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  1. Article ; Online: Getting back or giving back

    Mikołaj Zarzycki / Val Morrison

    Health Psychology and Behavioral Medicine, Vol 9, Iss 1, Pp 636-

    understanding caregiver motivations and willingness to provide informal care

    2021  Volume 661

    Abstract: Background: Informal caregivers are those providing care, which exceeds that which is typically provided, to a relative or friend with care needs. Informal caregiving constitutes the backbone of a society’s care supply and with ageing populations the ... ...

    Abstract Background: Informal caregivers are those providing care, which exceeds that which is typically provided, to a relative or friend with care needs. Informal caregiving constitutes the backbone of a society’s care supply and with ageing populations the need for informal care is growing. We know little as to why caregivers start caring and continue doing so, yet understanding of motivations and willingness to provide care is important if informal caregivers are to be supported. However, both motivations and willingness are inconsistently defined making it difficult to compare the empirical findings that do exist. Methods: This paper reviews and synthesises thinking about the theoretical constructs of motivations to provide care and willingness to perform informal care, and presents those in relation to existing theoretical and empirical literature. Results and Conclusions: Theoretical reflections based on various motivational frameworks and available empirical data are presented to illustrate that: caregiving motivations should be conceptualised as multifaceted and multiply determined; intrinsic and extrinsic motivations should not be treated as antagonistic and can occur simultaneously; the commonly applied model of extrinsic/intrinsic motivations is oversimplified and omits consideration of the diversity of caregiver motives; other motivational models can be discerned in the context of the empirical research; there are differences between motivations and willingness to provide care with the latter being more consequent to the motives; both should be considered dynamic in nature; and finally, that the two constructs may not inevitably lead to actual caregiver behaviour. The implications of these theoretical reflections for methodology and research as well as their relevance for practice and policy are indicated.
    Keywords informal caregiving ; motivations to provide care ; caregiver motives ; filial obligation ; willingness to provide care ; Medicine ; R ; Psychology ; BF1-990
    Subject code 360
    Language English
    Publishing date 2021-01-01T00:00:00Z
    Publisher Taylor & Francis Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  2. Article ; Online: “You don't have to perform for the trees”

    Heli Gittins / Dr. Norman Dandy / Dr. Sophie Wynne-Jones / Prof. Val Morrison

    Wellbeing, Space and Society, Vol 5, Iss , Pp 100160- (2023)

    The longer-term effects of nature-based interventions on wellbeing

    2023  

    Abstract: The health and wellbeing benefits of engagement with the natural environment are well documented, but a lack of prospective research means that the sustainability of effects is unknown. Nature-based interventions (NBIs) seek to extend benefits to a wide, ...

    Abstract The health and wellbeing benefits of engagement with the natural environment are well documented, but a lack of prospective research means that the sustainability of effects is unknown. Nature-based interventions (NBIs) seek to extend benefits to a wide, socially inclusive range of people. The primary aim of this study was to develop an improved understanding of one such initiative on personal wellbeing over time.The study involved adults recruited from Actif Woods Wales, a pan-Wales woodland activity programme. A questionnaire using validated measures assessed participants at baseline (n = 120), end of course (n = 74) and three months later (n = 57), in terms of mental wellbeing, social trust, self-reported health, self-efficacy, self-esteem and physical activity. A parallel qualitative study sought in-depth appreciation of processes of change with five end of course and four follow up focus groups.Significant positive increases were demonstrated in all psychosocial measures by end of course. These gains held at the follow up stage providing critical evidence of maintained change. Thematic analysis of the qualitative data revealed positive shifts in self-perspective that were reflected in wider lifestyle changes. Participant narratives showed how social processes and nature played an important role in supporting the wellbeing benefits experienced.This mixed methods study addressed identified gaps for research that furthers understanding of how NBIs can support health and wellbeing longer term. Findings point to a need for sustainable funding and support for NBI projects to embed the role that they can play in delivering therapeutic and preventative outcomes.
    Keywords Wellbeing ; Nature-based intervention ; Maintained change ; Self-efficacy ; UK ; Human ecology. Anthropogeography ; GF1-900 ; Social sciences (General) ; H1-99
    Subject code 360
    Language English
    Publishing date 2023-12-01T00:00:00Z
    Publisher Elsevier
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  3. Article ; Online: Cohort profile

