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Article ; Online: Engaging older adults with a migration background to explore the usage of digital technologies in coping with dementia.

van Leersum, Catharina M / Konrad, Kornelia E / Siebrand, Egbert / Malik, Zohrah B / den Ouden, Marjolein E M / Bults, Marloes

Frontiers in public health

2023 Volume 11, Page(s) 1125834

Abstract: Background: Coping with dementia can imply particular challenges for people with a migration background due to diversity in their life course, personal characteristics, and living environment. Some of the services available for people with dementia ... ...

Abstract	Background: Coping with dementia can imply particular challenges for people with a migration background due to diversity in their life course, personal characteristics, and living environment. Some of the services available for people with dementia include digital technologies for care, providing health services, and maintaining or increasing participation, independence, and safety. This study aimed to explore the role of digital technology in coping with dementia in the lives of older adults with a migration background, and the possibilities to engage and collaborate with older adults. Methods: This study combined a qualitative interview-based approach with citizen science principles in the design and execution of a project studying the use of Anne4Care. Results and discussion: Participants valued that technology should provide health benefits and fit into aspects of their daily lives. Anne4Care was considered helpful in staying independent and connecting to loved ones in their country of birth. The participants needed to learn new competencies to work with the device, and not all had the material prerequisites, such as an internet connection. Still, this learning process was considered purposeful in their life, and the virtual assistant could be integrated into care and daily practices. The involvement of the older adults with dementia as co-researchers made them feel valuable and as equal partners during this research. An important prerequisite for the involvement of older adults with a migration background was existing relations with carers and care organizations. Conclusion: Digital care technologies to cope with dementia can become a valuable part of care practices in the lives of older adults with a migration background. Involving older adults in the development of technology, acknowledging their expertise and needs, and working together in short iterations to adapt the technology for their specific needs and situations were experienced as valuable by the researchers, older adults, and care professionals.
MeSH term(s)	Humans ; Aged ; Digital Technology ; Health Services ; Caregivers ; Dementia ; Adaptation, Psychological
Language	English
Publishing date	2023-04-14
Publishing country	Switzerland
Document type	Journal Article ; Research Support, Non-U.S. Gov't
ZDB-ID	2711781-9
ISSN	2296-2565 ; 2296-2565
ISSN (online)	2296-2565
ISSN	2296-2565
DOI	10.3389/fpubh.2023.1125834
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Article ; Online: Underestimated Factors Regarding the Use of Technology in Daily Practice of Long-Term Care: Qualitative Study Among Health Care Professionals.

Groeneveld, Sjors W M / den Ouden, Marjolein E M / van Gemert-Pijnen, J E W C / Verdaasdonk, Rudolph M / van Os-Medendorp, Harmieke

JMIR nursing

2023 Volume 6, Page(s) e41032

Abstract: Background: Increasing life expectancy is resulting in a growing demand for long-term care; however, there is a shortage of qualified health care professionals (HCPs) to deliver it. If used optimally, technology can provide a solution to this challenge. ...

Abstract	Background: Increasing life expectancy is resulting in a growing demand for long-term care; however, there is a shortage of qualified health care professionals (HCPs) to deliver it. If used optimally, technology can provide a solution to this challenge. HCPs play an important role in the use of technology in long-term care. However, technology influences several core aspects of the work that HCPs do, and it is therefore important to have a good understanding of their viewpoint regarding the use of technology in daily practice of long-term care. Objective: The aim of this study was to identify the factors that HCPs consider as relevant for using technology in daily practice of long-term care. Methods: In this qualitative study, 11 focus groups were organized with 73 HCPs. The focus group discussions were guided by an innovative game, which was specifically developed for this study. The content of the game was categorized into 4 categories: health care technology and me; health care technology, the patient, and me; health care technology, the organization, and me; and facilitating conditions. The perspectives of HCPs about working with technology were discussed based on this game. The focus groups were recorded and transcribed, followed by an inductive thematic analysis using ATLAS.ti 9x (ATLAS.ti Scientific Software Development GmbH). Results: Overall, 2 main domain summaries were developed from the data: technology should improve the quality of care and acceptance and use of technology in care. The first factor indicates the need for tailored and personalized care and balance between human contact and technology. The second factor addresses several aspects regarding working with technology such as trusting technology, learning to work with technology, and collaboration with colleagues. Conclusions: HCPs are motivated to use technology in daily practice of long-term care when it adds value to the quality of care and there is sufficient trust, expertise, and collaboration with colleagues. Their perspectives need to be considered as they play a crucial part in the successful use of technology, transcending their role as an actor in implementation. On the basis of the findings from this study, we recommend focusing on developing technology for situations where both efficiency and quality of care can be improved; redefining the roles of HCPs and the impact of technology hereon; involving HCPs in the design process of technology to enable them to link it to their daily practice; and creating ambassadors in care teams who are enthusiastic about working with technology and can support and train their colleagues.
Language	English
Publishing date	2023-07-26
Publishing country	Canada
Document type	Journal Article
ISSN	2562-7600
ISSN (online)	2562-7600
DOI	10.2196/41032
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Article ; Online: Intention of healthcare providers to use video-communication in terminal care: a cross-sectional study.

