation of people with intellectual disability in New South Wales, and compare them with those for the NSW population.: Design: Retrospective cohort study.: Setting: Potentially ... ...

    Abstract Objective: To determine rates of potentially preventable hospitalisation of people with intellectual disability in New South Wales, and compare them with those for the NSW population.
    Design: Retrospective cohort study.
    Setting: Potentially preventable hospitalisations in NSW, as defined by the National Healthcare Agreement progress indicator 18, 1 July 2001 - 30 June 2015.
    Participants: Data collected in a retrospective data linkage study of 92 542 people with intellectual disability in NSW; potentially preventable hospitalisations data for NSW published by HealthStats NSW.
    Main outcome measures: Age-adjusted rates of potentially preventable hospitalisation by group (people with intellectual disability, NSW population), medical condition type (acute, chronic, vaccine-preventable), and medical condition.
    Results: The annual age-standardised rate for people with intellectual disability ranged between 5286 and 6301 per 100 000 persons, and for the NSW population between 1278 and 1511 per 100 000 persons; the rate ratio (RR) ranged between 3.5 (95% CI, 3.3-3.7) in 2014-15 and 4.5 (95% CI, 4.2-4.9) in 2002-03. The difference was greatest for admissions with acute (RR range: 5.3 [95% CI, 4.9-5.7] in 2014-15 to 8.1 [95% CI, 7.4-8.8] in 2002-03) and vaccine-preventable conditions (RR range: 2.1 [95% CI, 1.6-3.0] in 2007-08 to 3.4 [95% CI, 2.2-5.2] in 2004-05). By specific condition, the highest age-standardised rate was for admissions with convulsions and epilepsy (all years, 2567 per 100 000 population; v NSW population: RR, 22.2; 95% CI, 21.3-23.1).
    Conclusion: Age-standardised rates of potentially preventable hospitalisation are higher for people with intellectual disability than for the general population. The reasons for these differences should be investigated, and strategies for averting potentially preventable hospitalisation developed.
    MeSH term(s) Acute Disease/therapy ; Adolescent ; Adult ; Aged ; Child ; Child, Preschool ; Chronic Disease/therapy ; Female ; Hospitalization/statistics & numerical data ; Humans ; Infant ; Infant, Newborn ; Male ; Middle Aged ; New South Wales/epidemiology ; Persons with Mental Disabilities/statistics & numerical data ; Retrospective Studies ; Young Adult
    Language English
    Publishing date 2021-05-24
    Publishing country Australia
    Document type Journal Article
    ZDB-ID 186082-3
    ISSN 1326-5377 ; 0025-729X
    ISSN (online) 1326-5377
    ISSN 0025-729X
    DOI 10.5694/mja2.51088
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  8. Article ; Online: Suicide by young Australians, 2006-2015: a cross-sectional analysis of national coronial data.

    Hedley, Darren / Stokes, Mark A / Trollor, Julian N

    The Medical journal of Australia

    2021  Volume 216, Issue 1, Page(s) 53

    MeSH term(s) Australia/epidemiology ; Coroners and Medical Examiners ; Cross-Sectional Studies ; Humans ; Suicide
    Language English
    Publishing date 2021-11-30
    Publishing country Australia
    Document type Letter ; Comment
    ZDB-ID 186082-3
    ISSN 1326-5377 ; 0025-729X
    ISSN (online) 1326-5377
    ISSN 0025-729X
    DOI 10.5694/mja2.51359
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  9. Article ; Online: Barriers to healthcare for Australian autistic adults.

    Arnold, Samuel Rc / Bruce, Georgia / Weise, Janelle / Mills, Caroline J / Trollor, Julian N / Coxon, Kristy

    Autism : the international journal of research and practice

    2023  Volume 28, Issue 2, Page(s) 301–315

    Abstract: Lay abstract: This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 ... ...

    Abstract Lay abstract: This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge.
    MeSH term(s) Adult ; Humans ; Australia ; Autistic Disorder ; Autism Spectrum Disorder ; Anxiety ; Health Services Accessibility
    Language English
    Publishing date 2023-05-10
    Publishing country England
    Document type Journal Article
    ZDB-ID 1338513-6
    ISSN 1461-7005 ; 1362-3613
    ISSN (online) 1461-7005
    ISSN 1362-3613
    DOI 10.1177/13623613231168444
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    Zs.A 5838: Show issues Location:
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  10. Article ; Online: Confirming the nature of autistic burnout.

    Arnold, Samuel Rc / Higgins, Julianne M / Weise, Janelle / Desai, Aishani / Pellicano, Elizabeth / Trollor, Julian N

    Autism : the international journal of research and practice

    2023  Volume 27, Issue 7, Page(s) 1906–1918

    Abstract: Lay abstract: Autistic burnout is something autistic people have been talking about for a while (see #AutBurnout and #AutisticBurnout on social media). Recently, researchers published two different definitions of autistic burnout. We wanted to test ... ...

    Abstract Lay abstract: Autistic burnout is something autistic people have been talking about for a while (see #AutBurnout and #AutisticBurnout on social media). Recently, researchers published two different definitions of autistic burnout. We wanted to test these definitions. We wanted to confirm the duration and frequency of autistic burnout. That is, how long and how often do people get autistic burnout? We surveyed 141 autistic adults who had autistic burnout. We used descriptive statistics, content analysis and reflexive thematic analysis to analyse the survey responses. Autistic adults strongly agreed with the definition published by Higgins et al. How long and how often people get autistic burnout was not clear. Participants told us they have both short and long episodes. Participants told us that autistic burnout leads to exhaustion. They needed to withdraw from being with other people. They needed to stay away from autism unfriendly places. Many had been misdiagnosed as having depression, anxiety, bipolar disorder, borderline personality disorder or other conditions. We need increased awareness of autistic burnout. Autistic people need more help. More research is needed, we need to have bigger studies to understand autistic burnout.
    MeSH term(s) Adult ; Humans ; Autistic Disorder ; Autism Spectrum Disorder ; Anxiety ; Anxiety Disorders ; Research Personnel
    Language English
    Publishing date 2023-01-13
    Publishing country England
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 1338513-6
    ISSN 1461-7005 ; 1362-3613
    ISSN (online) 1461-7005
    ISSN 1362-3613
    DOI 10.1177/13623613221147410
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