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  1. Book ; Online ; E-Book: Behavioral intervention research in hospice and palliative care

    Demiris, George / Oliver, Debra Parker / Washington, Karla T.

    building an evidence base

    2019  

    Title variant Improving hospice palliative care with intervention research
    Author's details George Demiris, Debra Parker Oliver, Karla T. Washington
    Language English
    Size 1 Online-Ressource (xxi, 152 Seiten), Illustrationen, Diagramme
    Publisher Academic Press, an imprint of Elsevier
    Publishing place London
    Publishing country Great Britain
    Document type Book ; Online ; E-Book
    Remark Zugriff für angemeldete ZB MED-Nutzerinnen und -Nutzer
    HBZ-ID HT019867204
    ISBN 978-0-12-814450-3 ; 9780128144497 ; 0-12-814450-5 ; 0128144491
    Database ZB MED Catalogue: Medicine, Health, Nutrition, Environment, Agriculture

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  2. Article ; Online: Identifying the Unmet Needs of People Living With Amyotrophic Lateral Sclerosis: A National Survey to Inform Interdisciplinary Palliative Care.

    Washington, Karla T / Mechling, Charlton A / Pitzer, Kyle A / Maiser, Samuel / Mehta, Ambereen K

    The American journal of hospice & palliative care

    2024  , Page(s) 10499091241248653

    Abstract: Introduction/Aims: ...

    Abstract Introduction/Aims:
    Language English
    Publishing date 2024-04-24
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1074344-3
    ISSN 1938-2715 ; 1049-9091
    ISSN (online) 1938-2715
    ISSN 1049-9091
    DOI 10.1177/10499091241248653
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  3. Article ; Online: Sense making in the wake of familial death: "I continue to work through those feelings".

    Rolbiecki, Abigail J / Washington, Karla T / Holman, Jason G / Lee, Jonathan E

    Death studies

    2023  , Page(s) 1–8

    Abstract: Sense making is especially common in bereavement when a death challenges an individual's existing worldview. Thus, it is often discussed in the context of statistically atypical deaths, such as the death of a child or death by suicide, that are apt to ... ...

    Abstract Sense making is especially common in bereavement when a death challenges an individual's existing worldview. Thus, it is often discussed in the context of statistically atypical deaths, such as the death of a child or death by suicide, that are apt to create a crisis of meaning. Less understood is the process of sense making following more statistically normative deaths, such as those that occur in old age following prolonged illness. In this descriptive phenomenological study, researchers analyzed qualitative interviews and digital narratives created by six individuals who had experienced the death of an older family member with dementia, seeking to identify the essential nature of sense making during bereavement following so-called "normal" losses. Three themes (memorializing the whole person, reflecting on the caregiving experience, and emotional sense making) were identified, shedding light on this specific meaning making process among individuals representing a large and growing segment of the population.
    Language English
    Publishing date 2023-09-19
    Publishing country United States
    Document type Journal Article
    ZDB-ID 632596-8
    ISSN 1091-7683 ; 0748-1187
    ISSN (online) 1091-7683
    ISSN 0748-1187
    DOI 10.1080/07481187.2023.2258509
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  4. Article ; Online: Hospice Social Work Preferences for the Delivery of Facebook Support Groups: A Discrete Choice Experiment.

    Oliver, Debra Parker / Eshun-Wilsonova, Ingrid / Benson, Jacquelyn / Pitzer, Kyle / Washington, Karla T

    The American journal of hospice & palliative care

    2023  Volume 40, Issue 12, Page(s) 1339–1348

    Abstract: Dissemination and implementation of evidence-based interventions is best accomplished with input from stakeholders. This project used a Discrete Choice Experiment to determine the preferences of a nationwide sample of hospice social workers toward the ... ...

    Abstract Dissemination and implementation of evidence-based interventions is best accomplished with input from stakeholders. This project used a Discrete Choice Experiment to determine the preferences of a nationwide sample of hospice social workers toward the most preferred way to scale the delivery of an online support group. While the majority of social workers preferred referring caregivers to online support groups facilitated outside their agency rather than to facilitate groups themselves, the results were not statistically significant. Social workers reported concerns with both options. Further work with stakeholders is needed to develop implementation strategies and determine the feasibility of both options.
    MeSH term(s) Humans ; Hospices ; Social Media ; Hospice Care ; Social Work ; Self-Help Groups ; Caregivers ; Social Support
    Language English
    Publishing date 2023-01-19
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1074344-3
    ISSN 1938-2715 ; 1049-9091
    ISSN (online) 1938-2715
    ISSN 1049-9091
    DOI 10.1177/10499091231152442
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  5. Article ; Online: Live Discharge of Hospice Patients with Alzheimer's Disease and Related Dementias: A Systematic Review.