Evering, Richard M H / Postel, Marloes G / van Os-Medendorp, Harmieke / Bults, Marloes / den Ouden, Marjolein E M

BMC palliative care

2022 Volume 21, Issue 1, Page(s) 213

Abstract: Background: Interdisciplinary collaboration between healthcare providers with regard to consultation, transfer and advice in terminal care is both important and challenging. The use of video communication in terminal care is low while in first-line ... ...

Abstract	Background: Interdisciplinary collaboration between healthcare providers with regard to consultation, transfer and advice in terminal care is both important and challenging. The use of video communication in terminal care is low while in first-line healthcare it has the potential to improve quality of care, as it allows healthcare providers to assess the clinical situation in real time and determine collectively what care is needed. The aim of the present study is to explore the intention to use video communication by healthcare providers in interprofessional terminal care and predictors herein. Methods: In this cross-sectional study, an online survey was used to explore the intention to use video communication. The survey was sent to first-line healthcare providers involved in terminal care (at home, in hospices and/ or nursing homes) and consisted of 39 questions regarding demographics, experience with video communication and constructs of intention to use (i.e. Outcome expectancy, Effort expectancy, Attitude, Social influence, Facilitating conditions, Anxiety, Self-efficacy and Personal innovativeness) based on the Unified Theory of Acceptance and Use of Technology and Diffusion of Innovation Theory. Descriptive statistics were used to analyze demographics and experiences with video communication. A multiple linear regression analysis was performed to give insight in the intention to use video communication and predictors herein. Results: 90 respondents were included in the analysis.65 (72%) respondents had experience with video communication within their profession, although only 15 respondents (17%) used it in terminal care. In general, healthcare providers intended to use video communication in terminal care (Mean (M) = 3.6; Standard Deviation (SD) = .88). The regression model was significant (F = 9.809, p-value<.001) and explained 44% of the variance in intention to use video communication, with 'Outcome expectancy' (beta .420, p < .001) and 'Social influence' (beta .266, p = .004) as significant predictors. Conclusions: Healthcare providers have in general the intention to use video communication in interprofessional terminal care. However, their actual use in terminal care is low. 'Outcome expectancy' and 'Social influence' seem to be important predictors for intention to use video communication. This implicates the importance of informing healthcare providers, and their colleagues and significant others, about the usefulness and efficiency of video communication.
MeSH term(s)	Humans ; Intention ; Cross-Sectional Studies ; Communication ; Terminal Care ; Health Personnel
Language	English
Publishing date	2022-11-30
Publishing country	England
Document type	Journal Article
ZDB-ID	2091556-1
ISSN	1472-684X ; 1472-684X
ISSN (online)	1472-684X
ISSN	1472-684X
DOI	10.1186/s12904-022-01100-5
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Article ; Online: Knowledge and attitude of nursing students regarding older adults' sexuality: A cross-sectional study.

Wilschut, Vivian F C / Pianosi, Birgit / van Os-Medendorp, Harmieke / Elzevier, Henk W / Jukema, Jan S / den Ouden, Marjolein E M

Nurse education today

2020 Volume 96, Page(s) 104643

Abstract: Background: Although older adults are sexual, sexuality is infrequently discussed with them by health care professionals. Nursing students, as future professionals, can make an important contribution by developing competences in discussing intimacy and ... ...

