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  1. Artikel ; Online: ON BEING MOTHER AND PATIENT: DIALECTICAL STRUGGLES DURING MEDICALLY HIGH-RISK PREGNANCY.

    Mccoyd, Judith L M / Munch, Shari / Curran, Laura

    Infant mental health journal

    2018  Band 39, Heft 6, Seite(n) 674–686

    Abstract: Medically high-risk pregnancy (MHRP) affects 3 to 10% (diagnosis-dependent) of pregnant women in the United States (National Institute of Child Health Development, 2015), threatening maternal and fetal well-being. Although mothers' prenatal distress and ... ...

    Abstract Medically high-risk pregnancy (MHRP) affects 3 to 10% (diagnosis-dependent) of pregnant women in the United States (National Institute of Child Health Development, 2015), threatening maternal and fetal well-being. Although mothers' prenatal distress and mother-infant attachment after birth have been quantitatively researched, little research has examined women's lived experiences of MHRP in the United States. We examined 16 women's experiences of MHRP during hospitalization at an urban, Northeastern U.S. hospital using an interpretive phenomenological approach. Our qualitative findings provide new understanding of how women expend tremendous energy simultaneously navigating new roles of mother and patient. While negotiating these roles, they experienced dialectical struggles and uncertainty relating to emotion management, locus of control, appraisals of self/others, and relational self. Women managed these conflicts within the contexts of their emerging maternal identity, patient-provider relationships, and social relationships. Women struggled as they managed emotion, determined their level of responsibility for fetal outcomes, appraised others and themselves, and worried about how they were perceived. This amplified distress and contributed to women's emotional exhaustion, sense of being overwhelmed, and stress burden. New explication of these energy-depleting dynamic processes underlying women's experiences of MHRP and their impact on the future mother-infant relationship is considered, and strategies for psychosocial support are identified.
    Mesh-Begriff(e) Adult ; Female ; Humans ; Mother-Child Relations/psychology ; Mothers/psychology ; Pregnancy ; Pregnancy Complications/physiopathology ; Pregnancy Complications/psychology ; Pregnancy, High-Risk/psychology ; Pregnant Women/psychology ; Qualitative Research
    Sprache Englisch
    Erscheinungsdatum 2018-10-19
    Erscheinungsland United States
    Dokumenttyp Journal Article ; Research Support, Non-U.S. Gov't
    ZDB-ID 225602-2
    ISSN 1097-0355 ; 0163-9641
    ISSN (online) 1097-0355
    ISSN 0163-9641
    DOI 10.1002/imhj.21744
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

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  2. Artikel ; Online: Actions and Uncertainty: How Prenatally Diagnosed Variants of Uncertain Significance Become Actionable.

    Werner-Lin, Allison / Mccoyd, Judith L M / Bernhardt, Barbara A

    The Hastings Center report

    2019  Band 49 Suppl 1, Seite(n) S61–S71

    Abstract: The development of genomic technologies has seemed almost magical. Excitement about it, both in medicine and among the public, stems from the belief that genomic techniques will illuminate the causes of health and disease, will lead to effective ... ...

    Abstract The development of genomic technologies has seemed almost magical. Excitement about it, both in medicine and among the public, stems from the belief that genomic techniques will illuminate the causes of health and disease, will lead to effective interventions for both rare and common genetic conditions, and will inform reproductive decision-making. Novel diagnostic tools, however, are often deployed before targeted therapies are developed, tested, or available and before their psychosocial implications are explored. Newer technologies such as prenatal whole exome screening are seen as offering "decisional autonomy" to expectant parents, although such technologies identify information about genetic sequencing that may not have clear meaning. The "therapeutic gap" between the ability to conduct genetic sequencing and the ability to fully understand what the test results mean, much less what treatments to offer, leaves families with complex and unclear information they cannot act upon with confidence during pregnancy. In this essay, we will consider the psychosocial and ethical implications of such assumptions-and of the uncertain information produced by these technologies-for individuals and families and for societal aspects such as medical service usage and demographic inequities.
    Mesh-Begriff(e) Decision Making ; Female ; Genetic Predisposition to Disease ; Genetic Testing/methods ; Humans ; Noninvasive Prenatal Testing/methods ; Parents/psychology ; Pregnancy ; Pregnant Women/psychology ; Prenatal Care/methods ; Prenatal Care/psychology ; Prenatal Diagnosis/methods ; Prenatal Diagnosis/psychology ; Stress, Psychological/epidemiology ; Uncertainty
    Sprache Englisch
    Erscheinungsdatum 2019-07-03
    Erscheinungsland United States
    Dokumenttyp Journal Article
    ZDB-ID 194940-8
    ISSN 1552-146X ; 0093-0334
    ISSN (online) 1552-146X
    ISSN 0093-0334
    DOI 10.1002/hast.1018
    Datenquelle MEDical Literature Analysis and Retrieval System OnLINE

    Volltext online

    Zusatzmaterialien

    Kategorien

    Verfügbar in ZB MED Köln/Königswinter

    Zs.B 1672: Hefte anzeigen Standort:
    Je nach Verfügbarkeit (siehe Angabe bei Bestand)
    bis Jg. 2021: Bestellungen von Artikeln über das Online-Bestellformular
    ab Jg. 2022: Lesesaal (EG)

    Über subito bestellen

    Dieser Service ist kostenpflichtig (siehe Lieferbedingungen von subito). Bestellungen, die einen Artikel nebst Supplementary Material umfassen, werden grundsätzlich wie mehrfache Bestellungen bearbeitet. Gebühren fallen in diesen Fällen für jede einzelne Bestellung an.

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