    Saif Elayan / Eva Bei / Giulia Ferraris / Oliver Fisher / Mikołaj Zarzycki / Viola Angelini / Lena Ansmann / Erik Buskens / Mariët Hagedoorn / Milena von Kutzleben / Giovanni Lamura / Anne Looijmans / Robbert Sanderman / Noa Vilchinsky / Val Morrison

    PLoS ONE, Vol 19, Iss

    The ENTWINE iCohort study, a multinational longitudinal web-based study of informal care

    2024  Volume 1

    Keywords Medicine ; R ; Science ; Q
    Language English
    Publishing date 2024-01-01T00:00:00Z
    Publisher Public Library of Science (PLoS)
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  4. Article ; Online: A Multinational Longitudinal Study Incorporating Intensive Methods to Examine Caregiver Experiences in the Context of Chronic Health Conditions

    Val Morrison / Mikołaj Zarzycki / Noa Vilchinsky / Robbert Sanderman / Giovanni Lamura / Oliver Fisher / Giulia Ferraris / Saif Elayan / Erik Buskens / Eva Bei / Anne Looijmans / Viola Angelini / Mariët Hagedoorn

    International Journal of Environmental Research and Public Health, Vol 19, Iss 821, p

    Protocol of the ENTWINE-iCohort

    2022  Volume 821

    Abstract: Informal caregivers are those who provide unpaid care to a relative or friend with a chronic illness, disability or other long-lasting health or care need. Providing informal care in the context of chronic health conditions presents a significant global ... ...

    Abstract Informal caregivers are those who provide unpaid care to a relative or friend with a chronic illness, disability or other long-lasting health or care need. Providing informal care in the context of chronic health conditions presents a significant global challenge. Examination of the determinants of informal caregivers’ behaviour, especially in terms of motivations and willingness to provide/receive care, is crucial to understanding the nature of caregiver and care recipient experiences. A large group of international researchers have co-operated to execute the ENTWINE iCohort-a multinational, transdisciplinary, longitudinal study incorporating intensive methods to examine caregiver experiences in the context of chronic health conditions. The aim of ENTWINE-iCohort is to investigate the broad spectrum of factors, i.e., cultural, personal, geographical, relational, psychological, and economic that may affect motivations, willingness to provide or receive care, among diverse groups of informal caregivers and their care recipients, in different countries that have different care systems. Study questionnaires will be disseminated on-line in nine countries: Germany, Greece, Ireland, Italy, Israel, the Netherlands, Poland, Sweden, and the UK. Cross-sectional and longitudinal multivariate analysis, including intensive longitudinal and dyadic data analysis will be applied to examine the relative contribution of the above factors to caregiver or care recipient wellbeing.
    Keywords informal caregiving ; multinational ; caregiver motivations ; wellbeing ; Medicine ; R
    Subject code 360
    Language English
    Publishing date 2022-01-01T00:00:00Z
    Publisher MDPI AG
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  5. Article ; Online: Equity reporting

    Lesley Ann Dyck / Susan Snelling / Val Morrison / Margaret Haworth-Brockman / Donna Atkinson

    Health Promotion and Chronic Disease Prevention in Canada, Vol 38, Iss 3, Pp 116-

    a framework for putting knowledge mobilization and health equity at the core of population health status reporting

    2018  Volume 124

    Abstract: The National Collaborating Centres for Public Health (NCCPH) collaborated on the development of an action framework for integrating equity into population health status reporting. This framework integrates the research literature with on-the-ground ... ...