Abstract	Background: Although older adults are sexual, sexuality is infrequently discussed with them by health care professionals. Nursing students, as future professionals, can make an important contribution by developing competences in discussing intimacy and sexuality with older adults to increase quality of life and to prevent sexual problems. In order to improve these competences, current levels of knowledge and attitude need to be explored. Objectives: To investigate i) knowledge and attitudes of nursing students regarding intimacy and sexuality of older adults, ii) the difference in knowledge and attitudes of nursing students in different years of study and iii) frequency of discussing intimacy and sexuality with older adults. Design: Cross-sectional. Settings: A University of Applied Sciences in the Netherlands. Participants: Nursing students, ≥16 years who were able to read and write in Dutch. Methods: The Ageing Sexual Knowledge and Attitudes Scale was used among nursing students. Furthermore, demographic information and frequencies were collected. Data was analyzed using SPSS. Results: In total, 732 students participated. The mean knowledge-score was 43.9 (SD = 8.9), the mean attitude-score 64.3 (SD = 16.0). Unlike attitude, the level of knowledge differed significantly per year of study: first year students had the lowest and third year students the highest knowledge. Most students stated they 'never' (54.1%) or 'once' (13.2%) discussed intimacy and sexuality with older adults. Reasons to avoid talking about intimacy and sexuality were feelings of 'not being the right person' (17.3%) and 'incompetence' (14.0%). Conclusions: Nursing students had moderate knowledge and positive attitudes toward older adults' intimacy and sexuality. The knowledge-level differed per year of study, the attitude level did not. Only a minority discussed intimacy and sexuality with older adults. Moderate knowledge and positive attitudes do not mean that intimacy and sexuality is discussed. To ensure students feel responsible and competent, interventions should focus on continuous knowledge dissemination, role clarification and role modelling.
MeSH term(s)	Aged ; Attitude ; Attitude of Health Personnel ; Cross-Sectional Studies ; Health Knowledge, Attitudes, Practice ; Humans ; Netherlands ; Quality of Life ; Sexuality ; Students, Nursing ; Surveys and Questionnaires
Language	English
Publishing date	2020-10-23
Publishing country	Scotland
Document type	Journal Article
ZDB-ID	1062570-7
ISSN	1532-2793 ; 0260-6917
ISSN (online)	1532-2793
ISSN	0260-6917
DOI	10.1016/j.nedt.2020.104643
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Article ; Online: Intimacy and sexuality in women with breast cancer: professional guidance needed.

Den Ouden, Marjolein E M / Pelgrum-Keurhorst, Myrna N / Uitdehaag, Madeleen J / De Vocht, Hilde M

Breast cancer (Tokyo, Japan)

2018 Volume 26, Issue 3, Page(s) 326–332

Abstract: Background: Approximately 60-70% of breast cancer survivors experience sexuality problems resulting from treatment. This study investigated information and communication preferences with professionals on the topic intimacy and sexuality of women ... ...

Abstract	Background: Approximately 60-70% of breast cancer survivors experience sexuality problems resulting from treatment. This study investigated information and communication preferences with professionals on the topic intimacy and sexuality of women diagnosed with breast cancer. Methods: Members of the Dutch Breast Cancer Patient Association were surveyed regarding their experiences and preferences about information on intimacy and sexuality. An online questionnaire was developed that included five close-ended and one open-ended question regarding: information received; type of professional preferred; method and timing of communication on the topics of intimacy and sexuality. Quantitative data were analysed using descriptive statistics. A deductive framework analysis was performed on the open-ended answers to enrich the data of the close-ended questions. Results: In total, 667 female breast cancer (ex-)patients participated. In 46% of the women, the information received matched their needs. Most women preferred to receive information about the impact on intimacy and sexuality from a nurse (66.4%) or primary doctor (27.9%). The preferred method of communication was a conversation with a professional together with their partner (51.6%) or a personal conversation with a professional. Respondents emphasized the importance of appropriate timing of information, preferably at least shortly after the treatment started (45.1%). Conclusions: This study shows that intimacy and sexuality should be repeatedly included in consultations, at every stage of the disease but especially shortly after treatment started. Women with breast cancer expect that professionals (preferably nurse or primary doctor) initiate this subject via a personal conversation (alone or with their partner).
MeSH term(s)	Adult ; Breast Neoplasms/psychology ; Cancer Survivors/psychology ; Cancer Survivors/statistics & numerical data ; Communication ; Directive Counseling/statistics & numerical data ; Female ; Health Personnel/classification ; Health Surveys ; Humans ; Information Dissemination ; Middle Aged ; Sexual Partners/psychology ; Sexuality/physiology ; Sexuality/psychology ; Sexuality/statistics & numerical data ; Time Factors
Language	English
Publishing date	2018-10-25
Publishing country	Japan
Document type	Journal Article
ZDB-ID	2052429-8
ISSN	1880-4233 ; 1340-6868
ISSN (online)	1880-4233
ISSN	1340-6868
DOI	10.1007/s12282-018-0927-8
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Article ; Online: Treatment-Related Sexual Side Effects From the Perspective of Partners of Men With Prostate Cancer.

