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Artikel ; Online: A false promise of COVID-19 'big' health data? Health data integrity and the ethics and realities of Australia's health information management practice.

Robinson, Kerin

Health information management : journal of the Health Information Management Association of Australia

2020 Band 50, Heft 1-2, Seite(n) 9–12

Abstract: ... ...

Abstract	Context
Mesh-Begriff(e)	Access to Information ; Administrative Personnel ; Australia ; Big Data ; Bioethics ; COVID-19/drug therapy ; Computer Security ; Data Interpretation, Statistical ; Electronic Health Records ; Health Information Management/ethics ; Health Information Management/legislation & jurisprudence ; Humans ; Hydroxychloroquine/therapeutic use ; Privacy ; Research ; SARS-CoV-2
Chemische Substanzen	Hydroxychloroquine (4QWG6N8QKH)
Schlagwörter	covid19
Sprache	Englisch
Erscheinungsdatum	2020-07-17
Erscheinungsland	Australia
Dokumenttyp	Journal Article
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/1833358320941190
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008-2020.

Riley, Merilyn / Robinson, Kerin / Kilkenny, Monique F / Leggat, Sandra G

PloS one

2024 Band 19, Heft 2, Seite(n) e0297396

Abstract: Background: Using government health datasets for secondary purposes is widespread; however, little is known on researchers' knowledge and reuse practices within Australia.: Objectives: To explore researchers' knowledge and experience of governance ... ...

Abstract	Background: Using government health datasets for secondary purposes is widespread; however, little is known on researchers' knowledge and reuse practices within Australia. Objectives: To explore researchers' knowledge and experience of governance processes, and their data reuse practices, when using Victorian government health datasets for research between 2008-2020. Method: A cross-sectional quantitative survey was conducted with authors who utilised selected Victorian, Australia, government health datasets for peer-reviewed research published between 2008-2020. Information was collected on researchers': data reuse practices; knowledge of government health information assets; perceptions of data trustworthiness for reuse; and demographic characteristics. Results: When researchers used government health datasets, 45% linked their data, 45% found the data access process easy and 27% found it difficult. Government-curated datasets were significantly more difficult to access compared to other-agency curated datasets (p = 0.009). Many respondents received their data in less than six months (58%), in aggregated or de-identified form (76%). Most reported performing their own data validation checks (70%). To assist in data reuse, almost 71% of researchers utilised (or created) contextual documentation, 69% a data dictionary, and 62% limitations documentation. Almost 20% of respondents were not aware if data quality information existed for the dataset they had accessed. Researchers reported data was managed by custodians with rigorous confidentiality/privacy processes (94%) and good data quality processes (76%), yet half lacked knowledge of what these processes entailed. Many respondents (78%) were unaware if dataset owners had obtained consent from the dataset subjects for research applications of the data. Conclusion: Confidentiality/privacy processes and quality control activities undertaken by data custodians were well-regarded. Many respondents included data linkage to additional government datasets in their research. Ease of data access was variable. Some documentation types were well provided and used, but improvement is required for the provision of data quality statements and limitations documentation. Provision of information on participants' informed consent in a dataset is required.
Mesh-Begriff(e)	Humans ; Victoria ; Cross-Sectional Studies ; Confidentiality ; Informed Consent ; Government
Sprache	Englisch
Erscheinungsdatum	2024-02-01
Erscheinungsland	United States
Dokumenttyp	Journal Article
ZDB-ID	2267670-3
ISSN	1932-6203 ; 1932-6203
ISSN (online)	1932-6203
ISSN	1932-6203
DOI	10.1371/journal.pone.0297396
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: A false promise of COVID-19 ‘big’ health data? Health data integrity and the ethics and realities of Australia’s health information management practice

Robinson, Kerin

Health Information Management Journal

2020 , Seite(n) 183335832094119

Abstract: Context: Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals ... ...

Abstract	Context: Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals for reasons including the (thus far) unverifiable provenance of data. This commentary adopts a health information management lens to focus on aspects of data in one of the studies (investigating the use of hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19). The issues: Referencing the Australian context, the current article considers some of the study’s reported hospital administrative and coded data categories within the context of Australian hospitals’ health information management practices. It highlights potential risks associated with the collection and interpretation of ‘big’ health data. Implications: This article identifies pitfalls that confront researchers undertaking multi-country studies and the need to consider country-specific: (i) collected administrative data items; (ii) health information-related ethical, legal and management policy constraints on the use of confidential hospital records and derived data; and (iii) differences in health classification systems and versions used in the coding of diagnoses and related procedures, interventions and health behaviours. Conclusions: The article concludes that the inclusion of a qualified, senior Health Information Manager in research teams and on institutional Human Research Ethics Committees would help to prevent potential problems.
Schlagwörter	Health Policy ; Leadership and Management ; covid19
Sprache	Englisch
Verlag	SAGE Publications
Erscheinungsland	us
Dokumenttyp	Artikel ; Online
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/1833358320941190
Datenquelle	BASE - Bielefeld Academic Search Engine (Lebenswissenschaftliche Auswahl)

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Artikel: A false promise of COVID-19 'big' health data? Health data integrity and the ethics and realities of Australia's health information management practice

Robinson, Kerin

Health Inf Manag

Abstract: CONTEXT: Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals ... ...

