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  1. Article ; Online: The Moral Value of Telemedicine to the Physician-Patient Relationship.

    Wilfond, Benjamin S

    The Hastings Center report

    2023  Volume 53, Issue 4, Page(s) 28–29

    Abstract: Covid-19 heralded a natural experiment with telemedicine. My experience as a clinician was very positive, and learning how to use telemedicine has made me a better doctor. Telemedicine has flipped the medical service paradigm; families do not need to ... ...

    Abstract Covid-19 heralded a natural experiment with telemedicine. My experience as a clinician was very positive, and learning how to use telemedicine has made me a better doctor. Telemedicine has flipped the medical service paradigm; families do not need to conform their busy lives to the medical office workflow. An appointment can be a virtual house call that takes less time for my patient's family and allows me to learn even more about their home. While there are limitations of telemedicine, there are good ethical reasons for clinicians to support the broader use of telehealth, including equity, efficiency, effectiveness, and respecting preferences. Empirical health-services research that assesses satisfaction, quality, and health outcomes will be necessary to determine the impact of telehealth on a population level to ensure that is used in a way that promotes equity in care.
    MeSH term(s) Humans ; COVID-19 ; Telemedicine ; Morals ; Health Services Research ; Physicians
    Language English
    Publishing date 2023-08-03
    Publishing country United States
    Document type Journal Article ; Comment
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.1499
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  2. Article ; Online: I know Things Now: The Challenges for Genetic Counseling of Adolescents with a Family History of Hereditary Breast Cancer.

    Wilfond, Benjamin S

    The Journal of pediatrics

    2022  Volume 251, Page(s) 49–50

    MeSH term(s) Adolescent ; Humans ; Female ; Genetic Counseling ; Breast Neoplasms/genetics ; Medical History Taking ; Genetic Testing ; Genetic Predisposition to Disease ; Ovarian Neoplasms
    Language English
    Publishing date 2022-08-17
    Publishing country United States
    Document type Editorial
    ZDB-ID 3102-1
    ISSN 1097-6833 ; 0022-3476
    ISSN (online) 1097-6833
    ISSN 0022-3476
    DOI 10.1016/j.jpeds.2022.08.019
    Database MEDical Literature Analysis and Retrieval System OnLINE

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  3. Article ; Online: Careful the Things You Say, Children Will Listen: Parents, Adolescents, and Fairytales.

    Benedetti, Daniel J / Wilfond, Benjamin S

    Perspectives in biology and medicine

    2024  Volume 66, Issue 4, Page(s) 552–565

    Abstract: Being a parent is hard, particularly parenting adolescents, who need to be given choices and allowed the space to learn how to make choices for themselves, even when those choices result in negative consequences. This essay explores how Steven Sondheim ... ...

    Abstract Being a parent is hard, particularly parenting adolescents, who need to be given choices and allowed the space to learn how to make choices for themselves, even when those choices result in negative consequences. This essay explores how Steven Sondheim and James Lapine's 1987 musical Into the Woods provides relatable stories of the challenges of being a parent, the challenges of parenting adolescents, and just how messy parents and families can be despite everyone trying their best. The stories of Little Red Riding Hood, Rapunzel, Jack, and Cinderella show us various stages, trajectories, and occasional tragedies of adolescents' emerging autonomy, while the Baker's and the Witch's struggles becoming and being parents encapsulate how disorderly and untidy parenting often is. Pediatricians and clinical bioethicists, who are often in a position to scrutinize the choices of parents and teens, should remember that parents and adolescents are almost always motivated by good intentions and doing the best that they can. Perhaps the best we can do is accompany them on their journey "into the woods."
    MeSH term(s) Humans ; Adolescent ; Parents/psychology ; Parenting/psychology ; Parent-Child Relations ; Choice Behavior ; Adolescent Behavior/psychology ; Female ; Child ; Personal Autonomy
    Language English
    Publishing date 2024-04-25
    Publishing country United States
    Document type Journal Article
    ZDB-ID 80373-x
    ISSN 1529-8795 ; 0031-5982
    ISSN (online) 1529-8795
    ISSN 0031-5982
    DOI 10.1353/pbm.2023.a909726
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  4. Article ; Online: Pediatric Drug Labeling and Imperfect Information.

    Wilfond, Benjamin S

    The Hastings Center report

    2020  Volume 50, Issue 1, Page(s) 3

    Abstract: I first became aware of bioethics in the spring of 1980. I had spent a thirty-six-hour shift shadowing a medical resident, and I was struck that many of the resident's decisions had ethical dimensions. The next day, I came across the Hastings Center ... ...

