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  1. Article ; Online: Beyond aches and pain: the hidden economic burden of musculoskeletal conditions in children and adolescents.

    Ndosi, Mwidimi / Livermore, Polly

    Evidence-based nursing

    2024  

    Language English
    Publishing date 2024-02-15
    Publishing country England
    Document type Journal Article
    ZDB-ID 1425988-6
    ISSN 1468-9618 ; 1367-6539
    ISSN (online) 1468-9618
    ISSN 1367-6539
    DOI 10.1136/ebnurs-2023-103891
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    Zs.A 5184: Show issues Location:
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    Jg. 1995 - 2021: Lesesall (2.OG)
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  2. Article ; Online: 'Reducing anxiety and maintaining care' during the COVID-19 pandemic.

    Livermore, Polly

    Rheumatology advances in practice

    2020  Volume 4, Issue 2, Page(s) rkaa062

    Keywords covid19
    Language English
    Publishing date 2020-10-28
    Publishing country England
    Document type Journal Article
    ISSN 2514-1775
    ISSN (online) 2514-1775
    DOI 10.1093/rap/rkaa062
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  4. Article ; Online: ‘Reducing anxiety and maintaining care’ during the COVID-19 Pandemic

    Livermore, Polly

    Rheumatology Advances in Practice ; ISSN 2514-1775

    2020  

    Keywords covid19
    Language English
    Publisher Oxford University Press (OUP)
    Publishing country uk
    Document type Article ; Online
    DOI 10.1093/rap/rkaa062
    Database BASE - Bielefeld Academic Search Engine (life sciences selection)

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  5. Article ; Online: The benefits of a peer-support group for paediatric rheumatology nurses working in isolation.

    Rostron, Heather / Livermore, Polly

    Rheumatology advances in practice

    2022  Volume 6, Issue 2, Page(s) rkac043

    Language English
    Publishing date 2022-05-19
    Publishing country England
    Document type Editorial
    ISSN 2514-1775
    ISSN (online) 2514-1775
    DOI 10.1093/rap/rkac043
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  6. Article ; Online: Evaluating a competency framework for rheumatology nurses.

    Finney, Diana / Cornell, Patricia / Howie, Lisa / Parker, Louise / Wylie, Ruth / Livermore, Polly

    Nursing standard (Royal College of Nursing (Great Britain) : 1987)

    2024  Volume 39, Issue 3, Page(s) 61–66

    Abstract: The Royal College of Nursing (RCN) competency framework for rheumatology nurses was developed in 2020. As part of the framework proposal, a service evaluation was planned following the framework's roll-out to determine its usefulness and acceptability. ... ...

    Abstract The Royal College of Nursing (RCN) competency framework for rheumatology nurses was developed in 2020. As part of the framework proposal, a service evaluation was planned following the framework's roll-out to determine its usefulness and acceptability. The aim of this evaluation was to explore rheumatology nurse specialists' answers to the research question: 'What was your experience of using the RCN's rheumatology competency framework?' A total of 14 rheumatology nurse specialists were interviewed and shared their opinions regarding the competency framework. Five themes were identified: personal usage; benefits to managers; inequalities and inequity in nursing; ideas for improvement; and general properties. The findings of this evaluation demonstrated the value of the framework, which enabled rheumatology nurse specialists to document the competency level they were working at and to identify their future training needs.
    MeSH term(s) Humans ; Rheumatology ; Clinical Competence ; Nurses
    Language English
    Publishing date 2024-01-22
    Publishing country England
    Document type Journal Article
    ZDB-ID 645016-7
    ISSN 2047-9018 ; 0029-6570
    ISSN (online) 2047-9018
    ISSN 0029-6570
    DOI 10.7748/ns.2024.e12111
    Database MEDical Literature Analysis and Retrieval System OnLINE

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    Zs.A 2410: Show issues Location:
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    Zs.MO 273: Show issues

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  7. Article: Juvenile idiopathic arthritis: updated guide to administering methotrexate.

    Livermore, Polly

    Nursing children and young people

    2014  Volume 26, Issue 1, Page(s) 26–29

    Abstract: Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children and young people. For patients who fail to respond to non-steroidal medications, methotrexate (MTX) is the mainstay of treatment. In 2004, the Royal College of Nursing ... ...