Grondhuis Palacios, Lorena A / den Ouden, Marjolein E M / den Oudsten, Brenda L / Putter, Hein / Pelger, Rob C M / Elzevier, Henk W

Journal of sex & marital therapy

2019 Volume 45, Issue 5, Page(s) 440–451

Abstract: A cross-sectional survey was performed among partners and men who received treatment for prostate cancer to investigate whether demographic and clinical characteristics are associated with the extent of how difficult partners found it dealing with sexual ...

Abstract	A cross-sectional survey was performed among partners and men who received treatment for prostate cancer to investigate whether demographic and clinical characteristics are associated with the extent of how difficult partners found it dealing with sexual side effects and the degree of having experienced sexual problems after treatment. Moreover, an aim was to determine whether sexual side effects have an impact on the relationship. A total of 171 partners were included. In all, 104 men (70.7%) experienced an increase in erectile complaints after treatment. Almost half of partners of men with an increase in erectile complaints (63.6%,
MeSH term(s)	Adaptation, Psychological ; Cross-Sectional Studies ; Erectile Dysfunction/etiology ; Erectile Dysfunction/psychology ; Female ; Humans ; Libido ; Male ; Middle Aged ; Prostatic Neoplasms/complications ; Prostatic Neoplasms/psychology ; Quality of Life ; Sexual Dysfunction, Physiological/psychology ; Sexual Partners/psychology ; Surveys and Questionnaires
Language	English
Publishing date	2019-04-23
Publishing country	England
Document type	Journal Article
ZDB-ID	752393-2
ISSN	1521-0715 ; 0092-623X
ISSN (online)	1521-0715
ISSN	0092-623X
DOI	10.1080/0092623X.2018.1549636
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Article ; Online: Sexuality in Intimate Partners of People with Cancer: Information and Communication Needs: A Brief Communication.

Albers, Leonore F / van Belzen, Mirjam A / van Batenburg, Christel / Engelen, Vivian / Putter, Hein / den Ouden, Marjolein E M / Pelger, Rob C M / Elzevier, Henk W

Journal of sex & marital therapy

2020 Volume 47, Issue 2, Page(s) 197–203

Abstract: Partners of patients with cancer report a negative impact on their sexuality and intimacy and experience a lack of information. Little is known about partners' information needs regarding sexuality and intimacy. The study was conducted with 230 partners ... ...

Abstract	Partners of patients with cancer report a negative impact on their sexuality and intimacy and experience a lack of information. Little is known about partners' information needs regarding sexuality and intimacy. The study was conducted with 230 partners of patients with cancer using a questionnaire. 56% stated that cancer had negatively affected their sexuality and intimacy. 60% percent reported a need for information. Except a self-reported negative impact of cancer, no characteristics were associated with a higher need for sexuality related information. Partners prefer information that includes practical advice and experiences from others. It is recommended to provide patients and their partner's information on sexuality and intimacy within routine treatment.
MeSH term(s)	Communication ; Humans ; Neoplasms ; Sexual Behavior ; Sexual Partners ; Sexuality
Language	English
Publishing date	2020-11-05
Publishing country	England
Document type	Journal Article
ZDB-ID	752393-2
ISSN	1521-0715 ; 0092-623X
ISSN (online)	1521-0715
ISSN	0092-623X
DOI	10.1080/0092623X.2020.1828206
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Article ; Online: Unravelling sexual care in chronically ill patients: the perspective of GP practice nurses; Health Service Research.