    Abstract I first became aware of bioethics in the spring of 1980. I had spent a thirty-six-hour shift shadowing a medical resident, and I was struck that many of the resident's decisions had ethical dimensions. The next day, I came across the Hastings Center Report, and I realized I wanted to explore ethical issues I found implicit in clinical care, even though I still wanted to become a pediatrician. In September 2019, when I attended my first meeting of the U.S. Food and Drug Administration's Pediatric Advisory Committee, as a pediatric pulmonologist, I had the same sense of awe and curiosity that I had forty years ago. What had appeared initially as somewhat technical decisions about the regulation of drug labeling was suffused with ethical questions. The committee was asked to discuss possible changes to the labeling of two previously approved drugs.
    MeSH term(s) Acetates/administration & dosage ; Acetates/adverse effects ; Advisory Committees ; Bioethics ; Cyclopropanes/administration & dosage ; Cyclopropanes/adverse effects ; Drug Labeling/standards ; Humans ; Oxymorphone/administration & dosage ; Oxymorphone/adverse effects ; Pediatrics/ethics ; Pediatrics/standards ; Quinolines/administration & dosage ; Quinolines/adverse effects ; Sulfides/administration & dosage ; Sulfides/adverse effects ; United States ; United States Food and Drug Administration/standards
    Chemical Substances Acetates ; Cyclopropanes ; Quinolines ; Sulfides ; Oxymorphone (9VXA968E0C) ; montelukast (MHM278SD3E)
    Language English
    Publishing date 2020-02-17
    Publishing country United States
    Document type Journal Article
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.1074
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  5. Article ; Online: To Swab or Not to Swab: Waiver of Consent to Collect Perianal Specimens from Incapacitated Patients With Severe Burn Injury.

    Dawson, Liza / Ray, Andrew D / Wilfond, Benjamin S / Johnson, Liza-Marie

    The American journal of bioethics : AJOB

    2024  Volume 24, Issue 4, Page(s) 108–109

    MeSH term(s) Humans ; Burns ; Informed Consent
    Language English
    Publishing date 2024-03-26
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2024.2308155
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  6. Article ; Online: Researcher Obligations to Participants in Novel COVID-19 Vaccine Research.

    Wilfond, Benjamin S / Duenas, Devan M / Johnson, Liza-Marie

    The American journal of bioethics : AJOB

    2023  Volume 23, Issue 10, Page(s) 119–120

    MeSH term(s) Humans ; COVID-19 Vaccines ; COVID-19/prevention & control ; Ethics, Research ; Moral Obligations ; Research Personnel
    Chemical Substances COVID-19 Vaccines
    Language English
    Publishing date 2023-10-09
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2023.2250275
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  7. Article ; Online: Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access.

    Wilfond, Benjamin S / Duenas, Devan M / Johnson, Liza-Marie

    The American journal of bioethics : AJOB

    2022  Volume 22, Issue 4, Page(s) 81–82

    MeSH term(s) Adolescent ; Child ; Health Services Accessibility ; Humans ; Rare Diseases
    Language English
    Publishing date 2022-04-13
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2022.2044552
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  8. Article ; Online: To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes.

    Wilfond, Benjamin S / Duenas, Devan M / Johnson, Liza-Marie

    The American journal of bioethics : AJOB

    2022  Volume 22, Issue 10, Page(s) 87–88

    MeSH term(s) Disclosure ; Forensic Genetics/ethics ; Humans ; Sex Chromosomes/genetics
    Language English
    Publishing date 2022-09-28
    Publishing country United States
    Document type Journal Article
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2022.2110982
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  9. Article ; Online: Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research.

    Wilfond, Benjamin S / Porter, Kathryn M

    The American journal of bioethics : AJOB

    2020  Volume 20, Issue 5, Page(s) 22–23

    MeSH term(s) Goals ; Human Experimentation ; Humans ; Informed Consent
    Language English
    Publishing date 2020-07-14
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Research Support, Non-U.S. Gov't ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2020.1745952
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  10. Article ; Online: Breaking the Sounds of Silence: Respecting People With Disabilities and Reproductive Decision Making.

    Wilfond, Benjamin S

    The American journal of bioethics : AJOB

    2016  Volume 17, Issue 1, Page(s) 37–39

    MeSH term(s) Decision Making ; Disabled Persons ; Humans
    Language English
    Publishing date 2016-12-20
    Publishing country United States
    Document type Journal Article ; Research Support, N.I.H., Extramural ; Comment
    ZDB-ID 2060433-6
    ISSN 1536-0075 ; 1526-5161
    ISSN (online) 1536-0075
    ISSN 1526-5161
    DOI 10.1080/15265161.2016.1251664
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