    Abstract Juvenile idiopathic arthritis (JIA) is the most common rheumatic disease in children and young people. For patients who fail to respond to non-steroidal medications, methotrexate (MTX) is the mainstay of treatment. In 2004, the Royal College of Nursing issued guidance for practitioners caring for children receiving MTX for rheumatic conditions, which has since been updated. The drug is now licensed for treatment of JIA using commercially pre-filled syringes, and special training and precautions are no longer necessary. Local practices, policies and procedures should be changed accordingly.
    MeSH term(s) Antirheumatic Agents/administration & dosage ; Antirheumatic Agents/therapeutic use ; Arthritis, Juvenile/drug therapy ; Child ; Humans ; Methotrexate/administration & dosage ; Methotrexate/therapeutic use ; Societies, Nursing ; United Kingdom
    Chemical Substances Antirheumatic Agents ; Methotrexate (YL5FZ2Y5U1)
    Language English
    Publishing date 2014-02
    Publishing country England
    Document type Journal Article
    ZDB-ID 2603456-6
    ISSN 2046-2336
    ISSN 2046-2336
    DOI 10.7748/ncyp2014.02.26.1.26.e393
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    Zs.A 4826: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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  8. Article ; Online: Gaining consensus on emotional wellbeing themes and preferences for digital intervention type and content to support the mental health of young people with long-term health conditions: A Delphi study.

    Brown, Jennie / Cox, Lauren / Mulligan, Kathleen / Wilson, Stephanie / Heys, Michelle / Livermore, Polly / Gray, Suzy / Bogosian, Angeliki

    Health expectations : an international journal of public participation in health care and health policy

    2024  Volume 27, Issue 2, Page(s) e14025

    Abstract: Background: Young people (YP) with long-term conditions (LTCs) are at greater risk of psychological distress than those without LTCs. Despite this, there is a scarcity of quality digital interventions designed to help improve mental wellbeing in this ... ...

    Abstract Background: Young people (YP) with long-term conditions (LTCs) are at greater risk of psychological distress than those without LTCs. Despite this, there is a scarcity of quality digital interventions designed to help improve mental wellbeing in this population. The aim of this study was to determine what YP, parents and health professionals preferred for future interventions.
    Methods: Twenty-six YP with asthma, diabetes and/or epilepsy (the three most common LTCs in YP), 23 parents of YP with LTCs and 10 health professionals mainly in paediatric specialisms (total n = 59) took part in an online Delphi study to gain consensus (set at 75% agreement) on four questions across three rounds. Participants ordered psychological themes that may be experienced by YP with LTCs by importance and ranked digital intervention types and delivery modes by importance or usefulness. The most common results were reported if no consensus was reached by round 3.
    Results: Participants preferred a mobile phone app (73% agreement) and a mixture of one-on-one and group support for an intervention (75% agreement). The two highest ranked psychological themes were anxiety (44%) and wanting to appear 'normal' (38%), and the top intervention type was 'general counselling' (54% agreement).
    Conclusion: There was a clear desire for an app to help with the psychological aspects of living with LTCs and for a combination of one-to-one and group intervention elements. Anxiety and wanting to appear 'normal' might be two closely linked psychological challenges that could be addressed by a single intervention.
    Implications: The results will be important to consider for a future intervention, although further consultation will be needed for app development.
    Patient or public contribution: Two YP with a LTC provided feedback on the study protocol including the aims and procedures of the project. Another six YP with LTCs were consulted on an early draft of the study questionnaire (the four questions), which was subsequently revised. Once the project began, a patient and public involvement group consisting of two YP with LTCs and one parent of a YP with an LTC gave feedback on the research process, lay report of the results and dissemination plan.
    MeSH term(s) Child ; Humans ; Adolescent ; Mental Health ; Consensus ; Delphi Technique ; Emotions ; Anxiety/therapy
    Language English
    Publishing date 2024-04-09
    Publishing country England
    Document type Journal Article
    ZDB-ID 2119434-8
    ISSN 1369-7625 ; 1369-6513
    ISSN (online) 1369-7625
    ISSN 1369-6513
    DOI 10.1111/hex.14025
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    Zs.A 5896: Show issues Location:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
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  9. Article ; Online: Adoption of technology enabled care to support the management of children and teenagers in rheumatology services: a protocol for a mixed-methods systematic review.

    Rostron, Heather / Wright, Judy M / Gilbert, Anthony W / Dillon, Beth / Pini, Simon / Redmond, Anthony C / Livermore, Polly

    BMJ open

    2024  Volume 14, Issue 2, Page(s) e082515

    Abstract: Introduction: COVID-19 catalysed a rapid move to provide care away from the hospital using online communication platforms. Technology enabled care (TEC) continues to be an important driver in progressing future healthcare services. Due to the complex ... ...