Barnhoorn, Pieter C / Zuurveen, Hannah R / Prins, Inge C / van Ek, Gaby F / den Oudsten, Brenda L / den Ouden, Marjolein E M / Putter, Hein / Numans, Mattijs E / Elzevier, Henk W

Family practice

2020 Volume 37, Issue 6, Page(s) 766–771

Abstract: Background: Assessment of sexual health is important in chronically ill patients, as many experience sexual dysfunction (SD). The general practice nurse (GPN) can play a crucial part in addressing SD.: Objective: The aim of this cross-sectional study ...

Abstract	Background: Assessment of sexual health is important in chronically ill patients, as many experience sexual dysfunction (SD). The general practice nurse (GPN) can play a crucial part in addressing SD. Objective: The aim of this cross-sectional study was to examine to which extent GPNs discuss SD with chronically ill patients and what barriers may refrained them from discussing SD. Furthermore, we examined which factors had an association with a higher frequency of discussing SD. Methods: A cross-sectional survey using a 48-item questionnaire was send to 637 GPNs across the Netherlands. Results: In total, 407 GPNs returned the questionnaire (response rate 63.9%) of which 337 completed the survey. Two hundred and twenty-one responding GPNs (65.6%) found it important to discuss SD. More than half of the GPNS (n = 179, 53.3%) never discussed SD during a first consultation, 60 GPNs (18%) never discussed SD during follow-up consultations. The three most important barriers for discussing SD were insufficient training (54.7%), 'reasons related to language and ethnicity' (47.5%) and 'reasons related to culture and religion' (45.8%). More than half of the GPNs thought that they had not enough knowledge to discuss SD (n = 176, 54.8%). A protocol on addressing SD would significantly increase discussing during SD. Conclusions: This study indicates that GPNs do not discuss SD with chronically ill patients routinely. Insufficient knowledge, training and reasons related to cultural diversity were identified as most important reasons for this practice pattern. Implementation of training in combination with guidelines on SD in the general practice could improve on the discussing of sexual health with chronic patients.
MeSH term(s)	Chronic Disease ; Cross-Sectional Studies ; Health Services ; Humans ; Nurses ; Sexual Dysfunction, Physiological ; Surveys and Questionnaires
Language	English
Publishing date	2020-07-27
Publishing country	England
Document type	Journal Article
ZDB-ID	605939-9
ISSN	1460-2229 ; 0263-2136
ISSN (online)	1460-2229
ISSN	0263-2136
DOI	10.1093/fampra/cmaa071
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Article ; Online: The impact of individualized interaction on the quality of life of elderly dependent on care as a result of dementia: a study with a pre-post design.

de Vocht, Hilde M / Hoogeboom, A M G Marcella / van Niekerk, Bob / den Ouden, Marjolein E M

Dementia and geriatric cognitive disorders

2015 Volume 39, Issue 5-6, Page(s) 272–280

Abstract: Background: The aim was to assess the impact of a one-to-one 30-min individualized interaction per day on the behavior and quality of life of care-dependent residents with dementia.: Methods: In a pre-/post-test study, 15 care-dependent residents ... ...