    Wladkowski, Stephanie P / Wallace, Cara L / Coccia, Kathryn / Hyde, Rebecca C / Hinyard, Leslie / Washington, Karla T

    The American journal of hospice & palliative care

    2023  Volume 41, Issue 2, Page(s) 228–239

    Abstract: Background: ...

    Abstract Background:
    MeSH term(s) Humans ; Patient Discharge ; Hospices ; Alzheimer Disease ; Quality of Life ; Hospice Care
    Language English
    Publishing date 2023-03-28
    Publishing country United States
    Document type Systematic Review ; Journal Article
    ZDB-ID 1074344-3
    ISSN 1938-2715 ; 1049-9091
    ISSN (online) 1938-2715
    ISSN 1049-9091
    DOI 10.1177/10499091231168401
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  6. Article ; Online: Family Caregiver Communication and Perceptions of Involvement in Hospice Care.

    Bharadwaj, Archana / Oliver, Debra Parker / Washington, Karla T / Benson, Jacquelyn / Pitzer, Kyle / White, Patrick / Demiris, George

    Journal of palliative medicine

    2024  

    Abstract: Background: ...

    Abstract Background:
    Language English
    Publishing date 2024-01-24
    Publishing country United States
    Document type Journal Article
    ZDB-ID 1427361-5
    ISSN 1557-7740 ; 1096-6218
    ISSN (online) 1557-7740
    ISSN 1096-6218
    DOI 10.1089/jpm.2023.0576
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  7. Article ; Online: "Second set of eyes:" Family caregivers and post-acute home health care during the COVID-19 pandemic.

    Russell, David / Burgdorf, Julia G / Washington, Karla T / Schmitz, Jennifer / Bowles, Kathryn H

    Patient education and counseling

    2023  Volume 109, Page(s) 107627

    Abstract: Objectives: This study aimed to explore how the COVID-19 pandemic shaped the experiences of family caregivers of older adults who were hospitalized with COVID-19 and discharged to post-acute, skilled home health care (HHC) services.: Methods: Thirty ... ...

    Abstract Objectives: This study aimed to explore how the COVID-19 pandemic shaped the experiences of family caregivers of older adults who were hospitalized with COVID-19 and discharged to post-acute, skilled home health care (HHC) services.
    Methods: Thirty semi-structured interviews with family caregivers of older adults who received services from a large, not-for-profit HHC agency following hospitalization with COVID-19 infection were conducted between March-July 2021 and analyzed using thematic analysis.
    Results: During the pandemic, family caregivers encountered societal and institutional barriers to assisting older adults across post-acute care transitions. These barriers included hospital visitation restrictions as well as difficulties accessing community-based resources and medical equipment. Despite limitations and delays in HHC services, many family caregivers identified post-acute HHC, delivered in-person or via telehealth, as important to addressing care gaps for older adults, as well as their own needs for training and support during the pandemic.
    Conclusions: Policies intended to reduce the spread of COVID-19 introduced new challenges for caregivers during HHC. However, HHC agencies and their staff adapted within this context to provide a needed bridge of support.
    MeSH term(s) Humans ; Aged ; Caregivers/education ; Pandemics ; COVID-19/epidemiology ; Home Care Services ; Hospitalization
    Language English
    Publishing date 2023-01-10
    Publishing country Ireland
    Document type Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 605590-4
    ISSN 1873-5134 ; 0738-3991
    ISSN (online) 1873-5134
    ISSN 0738-3991
    DOI 10.1016/j.pec.2023.107627
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  8. Article ; Online: Problem-Solving Dimensions among Caregivers of People with Cancer Receiving Outpatient Palliative Care.