    Abstract Introduction: COVID-19 catalysed a rapid move to provide care away from the hospital using online communication platforms. Technology enabled care (TEC) continues to be an important driver in progressing future healthcare services. Due to the complex and chronic nature of conditions seen within paediatric rheumatology, TEC may lead to better outcomes. Despite some growth in published literature into the adoption of TEC in paediatric rheumatology, there is limited synthesis. The aim of this review is to provide a comprehensive understanding and evaluation of the adoption of TEC by patients in paediatric rheumatology services, to establish best practices.
    Methods and analysis: This proposed mixed-methods systematic review will be conducted by searching a wide variety of healthcare databases, grey literature resources and associated charities and societies, for articles reported in English language. Data extraction will include population demographics, technology intervention, factors affecting adoption of intervention and consequent study outcomes. A parallel-results convergent synthesis design is planned, with independent syntheses of quantitative and qualitative data, followed by comparison of the findings of each synthesis using a narrative approach. Normalisation process theory will be used to identify, characterise and explain implementation factors. The quality of included articles will be assessed using the Mixed Methods Appraisal Tool for research papers and the Authority, Accuracy, Coverage, Objectivity, Date, Significance checklist for grey literature. Overall confidence in quality and strength of evidence will be assessed using the Confidence in the Evidence from Reviews of Qualitative Research tool.
    Ethics and dissemination: Ethical approval is not required due to the nature of this mixed-methods systematic review. The findings will be disseminated via a peer-reviewed journal, relevant conferences and any other methods (eg, via NHS Trust or NIHR YouTube channels) as advised by paediatric rheumatology patients.
    Prospero registration number: CRD42023443058.
    MeSH term(s) Child ; Humans ; Adolescent ; Rheumatology ; Delivery of Health Care ; Hospitals ; Mental Processes ; Qualitative Research ; Systematic Reviews as Topic
    Language English
    Publishing date 2024-02-21
    Publishing country England
    Document type Journal Article
    ZDB-ID 2599832-8
    ISSN 2044-6055 ; 2044-6055
    ISSN (online) 2044-6055
    ISSN 2044-6055
    DOI 10.1136/bmjopen-2023-082515
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  10. Article: Designing, Developing, and Testing a Chatbot for Parents and Caregivers of Children and Young People With Rheumatological Conditions (the IMPACT Study): Protocol for a Co-Designed Proof-of-Concept Study.

    Livermore, Polly / Kupiec, Klaudia / Wedderburn, Lucy R / Knight, Andrea / Solebo, Ameenat L / Shafran, Roz / Robert, Glenn / Sebire, N J / Gibson, Faith

    JMIR research protocols

    2024  Volume 13, Page(s) e57238

    Abstract: Background: Pediatric rheumatology is a term that encompasses over 80 conditions affecting different organs and systems. Children and young people with rheumatological chronic conditions are known to have high levels of mental health problems and ... ...

    Abstract Background: Pediatric rheumatology is a term that encompasses over 80 conditions affecting different organs and systems. Children and young people with rheumatological chronic conditions are known to have high levels of mental health problems and therefore are at risk of poor health outcomes. Clinical psychologists can help children and young people manage the daily difficulties of living with one of these conditions; however, there are insufficient pediatric psychologists in the United Kingdom. We urgently need to consider other ways of providing early, essential support to improve their current well-being. One way of doing this is to empower parents and caregivers to have more of the answers that their children and young people need to support them further between their hospital appointments.
    Objective: The objective of this co-designed proof-of-concept study is to design, develop, and test a chatbot intervention to support parents and caregivers of children and young people with rheumatological conditions.
    Methods: This study will explore the needs and views of children and young people with rheumatological conditions, their siblings, parents, and caregivers, as well as health care professionals working in pediatric rheumatology. We will ask approximately 100 participants in focus groups where they think the gaps are in current clinical care and what ideas they have for improving upon them. Creative experience-based co-design workshops will then decide upon top priorities to develop further while informing the appearance, functionality, and practical delivery of a chatbot intervention. Upon completion of a minimum viable product, approximately 100 parents and caregivers will user-test the chatbot intervention in an iterative sprint methodology to determine its worth as a mechanism for support for parents.
    Results: A total of 73 children, young people, parents, caregivers, and health care professionals have so far been enrolled in the study, which began in November 2023. The anticipated completion date of the study is April 2026. The data analysis is expected to be completed in January 2026, with the results being published in April 2026.
    Conclusions: This study will provide evidence on the accessibility, acceptability, and usability of a chatbot intervention for parents and caregivers of children and young people with rheumatological conditions. If proven useful, it could lead to a future efficacy trial of one of the first chatbot interventions to provide targeted and user-suggested support for parents and caregivers of children with chronic health conditions in health care services. This study is unique in that it will detail the needs and wants of children, young people, siblings, parents, and caregivers to improve the current support given to families living with pediatric rheumatological conditions. It will be conducted across the whole of the United Kingdom for all pediatric rheumatological conditions at all stages of the disease trajectory.
    International registered report identifier (irrid): DERR1-10.2196/57238.
    Language English
    Publishing date 2024-04-03
    Publishing country Canada
    Document type Journal Article
    ZDB-ID 2719222-2
    ISSN 1929-0748
    ISSN 1929-0748
    DOI 10.2196/57238
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