Abstract	Background: The aim was to assess the impact of a one-to-one 30-min individualized interaction per day on the behavior and quality of life of care-dependent residents with dementia. Methods: In a pre-/post-test study, 15 care-dependent residents with dementia (mean age 88.8 years, 86.7% women) were included. Resident behavior was measured using video observation and quality of life using Qualidem. Health care professionals (n = 13) and direct relatives (n = 4) were interviewed about the effect of the intervention. The effect of the intervention was analyzed using the Friedman analysis of variance. Results: The video observation showed that maintaining eye contact, touching, responding to speaking, tracking observable stimuli and asking questions about the activity significantly increased during the intervention. These findings were supported by interviews with nurses who described experiences of making human-to-human contact with the residents. No significant overall changes were found in quality of life. These findings were partially supported by interviews with health care professionals and relatives as some perceived effects beyond the 30-min intervention. Conclusions: Interaction offered on a one-to-one basis tailored to individual preferences significantly improved positive interactive behavior of care-dependent residents with dementia during the intervention. Surveys revealed no significant overall effect of the intervention. The interviews indicated there might be effects beyond the intervention for some residents.
MeSH term(s)	Aged ; Aged, 80 and over ; Attitude of Health Personnel ; Dementia/nursing ; Dementia/psychology ; Female ; Humans ; Interviews as Topic ; Male ; Nurse-Patient Relations ; Nurses ; Nursing Homes ; Quality of Life
Language	English
Publishing date	2015
Publishing country	Switzerland
Document type	Journal Article
ZDB-ID	1026007-9
ISSN	1421-9824 ; 1013-7424
ISSN (online)	1421-9824
ISSN	1013-7424
DOI	10.1159/000371874
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Article ; Online: Investigating the effect of a symposium on sexual health care in prostate cancer among Dutch healthcare professionals.

Grondhuis Palacios, Lorena A / Hendriks, Nora / den Ouden, Marjolein E M / Reisman, Yacov / Beck, Jack J H / den Oudsten, Brenda L / van Ek, Gaby F / Putter, Hein / Pelger, Rob C M / Elzevier, Henk W

Journal of clinical nursing

2019 Volume 28, Issue 23-24, Page(s) 4357–4366

Abstract: Aims and objectives: To investigate whether a symposium aimed at healthcare professionals in the uro-oncological field changes knowledge, competence and general practice regarding sexual dysfunction after prostate cancer treatment.: Background: ... ...

Abstract	Aims and objectives: To investigate whether a symposium aimed at healthcare professionals in the uro-oncological field changes knowledge, competence and general practice regarding sexual dysfunction after prostate cancer treatment. Background: Sexual dysfunction is not frequently discussed by healthcare professionals; lack of knowledge and training are two of the most often reported barriers. Provision of additional training could improve knowledge, competence and general practice of healthcare professionals. Design: Two questionnaires were used in this pre-post study to determine knowledge, competence and general practice at the time of the symposium and six months afterwards. Methods: In order to perform repeated measures to analyse alterations among participating healthcare professionals (n = 55), the McNemar's test was used. A STROBE checklist was completed. Results: Seventy-three per cent (n = 40) stated that not enough attention was paid to prostate cancer-related sexual dysfunction during their education. Nurses felt significantly less competent in discussing sexual function, advising on sexual dysfunction and actively inquiring sexual complaints compared to other healthcare professionals. After the symposium, sexual dysfunction was significantly more often discussed. No significant effects were found on knowledge on sexual dysfunction, knowledge on treatment of sexual dysfunction, competence in discussing sexual function, advising on sexual dysfunction, actively inquiring sexual complaints and rate of referral. Tools needed to address sexual dysfunction concerned written information materials (75.5%) and a website containing adequate information (56.6%). Conclusions: The symposium had no significant influence on knowledge, competence and rate of referral in men with sexual dysfunction after prostate cancer treatment. However, sexual dysfunction was more frequently discussed after the symposium, so increase of awareness of consequences of prostate cancer treatment was achieved. Relevance to clinical practice: Consequences of prostate cancer treatment to sexual function should be taken in consideration in daily practice; written information materials and a website containing adequate information were indicated as valuable resources to address sexual dysfunction in routine consultations.
MeSH term(s)	Adult ; Attitude of Health Personnel ; Family Practice ; Female ; Health Knowledge, Attitudes, Practice ; Health Personnel/education ; Humans ; Male ; Middle Aged ; Netherlands ; Nurse-Patient Relations ; Prostatic Neoplasms/complications ; Prostatic Neoplasms/nursing ; Sexual Dysfunction, Physiological/etiology ; Sexual Dysfunction, Physiological/nursing ; Surveys and Questionnaires
Language	English
Publishing date	2019-08-28
Publishing country	England
Document type	Journal Article
ZDB-ID	1159483-4
ISSN	1365-2702 ; 0962-1067 ; 1752-9816
ISSN (online)	1365-2702
ISSN	0962-1067 ; 1752-9816
DOI	10.1111/jocn.15012
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