    Abstract The National Collaborating Centres for Public Health (NCCPH) collaborated on the development of an action framework for integrating equity into population health status reporting. This framework integrates the research literature with on-the-ground experience collected using a unique collaborative learning approach with public health practitioners from across Canada. This article introduces the Action Framework, describes the learning process, and then situates population health status reporting (PHSR) in the current work of the public health sector. This is followed by a discussion of the nature of evidence related to the social determinants of health as a key aspect of deciding what and how to report. Finally, the connection is made between data and implementation by exploring the concept of actionable information and detailing the Action Framework for equity-integrated population health status reporting. The article concludes with a discussion of the importance of putting knowledge mobilization at the core of the PHSR process and makes suggestions for next steps. The purpose of the article is to encourage practitioners to use, discuss, and ultimately strengthen the framework.
    Keywords population health status reporting ; health equity ; inequity ; social determinants of health ; knowledge mobilization ; Medicine (General) ; R5-920
    Subject code 360
    Language English
    Publishing date 2018-03-01T00:00:00Z
    Publisher Public Health Agency of Canada
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  6. Article ; Online: Intégrer la notion d’équité

    Lesley Ann Dyck / Susan Snelling / Val Morrison / Margaret Haworth-Brockman / Donna Atkinson

    Promotion de la santé et prévention des maladies chroniques au Canada, Vol 38, Iss 3, Pp 131-

    création d'un cadre d'action pour placer la mobilisation du savoir et l’équité en santé au coeur des rapports sur l’état de santé des populations

    2018  Volume 140

    Abstract: Les centres de collaboration nationale en santé publique (CCNSP) ont collaboré à l’élaboration d’un cadre d’action visant à intégrer la notion d’équité dans les rapports sur l’état de santé des populations (RESP). Ce cadre d’action rassemble les comptes ... ...

    Abstract Les centres de collaboration nationale en santé publique (CCNSP) ont collaboré à l’élaboration d’un cadre d’action visant à intégrer la notion d’équité dans les rapports sur l’état de santé des populations (RESP). Ce cadre d’action rassemble les comptes rendus de recherche et une expérience de terrain fondée sur une approche originale d’apprentissage collaboratif faisant appel aux praticiens en santé publique du Canada. Dans cet article, nous présentons le cadre d’action, nous décrivons le processus d’apprentissage et nous situons les RESP au sein des travaux en cours dans le secteur de la santé publique. Nous analysons ensuite la nature des données probantes sur les déterminants sociaux de la santé à titre de dimension clé pour déterminer sur quoi portent les rapports et comment ces données y sont intégrées. Enfin, nous établissons le lien entre les données et la mise en oeuvre en explorant le concept de renseignements exploitables et en détaillant le cadre d’action visant à intégrer la notion d’équité dans les RESP. Nous concluons sur l’importance de placer la mobilisation du savoir au coeur du processus d’élaboration des RESP et nous apportons des suggestions pour les prochaines étapes. Notre objectif est d’encourager les praticiens à utiliser le cadre d’action, à en discuter et, ultimement, à le renforcer.
    Keywords rapports sur l’état de santé des populations ; équité en santé ; iniquité ; déterminants sociaux de la santé ; mobilisation du savoir ; Medicine (General) ; R5-920
    Language English
    Publishing date 2018-01-01T00:00:00Z
    Publisher Agence de la santé publique du Canada
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  7. Article ; Online: Promoting physical activity and physical function in people with long-term conditions in primary care

    Rebecca-Jane Law / Joseph Langley / Beth Hall / Christopher Burton / Julia Hiscock / Lynne Williams / Val Morrison / Andrew B Lemmey / Candida Lovell-Smith / John Gallanders / Jennifer Cooney / Nefyn H Williams

    Health Services and Delivery Research, Vol 9, Iss

    the Function First realist synthesis with co-design

    2021  Volume 16

    Abstract: Background: As people age and accumulate long-term conditions, their physical activity and physical function declines, resulting in disability and loss of independence. Primary care is well placed to empower individuals and communities to reduce this ... ...