    Bruton, Adrian E / Debosik, Lindsey R / Pitzer, Kyle A / Csikai, Ellen L / Washington, Karla T

    Journal of social work in end-of-life & palliative care

    2022  Volume 19, Issue 1, Page(s) 23–32

    Abstract: Family caregivers of people with cancer encounter a wide range of problems including challenges managing patients' symptoms, difficulties navigating complex healthcare systems, and financial stressors associated with caregiving. Outpatient palliative ... ...

    Abstract Family caregivers of people with cancer encounter a wide range of problems including challenges managing patients' symptoms, difficulties navigating complex healthcare systems, and financial stressors associated with caregiving. Outpatient palliative care teams are ideally positioned to help caregivers respond to these challenges; however, little evidence is available to inform problem-solving support for caregivers in this setting. This article presents results from a secondary analysis of data obtained as part of a randomized clinical trial of a problem-solving intervention for family caregivers of people with cancer receiving outpatient palliative care. It describes the extent to which caregivers report adoption of positive and negative problem orientations and use of rational, impulsive, and avoidant problem-solving styles, and examines whether these problem-solving dimensions differ by age and gender. Results reveal statistically significant negative correlations between caregiver age and positive and negative problem orientations and use of a rational problem-solving style, and statistically significant gender differences with regard to negative problem orientation and use of an impulsive problem-solving style. Findings from this exploratory study highlight unique potential strengths and needs of caregivers, and set the stage for future research on problem-solving among cancer caregivers in the growing field of outpatient palliative care.
    MeSH term(s) Humans ; Palliative Care/methods ; Caregivers ; Outpatients ; Problem Solving ; Neoplasms
    Language English
    Publishing date 2022-10-27
    Publishing country United States
    Document type Randomized Controlled Trial ; Journal Article
    ZDB-ID 2179023-1
    ISSN 1552-4264 ; 1552-4256
    ISSN (online) 1552-4264
    ISSN 1552-4256
    DOI 10.1080/15524256.2022.2139333
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  9. Article: Opportunities and Challenges for Visual Qualitative Intervention Research on Facebook.

    Rolbiecki, Abigail J / Teti, Michelle / Lero, Christine / Benson, Jacquelyn J / Washington, Karla T

    International journal of qualitative methods

    2022  Volume 21

    Language English
    Publishing date 2022-02-22
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2135788-2
    ISSN 1609-4069
    ISSN 1609-4069
    DOI 10.1177/16094069221074445
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  10. Article ; Online: Family Members' Perceptions of Caregiver-Centered Communication with Hospice Interdisciplinary Teams: Relationship to Caregiver Wellbeing.

    Washington, Karla T / Demiris, George / Pitzer, Kyle A / Tunink, Carl / Benson, Jacquelyn J / Oliver, Debra Parker

    Journal of palliative care

    2022  Volume 38, Issue 3, Page(s) 299–306

    Abstract: Objective: Investigators sought to determine how family caregivers' psychological and physical wellbeing influenced their perceptions of communication with hospice providers.: Methods: Researchers conducted a secondary analysis of quantitative data ... ...

    Abstract Objective: Investigators sought to determine how family caregivers' psychological and physical wellbeing influenced their perceptions of communication with hospice providers.
    Methods: Researchers conducted a secondary analysis of quantitative data generated during two multisite randomized clinical trials of supportive interventions for hospice family caregivers. Caregivers' (N = 525) self-reported anxious symptoms, depressive symptoms, physical quality of life, and perceptions of communication with hospice providers were analyzed via a series of linear models that included demographic and contextual controls.
    Results: Caregivers' anxious symptoms, depressive symptoms, and physical quality of life were largely unrelated to caregivers' perceptions of their communication with hospice providers when adjusted for demographic and contextual factors.
    Conclusions: Variation in caregivers' perceptions of their communication with hospice providers was not well explained by caregiver wellbeing. Additional research is needed to understand if and how caregivers' perceptions of communication with hospice providers are related to factors not included in this secondary analysis. Provider-related variables may be particularly important to consider.
    MeSH term(s) Humans ; Caregivers/psychology ; Hospices ; Quality of Life ; Hospice Care/psychology ; Family/psychology ; Communication
    Language English
    Publishing date 2022-07-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 639326-3
    ISSN 2369-5293 ; 0825-8597
    ISSN (online) 2369-5293
    ISSN 0825-8597
    DOI 10.1177/08258597221113725
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