Abstract	CONTEXT: Coronavirus disease (COVID-19) caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has precipitated an unprecedented volume of medical research. Articles reporting two studies were recently retracted from prestigious journals for reasons including the (thus far) unverifiable provenance of data. This commentary adopts a health information management lens to focus on aspects of data in one of the studies (investigating the use of hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19). THE ISSUES: Referencing the Australian context, the current article considers some of the study's reported hospital administrative and coded data categories within the context of Australian hospitals' health information management practices. It highlights potential risks associated with the collection and interpretation of 'big' health data. IMPLICATIONS: This article identifies pitfalls that confront researchers undertaking multi-country studies and the need to consider country-specific: (i) collected administrative data items; (ii) health information-related ethical, legal and management policy constraints on the use of confidential hospital records and derived data; and (iii) differences in health classification systems and versions used in the coding of diagnoses and related procedures, interventions and health behaviours. CONCLUSIONS: The article concludes that the inclusion of a qualified, senior Health Information Manager in research teams and on institutional Human Research Ethics Committees would help to prevent potential problems.
Schlagwörter	covid19
Verlag	WHO
Dokumenttyp	Artikel
Anmerkung	WHO #Covidence: #652163
Datenquelle	COVID19

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Artikel ; Online: The applications of Australian-coded ICD-10 and ICD-10-AM data in research: A scoping review of the literature.

Riley, Merilyn / Lee, Jenn / Richardson, Sally / Gjorgioski, Stephanie / Robinson, Kerin

Health information management : journal of the Health Information Management Association of Australia

2023 Band 53, Heft 1, Seite(n) 41–50

Abstract: Background: ...

Abstract	Background:
Mesh-Begriff(e)	Humans ; United States ; Australia ; International Classification of Diseases ; Clinical Coding ; Mental Health ; Health Planning ; Observational Studies as Topic
Sprache	Englisch
Erscheinungsdatum	2023-09-20
Erscheinungsland	Australia
Dokumenttyp	Journal Article ; Review
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/18333583231198592
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: Defining career success: A cross-sectional analysis of health information managers' perceptions.

Nexhip, Abbey / Riley, Merilyn / Robinson, Kerin

Health information management : journal of the Health Information Management Association of Australia

2023 , Seite(n) 18333583231184903

Abstract: Background: Career success can be defined as the accomplishment of desirable outcomes in an individual's work experiences. It can be divided into objective and subjective career success. Objective success refers to tangible and measurable outcomes such ... ...

Abstract	Background: Career success can be defined as the accomplishment of desirable outcomes in an individual's work experiences. It can be divided into objective and subjective career success. Objective success refers to tangible and measurable outcomes such as promotions and position titles. Subjective career success relates to an individual's interpretations of their success or accomplishments. The career success of health information management professionals has not been explored in the literature. Aim: To determine the indicators of career success as reported by health information managers (HIMs) and identify whether there are any differences based on length of time in the profession. Methods: Using a cross-sectional study design, an online survey was administered to a sample of La Trobe University and Lincoln Institute of Health Sciences Medical Record Administration and Health Information Management graduates from 1985, 1995, 2005 and 2015, which included the following question: "How would you define success in your career?" Results: Almost 88% ( Discussion: Subjective factors of an individual's career success were deemed to be more significant than objective factors among HIMs. Conclusion: Factors such as recognition and appreciation at work, job satisfaction, fostering high-quality work outputs and creating a sense of achievement should be the major foci for managers, organisations and individuals.
Sprache	Englisch
Erscheinungsdatum	2023-07-25
Erscheinungsland	Australia
Dokumenttyp	Journal Article
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/18333583231184903
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: Light the candles! Happy 50th birthday

Robinson, Kerin / Lee, Cheens

Health information management : journal of the Health Information Management Association of Australia

2020 Band 50, Heft 1-2, Seite(n) 3–5

Mesh-Begriff(e)	Anniversaries and Special Events ; Health Information Management ; Periodicals as Topic ; Policy Making
Sprache	Englisch
Erscheinungsdatum	2020-12-17
Erscheinungsland	Australia
Dokumenttyp	Editorial
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/1833358320965711
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: A documentary analysis of Victorian Government health information assets' websites to identify availability of documentation for data sharing and reuse in Australia.

Riley, Merilyn / Kilkenny, Monique F / Robinson, Kerin / Leggat, Sandra G

Health information management : journal of the Health Information Management Association of Australia

2023 , Seite(n) 18333583231197756

Abstract: Background: Health data sharing is important for monitoring diseases, policy and practice, and planning health services. If health data are used for secondary purposes, information needs to be provided to assist in reuse.: Objectives: To review ... ...