    Abstract Background: As people age and accumulate long-term conditions, their physical activity and physical function declines, resulting in disability and loss of independence. Primary care is well placed to empower individuals and communities to reduce this decline; however, the best approach is uncertain. Objectives: To develop a programme theory to explain the mechanisms through which interventions improve physical activity and physical function in people with long-term conditions in different primary care contexts, and to co-design a prototype intervention. Data sources: Systematic literature searches of relevant databases with forwards and backwards citation tracking, grey literature searches and further purposive searches were conducted. Qualitative data were collected through workshops and interviews. Design: Realist evidence synthesis and co-design for primary care service innovation. Setting: Primary care in Wales and England. Participants: Stakeholders included people with long-term conditions, primary care professionals, people working in relevant community roles and researchers. Methods: The realist evidence synthesis combined evidence from varied sources of literature with the views, experiences and ideas of stakeholders. The resulting context, mechanism and outcome statements informed three co-design workshops and a knowledge mobilisation workshop for primary care service innovation. Results: Five context, mechanism and outcome statements were developed. (1) Improving physical activity and function is not prioritised in primary care (context). If the practice team culture is aligned to the elements of physical literacy (mechanism), then physical activity promotion will become routine and embedded in usual care (outcome). (2) Physical activity promotion is inconsistent and unco-ordinated (context). If specific resources are allocated to physical activity promotion (in combination with a supportive practice culture) (mechanism), then this will improve opportunities to change behaviour (outcome). (3) People with long-term conditions have varying levels of physical function and physical activity, varying attitudes to physical activity and differing access to local resources that enable physical activity (context). If physical activity promotion is adapted to individual needs, preferences and local resources (mechanism), then this will facilitate a sustained improvement in physical activity (outcome). (4) Many primary care practice staff lack the knowledge and confidence to promote physical activity (context). If staff develop an improved sense of capability through education and training (mechanism), then they will increase their engagement with physical activity promotion (outcome). (5) If a programme is credible with patients and professionals (context), then trust and confidence in the programme will develop (mechanism) and more patients and professionals will engage with the programme (outcome). A prototype multicomponent intervention was developed. This consisted of resources to nurture a culture of physical literacy, materials to develop the role of a credible professional who can promote physical activity using a directory of local opportunities and resources to assist with individual behaviour change. Limitations: Realist synthesis and co-design is about what works in which contexts, so these resources and practice implications will need to be modified for different primary care contexts. Conclusions: We developed a programme theory to explain how physical activity could be promoted in primary care in people with long-term conditions, which informed a prototype intervention. Future work: A future research programme could further develop the prototype multicomponent intervention and assess its acceptability in practice alongside existing schemes before it is tested in a feasibility study to inform a future randomised controlled trial. Study registration: This study is registered as PROSPERO CRD42018103027. Funding: This project was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme and will be published in full in Health Services and Delivery Research; Vol. 9, No. 16. See the NIHR Journals Library website for further project information.
    Keywords exercise ; functional capacity ; chronic disease ; general practice ; realist review ; design ; co-production ; Public aspects of medicine ; RA1-1270 ; Medicine (General) ; R5-920
    Subject code 360
    Language English
    Publishing date 2021-09-01T00:00:00Z
    Publisher National Institute for Health Research
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  8. Article ; Online: ‘Function First’

    Rebecca-Jane Law / Julia Hiscock / Christopher Burton / Lynne Williams / Joseph Langley / Beth Hall / Val Morrison / Andrew Lemmey / Candida Lovell-Smith / John Gallanders / Nefyn Williams / Jennifer Kate Cooney

    BMJ Open, Vol 11, Iss

    how to promote physical activity and physical function in people with long-term conditions managed in primary care? A study combining realist and co-design methods

    2021  Volume 7

    Abstract: Objectives To develop a taxonomy of interventions and a programme theory explaining how interventions improve physical activity and function in people with long-term conditions managed in primary care. To co-design a prototype intervention informed by ... ...

