Artikel ; Online: Transitional Care in Anorectal Malformation and Hirschsprung's Disease: A Systematic Review of Challenges and Solutions.
2023 Band 59, Heft 6, Seite(n) 1019–1027
Abstract: Background: The literature on transitional care in anorectal malformation (ARM) and Hirschsprung's disease (HD) is diverse and heterogeneous. There is a lack of standards and guidelines specific to transitional care in these conditions. We aim to ... ...
| Abstract | Background: The literature on transitional care in anorectal malformation (ARM) and Hirschsprung's disease (HD) is diverse and heterogeneous. There is a lack of standards and guidelines specific to transitional care in these conditions. We aim to establish and systematically categorize challenges and solutions related to colorectal transition care. Methods: Systematic review of qualitative studies from MEDLINE, EMBASE, PubMed and Scopus databases (2008-2022) was conducted to identify the challenges and solutions of healthcare transition specific to ARM and HD. Thematic analyses are reported with reference to patient, healthcare provider and healthcare system. Results: Sixteen studies from 234 unique articles were included. Fourteen themes related to challenges and solutions, each, are identified. Most challenges identified are patient related. The key challenges pertain to: (1) patient's lack of understanding of their disorder, resulting in over-reliance on the pediatric surgical team and reluctance towards transitioning to adult services; (2) a lack of education and awareness among adult colorectal surgeons in caring for pediatric colorectal conditions and inadequate communication between pediatric and adult teams; and (3) a lack of structured transition program and joint-clinic to meet the needs of the transitioning patients. The key solutions are: (1) fostering young adult patient's autonomy and independence; (2) conducting joint pediatric-adult transition clinics; and (3) ensuring a structured and coordinated transition program is available using a standardized guideline. Conclusion: A comprehensive framework related to barriers and solutions for pediatric colorectal transition is established to help benchmark care quality of transitional care services. Level of evidence: IV. Type of study: Systematic review without meta-analysis. |
|---|---|
| Mesh-Begriff(e) | Humans ; Hirschsprung Disease/therapy ; Anorectal Malformations/therapy ; Transition to Adult Care |
| Sprache | Englisch |
| Erscheinungsdatum | 2023-11-02 |
| Erscheinungsland | United States |
| Dokumenttyp | Systematic Review ; Journal Article |
| ZDB-ID | 80165-3 |
| ISSN | 1531-5037 ; 0022-3468 |
| ISSN (online) | 1531-5037 |
| ISSN | 0022-3468 |
| DOI | 10.1016/j.jpedsurg.2023.10.066 |
| Datenquelle | MEDical Literature Analysis and Retrieval System OnLINE |
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