Abstract	Background: Health data sharing is important for monitoring diseases, policy and practice, and planning health services. If health data are used for secondary purposes, information needs to be provided to assist in reuse. Objectives: To review government health information asset websites to ascertain the extent of readily available, explanatory documentation for researcher sharing and reuse of these data. Method: Documentary analysis was undertaken on selected Victorian Government health information assets' websites in Australia. Data were obtained on nine information-categories: data custodian; data context; data dictionary; quality controls; data quality; limitations; access process; privacy/confidentiality/security and research requests/outputs. Information-categories were compared by dataset type (administrative or population-health) and by curating organisation (government or other agency). Descriptive statistics were used. Results: The majority of the 25 websites examined provided information on data custodian (96%) and data context (92%). Two-thirds reported access process (68%) and privacy/confidentiality/security information (64%). Compared with population-health websites, administrative dataset websites were more likely to provide access to a data dictionary (67% vs 50%) and information on quality controls (56% vs 44%), but less likely to provide information on the access process (56% vs 75%) and on research requests/outputs (0% vs 56%, Conclusion: There is inconsistent explanatory documentation available for researchers for reuse of Victorian Government health datasets. Importantly, there is insufficient information on data quality or dataset limitations. Research-curated dataset websites are significantly more transparent in displaying research requests or outputs.
Sprache	Englisch
Erscheinungsdatum	2023-10-10
Erscheinungsland	Australia
Dokumenttyp	Journal Article
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/18333583231197756
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: The historiography of a profession: The societal and political drivers of the health information management profession in Australia.

Robinson, Kerin / Barraclough, Simon / Cummings, Elizabeth / Iedema, Rick

Health information management : journal of the Health Information Management Association of Australia

2022 Band 52, Heft 2, Seite(n) 64–71

Abstract: Health information permeates healthcare delivery from point-of-care, across the continuum of care and throughout the healthcare system's policy, population health, research, planning and funding arenas. Health information managers (HIMs) expertly manage ... ...

Abstract	Health information permeates healthcare delivery from point-of-care, across the continuum of care and throughout the healthcare system's policy, population health, research, planning and funding arenas. Health information managers (HIMs) expertly manage that information. This commentary theorises the health information management profession for the first time. Its purpose is to identify and contextualise, via a historiographical account, the societal and political drivers that have shaped contemporary Australian health information management and HIMs' scientific work. It seeks to build our knowledge of the socio-political influences on the profession's emergence and development, and the projected drivers of its future. Eight critical, socio-political drivers were identified and are addressed in temporaneous order.
Mesh-Begriff(e)	Humans ; Australia ; Historiography ; Delivery of Health Care ; Health Policy ; Health Information Management
Sprache	Englisch
Erscheinungsdatum	2022-03-18
Erscheinungsland	Australia
Dokumenttyp	Journal Article
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/18333583211070336
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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Artikel ; Online: Professional identity and workplace motivation: A case study of health information managers.

Nexhip, Abbey / Riley, Merilyn / Robinson, Kerin

Health information management : journal of the Health Information Management Association of Australia

2022 Band 53, Heft 2, Seite(n) 76–84

Abstract: Background: The professional identity and motivation of qualified health information managers (HIMs) is largely unexplored.: Objectives: A larger study has investigated the motivators of HIMs in the construction of their professional identity and ... ...

Abstract	Background: The professional identity and motivation of qualified health information managers (HIMs) is largely unexplored. Objectives: A larger study has investigated the motivators of HIMs in the construction of their professional identity and associated relationships to job satisfaction and engagement with their profession. The aims of this component of the study were to: (i) identify and analyse the characteristics of members of the profession who have different motivation profiles; (ii) obtain HIMs' perspectives on their professional identity; and (iii) measure correlation between HIMs' professional identity and different motivating factors. Results: Response rate: 72.7% ( Conclusion: There was no correlation between motivation profile and professional identity. Significantly, the HIMs demonstrated exceptionally strong positive professional identity, reflected particularly in pride in membership of the profession and their belief in the importance of their professional work.
Mesh-Begriff(e)	Motivation ; Cross-Sectional Studies ; Humans ; Surveys and Questionnaires ; Health Information Management ; Male ; Social Identification ; Job Satisfaction ; Female ; Adult ; Workplace ; Victoria ; Middle Aged
Sprache	Englisch
Erscheinungsdatum	2022-08-15
Erscheinungsland	Australia
Dokumenttyp	Journal Article
ZDB-ID	2390067-2
ISSN	1833-3575 ; 1833-3583
ISSN (online)	1833-3575
ISSN	1833-3583
DOI	10.1177/18333583221115898
Datenquelle	MEDical Literature Analysis and Retrieval System OnLINE

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