    Abstract Objectives To develop a taxonomy of interventions and a programme theory explaining how interventions improve physical activity and function in people with long-term conditions managed in primary care. To co-design a prototype intervention informed by the programme theory.Design Realist synthesis combining evidence from a wide range of rich and relevant literature with stakeholder views. Resulting context, mechanism and outcome statements informed co-design and knowledge mobilisation workshops with stakeholders to develop a primary care service innovation.Results A taxonomy was produced, including 13 categories of physical activity interventions for people with long-term conditions.Abridged realist programme theory Routinely addressing physical activity within consultations is dependent on a reinforcing practice culture, and targeted resources, with better coordination, will generate more opportunities to address low physical activity. The adaptation of physical activity promotion to individual needs and preferences of people with long-term conditions helps affect positive patient behaviour change. Training can improve knowledge, confidence and capability of practice staff to better promote physical activity. Engagement in any physical activity promotion programme will depend on the degree to which it makes sense to patients and professions, and is seen as trustworthy.Co-design The programme theory informed the co-design of a prototype intervention to: improve physical literacy among practice staff; describe/develop the role of a physical activity advisor who can encourage the use of local opportunities to be more active; and provide materials to support behaviour change.Conclusions Previous physical activity interventions in primary care have had limited effect. This may be because they have only partially addressed factors emerging in our programme theory. The co-designed prototype intervention aims to address all elements of this emergent theory, but needs further development and consideration alongside ...
    Keywords Medicine ; R
    Subject code 796
    Language English
    Publishing date 2021-07-01T00:00:00Z
    Publisher BMJ Publishing Group
    Document type Article ; Online
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  9. Article ; Online: The physical and psychological impact of using a computer-based environmental control system: a case study.

    Squires, Luke A / Rush, Frank / Hopkinson, Andrew / Val, Morrison

    Disability and rehabilitation. Assistive technology

    2013  Volume 8, Issue 5, Page(s) 434–443

    Abstract: Purpose: To evaluate a new computer-based environmental control system, Subvenio, in terms of its physical and psychological impact in a single case study of a 46-year-old woman with a severe physical disability, tetraplegia. Expectations of the system ... ...

    Abstract Purpose: To evaluate a new computer-based environmental control system, Subvenio, in terms of its physical and psychological impact in a single case study of a 46-year-old woman with a severe physical disability, tetraplegia. Expectations of the system and factors relating to successful Subvenio use were also sought.
    Method: A longitudinal questionnaire measured function (BI; FAI), mental health and wellbeing (GHQ-12; WHO-5) 6 weeks before, and 10 and 26 weeks after Subvenio installation. Expectations and Subvenio experience were explored through open-ended questions. Daily assessment of mood and Subvenio use was also recorded for a one-week period in-between each time point.
    Results: Data obtained did not suggest changes in global functioning or emotional wellbeing whilst activity increased for specific everyday tasks such as turning on the lights and television. Qualitatively, other benefits of Subvenio were identified such as independence and less reliance on carers.
    Conclusions: Computer-based assistive technology (AT) points to qualitative benefits for this individual, encouraging further research with larger samples. Various factors facilitated Subvenio use and the benefits derived from it, including device factors and personal characteristics (e.g. pain). Healthcare and service providers should communicate with AT/environmental control system users about these factors before and during provision to maximise benefits and limit AT abandonment. Implications for Rehabilitation One implication from this study is that AT development should focus on the factors influencing successful AT use. In this study notably, optimism, expectations of AT, pain, symptom changes and service delivery are all highlighted. Communication between AT service providers and AT users is encouraged to prevent unrealistic expectations of AT equipment, and such communication should continue throughout AT use to ensure the equipment is still meeting the user needs. An integration of quantitative and qualitative methods of data collection is encouraged in order to fully understand the relationship between AT/ECS and physical and psychological outcomes due to the differences yielded. As seen in our data, ECS has the potential to save money and time with reports of reduced care received and reduced negative attitudes to receiving care. The response of carers to this requires further research so that their perception and experience of AT/ECS is taken into account.
    MeSH term(s) Disabled Persons/psychology ; Disabled Persons/rehabilitation ; Environment ; Female ; Humans ; Mental Health ; Middle Aged ; Patient Satisfaction ; Quadriplegia/psychology ; Quadriplegia/rehabilitation ; Quality of Life ; Self-Help Devices
    Language English
    Publishing date 2013-09
    Publishing country England
    Document type Case Reports ; Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 2221782-4
    ISSN 1748-3115 ; 1748-3107
    ISSN (online) 1748-3115
    ISSN 1748-3107
    DOI 10.3109/17483107.2012.749427
    Database MEDical Literature Analysis and Retrieval System OnLINE

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